What Is With The Pricks Of The Food Industry

[mark91]

Hello ,

i am marcus a 14 year old in the middle of nebraska i have had celiac disease since i was seven and i have grow to understand what i have and what i cant eat but it still amazes me how adult's and kids alike dont get that i cant eat wheat and gluten products. i get the same old questions "so can you have cookies or brownies" and the same old answer for years NO! but i get over it and go on with my day but it gets me really mad when people who have gone through the food services and dont know what wheat or gluten is and still screw up a meal that i find out i cant eat. Like fast food resturants dont understand a damn thing about my disease which just might be Nebraska or just people in genral . so what i am trying to say is it just my state or are there others like mine who just dont get it

Marcus Richardson

[BRUMI1968]

I called a company to find out if their product had gluten in it. Their answer, "Oh no, it's entirely sugar free."

People in America are sorely undereducated about Celiac. Annoying, ins't it?

[Lisa]

Marcus:

I am 51 and I understand your frustration.

Let me suggest something. Go on this site and pull up a thread called "Your know Your Celiac, if.."

I think you may enjoy it. It is the best laught at ourself.

Try it, you'll love it.

Lisa

[mark91]

I called a company to find out if their product had gluten in it. Their answer, "Oh no, it's entirely sugar free."

People in America are sorely undereducated about Celiac. Annoying, ins't it?

its just like you are speaking a different language to them (srry for the language people i will try better nexttime lol

[Daxin]

It's not specific to the food industry. Recently, I had a response from ORAL B that told me the product I was asking about was gluten free, but they could not tell me that the ingredients were gluten free.

Oh...okay.

[Rice Cakes]

i get the same old questions "so can you have cookies or brownies" and the same old answer for years NO!

It's not their fault they have no idea. After you tell them, ok then it's their fault.

but i get over it and go on with my day but it gets me really mad ...

Remember that gluten contamination makes some people with celiac disease start looking for a fight, so you might be suffering and getting mad.

... when people who have gone through the food services and dont know what wheat or gluten is and still screw up a meal that i find out i cant eat. Like fast food resturants dont understand a damn thing about my disease which just might be Nebraska or just people in genral . so what i am trying to say is it just my state or are there others like mine who just dont get it

People in general. But after you tell them? Then screwing it up is nothing you should put up with.

Let me suggest something. Go on this site and pull up a thread called "Your know Your Celiac, if.."

One of those says something about "You want to ask if you can watch them in the kitchen while they make it, but you would feel weird doing so." What you're talking about, Marcus, is why - even if you tell them, they may forget, and you keep thinking "Will it be an obvious screw-up or a little one?", will it be breading that you said to leave off, or will it be something suspended in a sauce that you can't even taste? Not fun.

[VegasCeliacBuckeye]

Marcus,

The best lesson you can take out of this is realizing that you need to be vigilant about celiac disease.

Other people (most people) are ignorant of celiac disease and they need to be taught.

Very few people understand celiac disease (including doctors -- if most of them don't get it, how is the kid at McD's going to???), so when you run into those that do, embrace them and let them know you appreciate them looking after your well being.

celiac disease gives all Celiacs an opportunity to educate those around us. Unfortunately, most people with celiac disease end up getting mad and are unable to communicate to the people around them what their disorder entails.

I challenge you to become and educator of celiac disease and not allow ignorant folks to make you mad or ruin your day. Take it as an opportunity to increase Celiac awareness in Nebraska...

My two cents...