Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerance As A Possibility


Nic

Recommended Posts

Nic Collaborator

Hi, I spoke with my ped. GI today. My son's food allergy blood work came back as negative for all food allergies. I went on to tell him that 17 days ago one of the docs at my ped. office suggested that I try treating him for lactose intolerance and to give him Acidophilus for the alternating constipation.

Before I started this change, Jacob pooped several times a day for about a week at a time. His bowel movements were very loose and very heavy. Then he would just stop and not be able to go for several days and then boom, the flood gates open and here comes the heavy messy bms again. Since we started using Lactaid and the Acidophilus, he has pooped everyday but only once and it is now formed and a normal amount as opposed to loose and heavy. His disposition has also improved. I took this as good news.

I explained all this to the GI and he said he feels very unlikely that Jacob is lactose intolerant. He said that lactose intolerance never includes constipation (but what about all the heavy loose pooping he does?). He said it is more likely the Acidophilus that his helping him. But it was my understanding that the Acidophilus just helps the GI tract work better, would that change the consistancy of the BM? He went on to say that Jacob was definitely lactose intolerant when he was first diagnosed as a Celiac (but he never told me that then) and that as far as the constipation is concerned, Acidophilus is a common treatment and he should have been on it all along (he never told me this before). He offered to do a lactose test if I really feel concerned about this.

Am I being silly but wanting him tested? I see so much improvement but the doc. said it is unlikely to be the cause. Any thought or advise would be helpful.

Thanks,

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aikiducky Apprentice

I actually agree with the doc that it's more likely the acidophilus that's working. Yes it will change consistency the bms. Lactose would be more likely to cause D some time after eating dairy, and not this pattern of alternating C and soft stools, I think.

Maybe you could leave out the Lactaid but keep giving the acidophilus, and see what happens for a week or two?

Pauliina

Nic Collaborator
I actually agree with the doc that it's more likely the acidophilus that's working. Yes it will change consistency the bms. Lactose would be more likely to cause D some time after eating dairy, and not this pattern of alternating C and soft stools, I think.

Maybe you could leave out the Lactaid but keep giving the acidophilus, and see what happens for a week or two?

Pauliina

I actually spoke with my ped. tonight and we agreed to take him off of the Lactaid but keep him on the acidophilus. I did not realize that the acidophilus could change the consistency of the bm. Am I understanding it correctly that if it were lactose intolerant he would be sick each time he ate dairy (which is everyday) instead of stretches of good or bad days?

aikiducky Apprentice

Poop is actually for a big part made of the bacteria that live in the gut, so adding healthy bacteria would change the consistency.

Lactose intolerance could also mean good and bad days, because one's body could conceivably be producing more lactose some times and less others, and the reaction also depends on the amount of lactose... but I think you'd still see a fairly consistent reaction everytime a few hours after eating dairy, at least gas. :P But since your going to take him off the lactaid i guess you'll see. :) I hope it turns out well and the acidophilus does the trick!

Pauliina

Nic Collaborator

Hi, so I took Jacob off of the Lactaid pills yesterday to see if we would see any change. Low and behold, today was an awful day for him. About 2 hours after breakfast (cereal with milk and a cup of milk) he was in the bathroom with a heavy, messy bm. Then, about within 2 hour after eating lunch (gluten-free pizza and milk) he was having terrible stomach pains and then another heavy, messy bm. Since then has had nothing to eat and seems to be fine.

Now, I know this sounds easy to figure out, but, yesterday while on the lactaid still he had 3 bm's (all normal consistancy) which at the time made me worry that we were heading into a bad spell again. So really I don't know if it is the lactose or would it be happening now anyway. In any or your opinions, would you give it another day? Or take away the lactose again?

Nicole

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to RDLiberty's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Toothpaste question.

