Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Allergies


Carriefaith

Recommended Posts

shai76 Explorer
shai76, if you don't mind me asking, which foods cause your severe reactions?

I'm a class 3-4 with soy, and a class 2 with milk, eggs, corn, wheat, oats, and yeast. And a class 1 with turkey, tree nuts, fish, and coffee.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 58
  • Created
  • Last Reply
Michi8 Contributor
They say spice mix is allspice, cinnamon, colves, ginger, and nutmeg.

Marcia, thanks for your reply. Does your daughter know for sure what causes her reactions? This is all very confusing for me as I am not 100% sure what caused the reaction. I wish my epipen were free, I had to pay $140! And I don't have insurance! Ah!

I had a skin prick test and they tested for a lot of different foods. I'm not too concerned about the foods I'm allergic to since most of them are easy to avoid except potatoes. I'm not really sure what peanuts do to me since I eat peanut butter all the time! And peanut allergy was very high on the test :blink:

Carrie,

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)

In terms of the peanut allergy, it is possible that you will never have an anaphylactic reaction (given you eat peanut butter regularly.) I never did, I only ever reacted with itchy tongue, throat, ears and lips. The allergist had me carry an Epipen for a while (I think a lot of allergist are being very cautious nowadays), but I think it was overkill (I had lived with my peanut allergy for 26 years at that point!)...there was never a sign of anaphylaxis for me.

I "outgrew" that peanut allergy after I had my first baby. I've since develped new foods allergies in its place. :) From what I understand, completely avoiding peanuts was what helped my body "outgrow" the allergy...now I ingest them on a regular basis to keep my allergy at bay.

Michelle

Carriefaith Enthusiast

Thanks shai76 :)

That price for the Epipen was very high. I bought my sons at the Walmart pharmacy (in Alberta) for around $95-99. Fortunately, for us, the price is covered by insurance. I recommend shopping around for a better price the next time you have to buy one (the shelf life isn't very long unfortunately.)
That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?
Michi8 Contributor
Thanks shai76 :)

That is a lot cheaper! Mine is a Twin EpiPen, maybe that is why it is so expensive?

It could be. I've never seen a "Twin EpiPen"...is it a double injection kit? My son's epipen is the standard adult dose, single injection. Because he has a penicillin allergy I only buy and carry one epipen at a time...it expires before it's needed, because it's pretty hard to get penicillin accidentally (although I really need to advocate for my son with doctors, because they prescribe penicillin without thinking.) :rolleyes: I really need to get my son a medic alert bracelet instead, as I think it would be way more helpful if he ever needed medical attention in an accident away from home and family.

Michelle

Carriefaith Enthusiast

Michelle,

Mine is called a Twinject and there are two doses. I'm assuming that's why it is so expensive! There is one auto injector and one manual needle. They have two in case the first dose wears off before you can get medical attention.

A medic alert bracelet is always a good idea for someone with severe allergies. The bracelet would definately help him away from home. I am thinking of getting one myself now that I have this allergy.

sasha1234 Newbie

I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.

Carriefaith Enthusiast
I'm in Alberta too and was just recently told to switch over from Epipens to Twinjects because of the reassurance that you have 2 dosages, especially good for travellers. However, they are currently quite a bit more expensive (I don't remember what mine was, insurance paid, but it was about what you paid $140 I believe), anyway it is cheaper than having two Epipens. I expect as they become more prominent (they are a new product) the price will slowly come down, they certainly did with Epipens.
Hopefully the Twinjects will get cheaper with time. I think that they are a great idea! I got a practice one with no needles from my allergist and they are fairly easy to use.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



munchkinette Collaborator

Wow, that's really scary. I've never had that kind of reaction from just eating wheat, but my other allergies (dust mites and pets) can get really bad like that after I've been glutened. If it's within a week of eating a little wheat (it usually ends up being soy sauce in a marinade instead of contamination) then the addition of my pets often causes me to need my inhaler. It just seems to be a cumulative thing for me. One allergy alone won't make my throat close up, but the combination of two things will.

I definitely keep benadryl and claritin in my purse. I have a few inhalers in various places.

Carriefaith Enthusiast
One allergy alone won't make my throat close up, but the combination of two things will.
I am really glad that you shared that. I am wondering if my reaction was from a combination of being exposed to wheat and milk. I was having breathing problems the week leading up to the reaction and I now know that I was eating large amounts of gluten contaminated chips that entire week. I started unknowinly eating dairy contaminated chips a few days before the reaction. I almost wonder if it was an allergen overload. I am hoping that is what happened. But I am pretty sure that the gluten contaminated chips were causing my respiratory problems.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.