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Promising New Gluten Degrading Med Being Developed

trents

By trents
in Related Issues & Disorders

Recommended Posts

trents Grand Master
trents
Posted

Don't know if this has already been posted. My son saw it and sent it to me. One of several promising medication therapies being developed that, if they pan out in clinical trials, will be a blessing to Celiacs. Here's the link: Open Original Shared Link

Steve

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Rikki Tikki Explorer
Rikki Tikki
Posted

I have read about that Steve but I think I would still be afraid to eat anything with gluten. It just seems to me that either the medication would cause a problem or the intestinal damage would still occur. It just might be that I was sick for so many years before being diagnosed I am just too afraid to try anything like that. I think I will take a wait and see approach. :ph34r:

queenofhearts Explorer
queenofhearts
Posted

I think the idea is not to enable Celiacs to eat gluten-containing foods, but to help protect them against accidental cross-contamination. I sure hope the trials are successful, since that is the hardest part of the diet in my opinion.

Leah

hez Enthusiast
hez
Posted

I would love to continue my gluten-free life yet be able to go out to dinner without the fear of cc. My fingers are crossed that something will happen in the next five years!

Hez

Rikki Tikki Explorer
Rikki Tikki
Posted

I guess I have read it wrong. What I took away from it is that it will break down the gluten in food making it so that people with celiac can eat gluted. I never did well in the sciences :blink:

I hope it does work, guess I am just scared

NicoleAJ Enthusiast
NicoleAJ
Posted

I'm always skeptical about the long term effects of new drugs, but I'd really love to be able to travel or go out to restaurants without constant fear of the most minor bits of cross contamination wreaking havok on my body and my life. So I'm hopeful but would also proceed with caution.

Rikki Tikki Explorer
Rikki Tikki
Posted

Do you think you would take it either everyday or before meals or only if you knew you were going out to eat?

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    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Welcome to the celiac.com community, @SamAlvi! Were there any other antibody tests ordered? Particularly, was there a "total IGA" test ordered to check for IGA deficiency. When people are IGA deficient, celiac panel IGA test scores, such as the TTG-IGA, are likely not valid. If a total IGA test was not ordered, I would request such to be done. Note: "Total IGA" goes by other names as well. I will include a primer on celiac disease antibody testing which does a good job in covering the nomenclature variations connected with the various tests. Elevated IGG scores can certainly indicate celiac disease but they are more likely than elevated IGA tests to be caused by something else.  
    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thank you— yes, valid and essential— The issue either doctors is that every one I have tried to talk to about this has essentially rolled their eyes and dismissed me as a hypochondriac, which gets discouraging. I believe a diagnosis would help me to be taken seriously by doctors as well as being validating, but can carry on without it.    There are many, probably most people in my area of my age and gender, who avoid gluten, but many just avoid it casually— eating the occasional plate of wheat pasta or a delicious-looking dessert, or baking cookies with wheat flour for gatherings.  That is not an option for me. I don’t eat other people’s cooking or go to restaurants that do not have strict cross- contamination procedures. It can be boring and lonely, and people do look at me as if I am being a bit dramatic but weeks of symptoms after a single small exposure has taught me to respect my experience.    Thank you very much for your response— sometimes I just need to hear that I am not crazy—
    • lalan45
      Am I nuts?

      By lalan45 · Posted

      You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
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