    2. - Scott Adams replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Probiotics

    3. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Celiac attack confusion and anxiety

    4. - Scott Adams replied to nanny marley's topic in Related Issues & Disorders
      2

      Manitol and mri

    5. - Scott Adams replied to bombier's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      KATZ CINNAMON DONUTS


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,789
    • Most Online (within 30 mins)
      7,748

    klholt
    Newest Member
    klholt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      There is no scientific evidence to suggest that hydrated silica or its relative, silicon dioxide, triggers a celiac-specific immune response or causes intestinal damage in individuals with the condition. The concern you likely encountered online is a common misconception. Here’s the key distinction: the protein in gluten (gliadin) is what causes the autoimmune reaction in celiac disease. Hydrated silica and silicon dioxide are minerals, chemically inert compounds of silicon and oxygen, and are completely unrelated to gluten proteins. They are widely used as abrasives in toothpaste and anti-caking agents in food powders because they are stable and non-reactive. While any individual can have a unique sensitivity to any substance, there is no mechanism by which these silica compounds would mimic gluten or exacerbate celiac disease. Your diligence in using a certified gluten-free toothpaste is the correct and most important step, as it eliminates the risk of cross-contamination with wheat-derived ingredients like starch. Based on current scientific understanding, the hydrated silica in your toothpaste is not an issue for your celiac management.
    • Scott Adams
      There is no single "best" probiotic brand universally recommended for celiac disease. The goal of a probiotic in this context is to help support the gut microbiome, which can be disrupted by the damage caused by gluten exposure. The most important factor is not the brand name, but ensuring the product is certified gluten-free, as some probiotics use wheat-derived starches or are produced in facilities that handle gluten, posing a cross-contamination risk. Furthermore, the specific strains of bacteria can matter; some research suggests strains like Lactobacillus and Bifidobacterium may be beneficial, but individual responses vary greatly. Because the supplement industry is not tightly regulated, choosing a reputable brand that undergoes third-party testing for purity and potency is key. 
    • Scott Adams
      What you are describing, while terrifying and severe, is an experience that others in the celiac community have reported during a powerful reaction. The systemic inflammation triggered by gluten exposure in someone with celiac disease can absolutely extend far beyond the digestive tract, creating a cascade of symptoms that feel like your entire body is in revolt. The severe pain, neuropathy, muscle and jaw tension, and intense anxiety and confusion are all potential manifestations of this body-wide inflammatory and autoimmune response. It's a well-documented phenomenon that a celiac attack can provoke a significant neurological and psychological component, including "brain fog," disorientation, and panic-level anxiety. While your first step should always be to meticulously re-check all foods, medications, and even cross-contamination sources, it's also possible that a previously safe product has changed its formula or that you encountered a hidden source. 
    • Scott Adams
      The substance you're likely thinking of is "mannitol," which is a sugar alcohol, and it is indeed used as a sweetener in some "sugar-free" products. However, for an MRI, the drink is almost certainly "Mannite," which is a brand name for a laxative preparation used to cleanse the bowel before the scan. Its primary purpose is not to sweeten but to create a clear image by distending the bowel and stimulating a bowel movement. While the names sound similar, the function and formulation are very different from a small-quantity sweetener. That said, your concern is valid and should be addressed with your healthcare team. The most important step you can take is to call the MRI department or your referring doctor directly. Explain your specific reaction to sweeteners in detail—mentioning the throat and ear sensations is crucial as it could indicate a more significant sensitivity. They can confirm the exact drink they use, check its full ingredient list for you, and determine if an alternative prep is available or if pre-medication is recommended to ensure your safety and comfort during the procedure.
    • Scott Adams
      I'm so sorry to hear you're feeling so unwell, and I hope you recover quickly. While your personal experience of getting sick is absolutely valid, there are a few key inaccuracies in the information you've shared that are important to clarify for anyone else reading. The central misunderstanding is about oats and gliadin. Oats do not contain gliadin; gliadin is a specific protein found exclusively in wheat. The protein in oats is called avenin, which is similar in structure but is a completely different compound. For the vast majority of people with celiac disease or gluten sensitivity, pure, uncontaminated oats are safe. The reason "gluten-free" oats are necessary is because regular oats are frequently cross-contaminated with wheat, barley, or rye during growing and processing. Certified gluten-free oats are tested to ensure they are free from this cross-contamination. It's possible you may have a separate and less common sensitivity to avenin in oats themselves, or the illness could have been caused by another ingredient or even an unrelated virus. Given your expertise and severe reaction, it would be a good idea to discuss this with a doctor to pinpoint the exact cause. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.