Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Swollen Glands


Corkdarrr

Recommended Posts

Corkdarrr Enthusiast

The glands in my neck are swollen and tender - almost painful to the touch. They've been like this for a while now, I guess. But I don't have a sore throat or a cold or anything.

I've only been off gluten for about two weeks now.

Could this be related to the whole gluten issue or is there something else going on that I should be concerned about? Both sides hurt equally.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rikki Tikki Explorer

I haven't experienced this, but I would probably have the doctor check it out. Maybe someone else on the board has?

Ursa Major Collaborator

I used to have swollen, painful glands ALL the time. Not always the same ones. Sometimes by my ears, other times the back of my neck, or under my chin, or even in my armpits.

They finally stopped being swollen about two months of being gluten-free. Give it some time, I am sure mine was celiac related, and yours may very well be too.

lorka150 Collaborator

maybe you have mono - i'd go to the doctor.

i had mono and my only symptom was swollen glands at first, so i got tested just to see. it came back positive, and i was 'fine', but one week later had full fledged mono (on percocet, steroids, an IV and in the hospital), and couldn't do much for about six months.

not to freak you out - but just so you know - better be safe than sorry.

GlutenWrangler Contributor

I used to get swollen glands every now and again. Since going gluten-free, it has gone away. But you should get it checked just in case.

-Brian

kabowman Explorer

My glands in my neck would swell up and become sore regularly, 1-8 times a month and lasting for 1-3 days each before I figured out my food issues, has only happened 1 or 2 times since all this has been fixed.

covsooze Enthusiast

Since havin had mono 15 years ago (yikes, can't believe it's that long ago!!) I've had swollen glands almost permanently. I've been gluten-free for 6 months and not really noticed a difference - maybe I have other food issues to sort. It's worth you have bloods done though, as it could be mono or another infection. Or it could simply be your immune system fighting hard to clear all the bad guys in the wake of going gluten-free I guess.

Susie x


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PatrickCA Newbie

I have had similar experiences. Just occasional painfully swollen glands (1-2 days) under the chin without any associated cold. For me, the glands flairs seemed to coincide with increasing severity of other problems, joints, muscles, bones, and neurlogical.

jennyj Collaborator

I am going through this right now. I was even supposed to have a biopsy this week but luckily didn't. The surgeon is just going to keep an eye on it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.