Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Does Anyone Have A Medication List Of Do's And Dont's

Sharon1422

Recommended Posts

Sharon1422 Newbie
Sharon1422
Posted

:( Today was the first day that I realized that this is going to be a major problem Gluten one big nightmare. I was scheduled for my biopsy on Friday. When the office called and asked me all of my information about surgeries and health history they decided to cancel my biospy. I have a cough they I've had for a couple of months now along with asthma. Well, now I have to get clearance from my regular md. so off to the md I go. Explaining all the test and results and then that wonderful word....gluten ......which of course he said he knows nothing about....ok antibiotic and prevacid precriptions....ok "do you know if these have gluten in them" "dont know check with pharmacy"....ok....pharmasist...."dont know" you said gluten....ok changed pharmacies.... Oh, did I mention hiatal hernia....the gastric juices have been coming up and causing the problem with my throat and phlem. It been a wonderful week.

I need to know if anyone knows of a list thats out there to bring to pharmacy and doctor.

Any help would be great....thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted
:( Today was the first day that I realized that this is going to be a major problem Gluten one big nightmare. I was scheduled for my biopsy on Friday. When the office called and asked me all of my information about surgeries and health history they decided to cancel my biospy. I have a cough they I've had for a couple of months now along with asthma. Well, now I have to get clearance from my regular md. so off to the md I go. Explaining all the test and results and then that wonderful word....gluten ......which of course he said he knows nothing about....ok antibiotic and prevacid precriptions....ok "do you know if these have gluten in them" "dont know check with pharmacy"....ok....pharmasist...."dont know" you said gluten....ok changed pharmacies.... Oh, did I mention hiatal hernia....the gastric juices have been coming up and causing the problem with my throat and phlem. It been a wonderful week.

I need to know if anyone knows of a list thats out there to bring to pharmacy and doctor.

Any help would be great....thanks :)

As far as prescriptions go. The easiest thing to do is get the manufacturer name from the pharmacy and call the company yourself. You can do a search online for the company and they have people on staff that can tell you the gluten free status of the RX.

If you call yourself then you can make sure to ask the right questions and you can hear first hand their response.

-Jessica :rolleyes:

olalisa Contributor
olalisa
Posted

there's a website you can go to called glutenfreedrugs.com. This site will generally have the answer :) and has been a lifesaver for me!

lovegrov Collaborator
lovegrov
Posted

Prevacid is gluten-free and all antibiotics I've ever seen. BUT, you still just need to call the companies. If a company tells you the product is supposed to be gluten-free but they can't guarantee the ingredients from a supplier, don't worry about it. It's gluten-free.

richard

Sharon1422 Newbie
Sharon1422
Posted
  • Author
there's a website you can go to called glutenfreedrugs.com. This site will generally have the answer :) and has been a lifesaver for me!

Your information was so helpful. I pulled up the website and I have a list. Im making copies and taking it to my doctors and to the pharmacy. Thank you... :D

kbtoyssni Contributor
kbtoyssni
Posted

I'm surprised your pharmacy didn't find this information for you. My pharmacy was great and called all the manufacturers of my meds for me.

Sharon1422 Newbie
Sharon1422
Posted
  • Author
I'm surprised your pharmacy didn't find this information for you. My pharmacy was great and called all the manufacturers of my meds for me.

I would of assumed that a pharmasist would be updated on Gluten Free Medications....but, when he pulled out an insert and started reading and then a medical pocket dictionary I got a little nervous. He said oh just take some Benadryl for the reaction. He also said that I have taken the antibiotic before and it didnt bother me. I tried to explain that I was just found out about this condition. He just didnt understand any of it. I left and went to another small home town more personal pharmacy and had a discusson with the pharmasisit and then had called the other pharmacy to fax over my prescriptions. By this time I was so discussed. I then got the prescriptions but looked it up online and sent an email to the company. But, thank god for this site I was able to get a website and a really good list. Im feeling alot better knowing that this site can really help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


angel-jd1 Community Regular
angel-jd1
Posted
I would of assumed that a pharmasist would be updated on Gluten Free Medications....but, when he pulled out an insert and started reading and then a medical pocket dictionary I got a little nervous. He said oh just take some Benadryl for the reaction. He also said that I have taken the antibiotic before and it didnt bother me. I tried to explain that I was just found out about this condition. He just didnt understand any of it. I left and went to another small home town more personal pharmacy and had a discusson with the pharmasisit and then had called the other pharmacy to fax over my prescriptions. By this time I was so discussed. I then got the prescriptions but looked it up online and sent an email to the company. But, thank god for this site I was able to get a website and a really good list. Im feeling alot better knowing that this site can really help.

I work in a pharmacy part time as a tech. There is absolutely no way for a pharmacist to know every ingredient in ALL medications and their generics. They are lucky if they know the active ingredients (the ones that count). If wheat was used in a med. it would most likely be as a binder which wouldn't be a terribly important ingredient to remember to the average person.

That is why your pharmacist pulled the package insert and started reading. He probably also pulled a drug book that lists information on drugs (not always full ingredient listings). He was doing the best that HE/SHE could do.

Your best bet is to ask them the name of the manufacturer and call them yourself. That way you are getting the information 1st hand from the people who are making the drug.

-Jessica :rolleyes:

jerseyangel Proficient
jerseyangel
Posted

My suggestion is to call the manufacturer of the drug yourself. The gluten-free drug list may not always be completely up to date. Any time I have called a drug company, and this includes generic, they put me thru to a pharmacist or nurse who answers my questions. All have been very nice and knowledgeable. You can get the phone numbers from the pharmacist or on the company's website.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

I agree with Patti -- I always call the manufacturer myself. My pharmacist is so unbelievably busy, that I don't know how he keeps up with all the new medications coming out, much less the ingredients in them all! But, they are always very helpful in giving me the phone number of the manufacturer.

I was really glad that I called . . . my generic Synthroid, my generic Klonopin (which they were giving me FOR the spasticity that the Gluten Ataxia has caused), and one other one (can't remember) were all gluten-containing. Now, my doctor writes Name Brand Only . . . and I still call the company of the name brand one just to make sure!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,915
    • Most Online (within 30 mins)
      7,748
    marcusdarrell1
    Newest Member
    marcusdarrell1
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thank you, a little expensive but glad to have this source. 
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      @knitty kitty  Thank you very much for the advice. I did the exam this morning, my doctor actually suggested me to take something called "Celiac duo test" in which I first do the genetic test and if it's positive, then I'll have to do the antigen blood test. I have to attend 1 month until my results are ready, so I have some weeks to increase the amount of gluten I eat daily. It will be hard because my health is not the best right now, but I also did a blood test to cheek my nutritional deficiencies. The results will arrive on Tuesday, so I can ask my doctor what should I do to control my symptoms and blood levels during this month. For now I'm resting and paying attention to what I eat— at least I don’t look like a vampire who just woke up, like I did yesterday. I'm still scared because is the first time I've felt this sick, but this is the right moment to turn things around for the better.  I realized that if I eat gluten at lunch I cannot finish the day properly, I become severely tired and sometimes my stomach hurts a lot - let's not talk about the bloating that starts later. Do you think is it ok to eat gluten just in the morning, like some cookies and slices of bread for breakfast? 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.