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DanAbimytwomiracles

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DanAbimytwomiracles Newbie

Hi! Well, I'm not happy that I have to join here :rolleyes: , but I'm glad this is here as a resource. I'll work on my signature in a bit, but my name is Christine and I'm 35, I live in NJ with my husband and 2 kids. I figured out I needed to go gluten-free after I finally figured out that my 4 year old twins needed to be gluten-free. I'm also DF (most of the time :ph34r: ) My daughter also has a dairy sensitivity, and my son has sensitivities to dairy and soy (protein, oil & spy lecithin seems OK) and an anaphylactic allergy to tree nuts.

The tree nut thing is what kills me, because many of the gluten-free products out there are possible contaminated for him, so I rarely buy anything that isn't safe for everyone - except my Soy Dream chocolate ice cream B) .

Anyway, I thought I'd say hi before I started replying to anyone's posts :) .


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Lisa Mentor

Welcome, and what a BIG name.

Please read the post, they will be very helpful. There are many here with several allergys and I know they will be helpful.

Welcome aboad.

Lisa

RiceGuy Collaborator

Welcome from myself as well. I've personally found this site and its members to be most valuable. I guess the joining requirement helps keep this site open, and free for us to use and benefit from. Well worth the price IMHO :)

CarlaB Enthusiast

Welcome! I initially didn't feel happy about this whole thing either, but now I recognize the blessing it really is. This forces you to eat fewer processed foods and more whole foods, so you eat so much better than the majority of the people in the country that once you get healthy, you are probably healthier than they are. I know that I generally feel better than other people my age because I'm more in touch with what my body tells me and I eat food that's good for me.

There are a lot of different people here who have found out about their gluten intolerance in different ways and are at different stages of healing. Many have other allergies/intolerances, so there's always someone who can identify with your situation. There are also varying opinions on ideal diet (subject of another current thread) and how to handle situations, so you can read them all and decided what's best for you.

Welcome!

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    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
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      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
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      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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