Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hyperemesis

Fiddle-Faddle

Recommended Posts

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Is there a documented connection with hyperemesis and undiagnosed celiac? I'm starting to get the idea that there must be a link from some of the recent posts. I had terrible hyperemesis for the entire pregnancy with all three of my pregnancies (gee, now I understand why I couldn't keep the crackers down!), but nobocy even mentioned the possibility of celiac to me. Anybody?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Satori Newbie
Satori
Posted
Is there a documented connection with hyperemesis and undiagnosed celiac? I'm starting to get the idea that there must be a link from some of the recent posts. I had terrible hyperemesis for the entire pregnancy with all three of my pregnancies (gee, now I understand why I couldn't keep the crackers down!), but nobocy even mentioned the possibility of celiac to me. Anybody?

I was not gluten-free pregs #1 &2, got severe hyperemesis, lost baby #1 at 5 months gestation due to severe dehydration. Was gluten-free for next 2 pregs, still got it, baby went into distress and died due to my dehydration stressing the fetus, this last preg I raised hell and was given a PICC line at 8 weeks along when it started and it was a life saver, she's asleep in my lap right now and I will NEVER get prego again, 4 pregs with hyperemis and 2 babies lost is enough for me.

  • 2 weeks later...
qtgrl Newbie
qtgrl
Posted
Is there a documented connection with hyperemesis and undiagnosed celiac? I'm starting to get the idea that there must be a link from some of the recent posts. I had terrible hyperemesis for the entire pregnancy with all three of my pregnancies (gee, now I understand why I couldn't keep the crackers down!), but nobocy even mentioned the possibility of celiac to me. Anybody?

I just found out about 10 years ago that I had hypermesis when I was pregnant. My son is now 29 years old. At that time I was very ill and almost died a couple of times. I was 40 when I read an article about hypermesis and started to investigate. About 14 years ago I was diagnosed with Celiac Sprue. They hypermesis foundation is doing studies to find out if there is a connection. I had so much nausea and still do today. When I was pregnant I lost 15 pounds in 3 days. I couldn't even drink water without throwing up.

I think there is a definite connection.

azmom3 Contributor
azmom3
Posted

Hello everyone,

I just stumbled upon this tonight, so I'm a first-timer here. I had hyperemeis with all five of my pregnancies, resulting in 2 miscarriages and 3 beautiful children. This last one was by far the worst one for me. He is now 22 months old and suspected of celiac due to failure to thrive..blood test showed one panel as positive, so we will be redoing blood work and then having a biopsy done if still positive. I'm reading these posts though about possible link with celiac and hyperemesis....has it ever been the baby with celiac that's growing inside the mom and causing her to be so sick as opposed to the mom having celiac? The second my son was born, I felt great, (in comparison) but the nine months I carried him felt like I had something toxic in my body as I was never so sick and in so much pain before. It literally felt like I had something foreign or toxic that was not supposed to be in there. I'd love to hear your thoughts or stories...

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author
Hello everyone,

I just stumbled upon this tonight, so I'm a first-timer here. I had hyperemeis with all five of my pregnancies, resulting in 2 miscarriages and 3 beautiful children. This last one was by far the worst one for me. He is now 22 months old and suspected of celiac due to failure to thrive..blood test showed one panel as positive, so we will be redoing blood work and then having a biopsy done if still positive. I'm reading these posts though about possible link with celiac and hyperemesis....has it ever been the baby with celiac that's growing inside the mom and causing her to be so sick as opposed to the mom having celiac? The second my son was born, I felt great, (in comparison) but the nine months I carried him felt like I had something toxic in my body as I was never so sick and in so much pain before. It literally felt like I had something foreign or toxic that was not supposed to be in there. I'd love to hear your thoughts or stories...

That's how I felt with all three of my pregnancies--evey time I vomited (many times per day), it felt like my body was deperately trying to rid itself of a poison. With the first one (where I refused anti-nausea meds as I was so worried about the side effects), the only thing keeping me from suicide was the fact that I so wanted the baby...REALLY made me rethink the whole abortion issue (I could never get one myself, but I can't see telling someone that they would have to go through 9 months like that when they don't even want the baby, especially if the mom was a rape victim...) Honestly, I had 2 colleagues who, in comparison, just SAILED through chemo for breast cancer, whereas I came home with my first baby 10 pounds UNDER my starting weight.

