Newbie With Symptoms

[Mayflowers]

I've been having strange symptoms and was wondering if others who have celiac has this. When I eat wheat about an hour later, I have gas, and painful pressure in my upper abdomen, in my sternum area right under the rib cage in the center of my chest. It's not really heartburn.

I also get it with oats but not as bad. I'm asking this because the symptoms I've read state lower abdominal issues and don't mention my reaction. Does anyone have these symptoms? Thanks

[Smunkeemom]

I had them pre-dx and was told it was my gallbladder, had it removed, it was better for a while, then came back when I would eat gluten. Dr. said it was scar tissue, but since I have been gluten free it's been gone.

Have you had them check your gallbladder? I know that mine was actually messed up, so I don't know what the pain was other than it's gone now. could be a coincidence.

[floridanative]

My Celiac Mother had that and also had her gallbladder removed. It was diseased but she'd never once had a gallstone...in the end Celiac was the culprit and she had symptoms for about 20 years before I was dx'd. Keep in mind everyone has different symptoms. I never had the bad gastro things many have - just because I had not been sick that long I'm sure. So docs kept saying I could not have Celiac because I did not present they way they think Celiacs should. Boy was the last docs face red (could feel it over the phone) when he called to say I had classic Celiac Sprue after originally telling me I did NOT need a biopsy! Get tested and if you don't have it (you probably do) then you can look for other things. You could have a lot worse things than Celiac and if you have it and go gluten free, you'll be thankful to find out now rather than later.

[Mayflowers]

Hi

Thanks for your input! I thought it was my gallbladder too at first, but then when I didn't eat wheat or oats, I didn't have the gas/pain/pressure problem. I figured if it was my gallbladder, I'd have the pain with everything I ate if it was malfunctioning.

I did have a blood test for standard allergies to eggs, wheat, soy, milk. All came back negative. That's why I was surprised. Funny thing is I was allergic to milk as a baby and outgrew it. I thought at least the milk would have shown up iffy.

I saw the lab that does stool testing, but the cost is huge. I might just eliminate wheat and oats to see how I feel myself.

[queenofhearts]

Hi

Thanks for your input! I thought it was my gallbladder too at first, but then when I didn't eat wheat or oats, I didn't have the gas/pain/pressure problem. I figured if it was my gallbladder, I'd have the pain with everything I ate if it was malfunctioning.

I did have a blood test for standard allergies to eggs, wheat, soy, milk. All came back negative. That's why I was surprised. Funny thing is I was allergic to milk as a baby and outgrew it. I thought at least the milk would have shown up iffy.

I saw the lab that does stool testing, but the cost is huge. I might just eliminate wheat and oats to see how I feel myself.

Don't forget to avoid barley & rye as well if you want to be gluten-free. Good luck!

Leah

[CarlaB]

Hi

Thanks for your input! I thought it was my gallbladder too at first, but then when I didn't eat wheat or oats, I didn't have the gas/pain/pressure problem. I figured if it was my gallbladder, I'd have the pain with everything I ate if it was malfunctioning.

I did have a blood test for standard allergies to eggs, wheat, soy, milk. All came back negative. That's why I was surprised. Funny thing is I was allergic to milk as a baby and outgrew it. I thought at least the milk would have shown up iffy.

I saw the lab that does stool testing, but the cost is huge. I might just eliminate wheat and oats to see how I feel myself.

Celiac isn't an allergy, so it would not have shown up on an allergy test. You would need the celiac blood panel for it, or the stool test. If you're gluten-free, however, the blood test could have a false negative.

[Mayflowers]

Celiac isn't an allergy, so it would not have shown up on an allergy test. You would need the celiac blood panel for it, or the stool test. If you're gluten-free, however, the blood test could have a false negative.

Thanks!

[Shannon27]

Hi

Thanks for your input! I thought it was my gallbladder too at first, but then when I didn't eat wheat or oats, I didn't have the gas/pain/pressure problem. I figured if it was my gallbladder, I'd have the pain with everything I ate if it was malfunctioning.

I did have a blood test for standard allergies to eggs, wheat, soy, milk. All came back negative. That's why I was surprised. Funny thing is I was allergic to milk as a baby and outgrew it. I thought at least the milk would have shown up iffy.

I saw the lab that does stool testing, but the cost is huge. I might just eliminate wheat and oats to see how I feel myself.

Wow, your symptoms could be my own. In fact, right now, I am undergoing all sorts of tests for my gallbladder and the ducts around it. I get the pain under my ribcage as well and ONLY when I eat gluten. I was recently diagnosed by stool test as gluten intolerant. This is my first week gluten-free. WHAT A DIFFERENCE.

If you don't have the money for the testing, please, by all means, eliminate gluten and see how you feel. You'll find that many people on this board never had a test. They just listened to their body and stopped eating gluten and it made a world of difference for them. Ironicially, many people on here had their own gallbladders out due to stones or disease. Connection to celiac or gluten intolerance? Who knows. It's quite ironic that a great deal of people on this board have had their gallbladders out.

In any event, welcome! Looking forward to reading more of your posts!

Shannon

[dionnek]

You mentioned yours was in the middle - my pain is on the left side usually, right under my ribcage. Extreme cramps. I've only been gluten free for 2 months, but still get it (confirmed celiac by biopsy and blood tests) - does anyone know what this could be? Still the healing process? If I'm not mistaken I think your gallbladder is on the right side, so I don't think that would be it (I've had several xrays of my abdomen also - would that find gallbladder problems?). I also occassionally (like last night) get extreme stomache cramps in the middle of my stomache so much so that I am doubled over in pain for several hours, but no D or vomitting comes with it. I've had that twice since going gluten-free, both times after eating panang curry, which was supposedly gluten free! Dr. suspected crohns, but xray showed just celiac....

[Mayflowers]

You mentioned yours was in the middle - my pain is on the left side usually, right under my ribcage. Extreme cramps. I've only been gluten free for 2 months, but still get it (confirmed celiac by biopsy and blood tests) - does anyone know what this could be? Still the healing process? If I'm not mistaken I think your gallbladder is on the right side, so I don't think that would be it (I've had several xrays of my abdomen also - would that find gallbladder problems?). I also occassionally (like last night) get extreme stomache cramps in the middle of my stomache so much so that I am doubled over in pain for several hours, but no D or vomitting comes with it. I've had that twice since going gluten-free, both times after eating panang curry, which was supposedly gluten free! Dr. suspected crohns, but xray showed just celiac....

Thanks for the welcome Shannon~

Have you tried giving up all grains? You might be alllergic to one of the others. Have you been tested for the heliocolbactor pylori bacteria? My mother had that and she felt a burning sensation on one side of her upper abdomen all the time until she got tested and it was positive. She was treated.

Ever since I tried going on a low carb diet, I've been having problems with my digestion. I always had a sensitive stomach anyway. You might just be still healing. I wouldn't keep eating the curry if you react to it every time. Today I'm just eating white rice to see if I have symptoms. Wish me luck! I also read symptoms for Hiatal Hernia which I have also! :

Chest pain or pressure

Heartburn

Difficulty swallowing

Coughing

Belching

Hiccups