Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


chrisepp3

Recommended Posts

chrisepp3 Newbie

Hi Everyone..I am new to this site and was diagnosed with celiac disease (the worst case my gastroenterologist has ever seen) in November 2003. Have been gluten free since January 2004 and am not sure what I am doing wrong. I always had the constipation problem, I eat a lot of beans and vegetables and nothing seems to work. The problem has actually gotten worse since being gluten-free. I have tried laxatives and stool softners and they don't work either. I had a colonoscopy the same time as the endoscopy (which determined the celiac disease) and the colonoscopy was normal. Anybody else out there with this problem. Also severe lower back pain the last three weeks. HELP! Thanks, Christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

You might try going on a low residue diet for a couple of weeks to give your intestines a break. Google the term for more advice, but the basic idea is that you eat little or NO fiber (or complex carbs) so that your body is absorbing ALL of what you eat, and not having to clear out the waste that can't be digested. I don't suggest this for a long term solution AT ALL (though there are a handful of medical conditions where it's warranted), and probably wouldn't do it more than two weeks AT MOST, but it helped me.

I would also highly encourage you to talk to your doctor about this further incase there is a physiologic problem that needs to be addressed.

jasa Newbie

Hey there,

I know the problem - have been living with it for way too long... Over the years I've found a few specific foods that I can eat that basically manage to, er, clear the system out after its been blocked up for a few days. Certain types of yogurt are great - I find Onken in particular works like a treat. If I can't get my hands on that, then cranberry juice does the trick. Another thing, drink loads of water. And someone on this board gave me a great tip a few months back that is useful: if you are constipated, try massaging your 'lower left quadrant' I think they referred to it as. Basically I can feel that my left side is solid and my right side isn't if I massage hard enough. I find that a good twenty minutes or so of massaging at night and in the morning stuff seems to be sorting itself out.

Hope some of the above helps you out - when you've been on the diet longer I guess you'll strike lucky as I have and find certain foods that seem to work for you. Hang on in there...

Take care,

Jasa

plantime Contributor

I have to massage all of my stomach, but it does help me. I start at the groin on the right side, massage up to the ribs, across, then down the left. I keep repeating for 15-20 minutes, every night. When I'm really constipated, I feel the blockage, and it hurts. If you take antihistamines for allergies, it could very well be the cause, or at least a contributor.

kvogt Rookie

I've found that dried apricots can be very moving. Try five a day.

kalo Rookie

I've had my problems too and forgot about masaging the stomache. My massage therapist showed me that. Is there something else like eggs maybe that's causing it? Hugs, Carol B (who just got her test results from enterolabs. Positive for gluten sensitivity, milk casein allergy and I have the gene)

burdee Enthusiast

Christine: Constipation was one of my main celiac symptoms (besides pain, bloating and gas), so I've dealt with that one over the years. Are you taking calcium or iron supplements (which also influenced my constipation)? I started taking magnesium supplements for regularity several years ago. That mineral helps with muscle contractions. In Europe doctors often recommend magnesium and Vitamin C for constipation. If you're getting plenty of vegetable/fruit fiber and liquid, you might just need magnesium to help the intestinal muscle contractions and absorb more water into the stool. I second the suggestion about drinking lots (2-4 liters per day) of water. There are also a few great gluten-free high fiber cereals which helped me. Ener-G Foods Rice Bran cereal (19 grams of soluable fiber per serving) can be cooked as a hot cereal. I add a little Quinoa flakes, which makes the mixture look/feel like cooked oatmeal. Also Nu-World Amaranth makes a great cold cereal from Amaranth which is low carb, high fiber (9-10 grams of fiber per serving) and low calorie. It looks like Cheerios and comes in peach, original and strawberry flavors. I have also successfully used dried plums (OK prunes), but who hasn't?? ;) I can empathize with your struggle. So many celiacs have diarrhea as their main symptom, so gluten-free breads and cereals are SO low in fiber. I've really searched for higher fiber cereals and tried to increase my fiber consumption with cereals, fruits, vegies and water. Good Luck! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



OLIVES4 Newbie

Hi everyone! I am new to this board (in terms of posting), been checking out the site over the past few months and finally joined in!

I am a Licensed Massage Therapist and when I read this post I wanted to make sure that anyone who applies self abdominal massage is doing it in the correct direction as Dessa describes - clockwise, as this is the normal flow of your intestines.

Going in a counter clockwise direction can only move the blockage backwards, defeating the purpose!

kalo Rookie

I also wanted to mention that aloe vera juice is good for constipation as well as coconut. Both of those are great in smoothies. Hugs, Carol B (thanks for the reminder of massage direction)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

    2. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    3. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.