azmom3 Contributor
azmom3
Posted
That's how I felt with all three of my pregnancies--evey time I vomited (many times per day), it felt like my body was deperately trying to rid itself of a poison. With the first one (where I refused anti-nausea meds as I was so worried about the side effects), the only thing keeping me from suicide was the fact that I so wanted the baby...REALLY made me rethink the whole abortion issue (I could never get one myself, but I can't see telling someone that they would have to go through 9 months like that when they don't even want the baby, especially if the mom was a rape victim...) Honestly, I had 2 colleagues who, in comparison, just SAILED through chemo for breast cancer, whereas I came home with my first baby 10 pounds UNDER my starting weight.
jerseyangel Proficient
jerseyangel
Posted
That's how I felt with all three of my pregnancies--evey time I vomited (many times per day), it felt like my body was deperately trying to rid itself of a poison. With the first one (where I refused anti-nausea meds as I was so worried about the side effects), the only thing keeping me from suicide was the fact that I so wanted the baby...REALLY made me rethink the whole abortion issue (I could never get one myself, but I can't see telling someone that they would have to go through 9 months like that when they don't even want the baby, especially if the mom was a rape victim...) Honestly, I had 2 colleagues who, in comparison, just SAILED through chemo for breast cancer, whereas I came home with my first baby 10 pounds UNDER my starting weight.

I had a terrible time with nausea and vomiting both times. I would lose weight during the first few months--moreso with the first pregnancy. I'm not one to throw up--even though I get very nauseous. But when I was pregnant, I threw up several times a day. I missed my grandfather's funeral :( due to the fact that I was so nauseated and never could predict when I would start to vomit. I did try the anti-nausea med from the doctor with the first--it made no difference, and I was nervous about taking anything, so I stopped it. Of course, I ate lots of saltines--not knowing that they were just making matters worse. I'm incredibly lucky to have my 2 sons, and just couldn't go thru another pregnancy again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KayJay Enthusiast
KayJay
Posted

Wow I was really sick too. I couldn't move or eat or drink anything. Thankfully my baby survived. I feel for all of you who lost your little ones. That just breaks my heart.

  • 3 weeks later...
ptjamie Newbie
ptjamie
Posted

I am now 28 weeks pregnant and have been diagnosed with Celliacs for over a year...despite the gluten-free diet I have still had hyperemesis from 5 weeks to currently and need anti-nauseau meds to get through the day. I have been admitted probably 7-10 times to the ER for IV fluids and admitted for hospital stays 3 times for re-hydration, nutritional needs. Im really interested in this connection since it seems to be with or without the gluten-free diet for some people.

Jamie

queenofhearts Explorer
queenofhearts
Posted

I had terrible nausea & couldn't keep anything down for several months. When I found out I was expecting twins my first thought was "thank God, I'll never have to do this again!" (I really wanted two kids). The docs thought the extreme sickness was because of the high hormone levels with twins. I was a long way from being diagnosed then. I remember being really scared that the babies would starve. But the nausea did abate finally towards the end & I ate a ton & the boys were fine. They're 19 now!

My heart goes out to those of you who lost your babies.

Leah

nyangel4 Newbie
nyangel4
Posted

Hi,

I have had severe hyperemesis. On home IV for four months with both pregnancies and Zofran and prevacid. My third pregancy so severe I terminated my pregancy. They had put a pick line in to far which was hitting my heart. Cardio doctor kept doing X-Rays they told me I had a heart problem. At the time I had a 1 year old daughter and a 3 1\2 old son. The cardio doctor thought terminatiion would be best because they really didn't know what was wrong with my heart. Well as it turns out there was nothing wrong with my heart!! I was a mess.

Now it is four years later, I was diagnosed with Celiac Disease almost going on two years now. I have now found out I am 6 weeks pregnant. I have started getting nauseous. My doctor has put me on prevacid and Zofran. I have taken the Zofran and it seems to help. I have read the stories and see Zofran is not gluten-free. I have a temperature 99 and I consisently feel like I have a virus. I am on the gluten-free diet.

Azmon3 you have said you felt like you had something toxic in your body did you take tylenol, vitamin, etc?

I would love any advice you can give me..

quote name='azmom3' date='Jul 24 2006, 12:41 AM' post='172725']

Hello everyone,

I just stumbled upon this tonight, so I'm a first-timer here. I had hyperemeis with all five of my pregnancies, resulting in 2 miscarriages and 3 beautiful children. This last one was by far the worst one for me. He is now 22 months old and suspected of celiac due to failure to thrive..blood test showed one panel as positive, so we will be redoing blood work and then having a biopsy done if still positive. I'm reading these posts though about possible link with celiac and hyperemesis....has it ever been the baby with celiac that's growing inside the mom and causing her to be so sick as opposed to the mom having celiac? The second my son was born, I felt great, (in comparison) but the nine months I carried him felt like I had something toxic in my body as I was never so sick and in so much pain before. It literally felt like I had something foreign or toxic that was not supposed to be in there. I'd love to hear your thoughts or stories...

jknnej Collaborator
jknnej
Posted

I'm almost positive Zofran IS gluten free. I take it when nauseated and it works wonders. I just think that Glaxo-Smith Kline won't say for sure it's gluten free cus' they want to cover their butts, but a lot of us take it and are fine.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,697
    • Most Online (within 30 mins)
      7,748
    Nicole Poirier
    Newest Member
    Nicole Poirier
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.