Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Bad Joint Pain...


Elizabeth-Elindel

Recommended Posts

Elizabeth-Elindel Rookie

Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

have you been evaluated for tendonitis, carpal tunnel, and rheumatoid arthritis?

Ursa Major Collaborator

Elizabeth, I used to get debilitating pain in my hands and wrists, often so bad, that I couldn't touch things, was unable to hold a cup with one hand, and felt like screaming. I never get that pain any more now, unless I eat things I shouldn't.

Check out this thread, it might be helpful: Open Original Shared Link

sore joints Apprentice
Hey all!

Sometimes I get really bad joint pain in my hands and wrists. I know that I am supposed to be CF, could it beacuse I somehow got some milk (goat's or cow's?). Or is this more commenly from gluten injestion?

How am I supposed to react?? I've been taking liquid advil, but somedays it hurts sooo bad and it seems like it doesn't make a difference for a long time (as in, more than two hours or so). I tried "Tiger Balm" and ice all day today and feel a bit better tonight. I also will use a heating pad if I'm at home and can get to one. Any other ideas?

Elizabeth

Hi Elizabeth,

I'm still new to this. What is CF. I also suffer from bone and joint pain. This started following my pregnancies. It is usually in my hands, but also in my elbows and shoulders and occasionally jumps to other parts of my body. I feel like I'm going crazy b/c one minute it could be fine and the next quite painful. Are you thinking it is gluten related or milk related. It is so nice to find someone else who has the same syptoms.

Alison

ravenwoodglass Mentor

For myself this pain and the resulting arthritic joint damage came from gluten. I was diagnosed with fibro and chronic fatigue at one point also. It took a few months for the joint and muscle pain to resolve and of course the joint damage itself is permanent but my rather ugly hands are now fully functioning and pain free. The only time I have joint or muscle pain now is when I injest gluten. I wish I could tell you something that would help, I was on many of the arthritis meds, including celebrex and bextra for years before my celiac diagnosis and none of them really did much for the pain or inflammation.

BRUMI1968 Collaborator

I was getting bad pains in my wrist, forearms, hands, etc., especially as they got cold or as I used the mouse on the computer. I finally realized that four momths earlier, I'd had my arm practically pulled out of the socket by a drunken friend of mine who insisted I swing dance with her. (Why do drunk people weigh ten times more than sober people.) I finally figured out I had pinched a nerve...but for me it was only on one side. You might consider something like that if there is something lurking in the recent past that might've started it for you. Any drunken friend swing dancing?

Elizabeth-Elindel Rookie

No, I haven't been swing dancing with drunk friends. :P Not that I'm aware of at least... ;)

I know that arthritis runs in my family. Perhaps that could be the issue.

Any other ideas tho....?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



TCA Contributor

I've had bad joint pains all my life, including in my hands and wrists. I was told they were growing pains by my dr. as a child after the RA test was negative. I still had growing pains at 29. I went gluten-free for my celiac daughter whom I was nursing and after a couple months I noticed the pains had stopped. If I eat gluten accidently they come back with a vengence. I used to take typlenol all the time, do heating pads, etc. It was getting to where I was dropping things all the time. All this has improved gluten-free.

are you gluten-free? if so, how long? It took a long time for my pains to go, so be patient if you are new to the diet. If you're not new, you might want to go to a specialist.

Elizabeth-Elindel Rookie

I've been gluten-free for six months. How long did it take for your pain to go away?

TCA Contributor
I've been gluten-free for six months. How long did it take for your pain to go away?

I know it sounds crazy, but I'm not exactly sure. I never thought I had issues with gluten because I didn't have the typical symptoms. I just realized one day that I didn't need the tylenol anymore. It was probably 3-4 mos. I hope you feel better soon!

tarnalberry Community Regular

If you haven't had this checked on by a doctor, please do. Some conditions - including the ones I listed - get worse without proper treatment. It *could* be exacerbated by gluten, but it might also be something else. Gluten isn't the cause of *everything* that goes wrong with us, though I know sometimes we fall into the trap of thinking that's the case. B)

plantime Contributor

Tiffany is right: you need to have your joints looked at and evaluated by a doctor. I had problems with my left hand that turned out to be a pinched off nerve in my elbow. It took surgery to correct it. For the pain and stiffness in my joints, I use warm water, heat packs, and lots of stretching. Keeping moving helps more than anything else.

lonewolf Collaborator

Getting checked out by a rheumatologist would be a good idea to rule some things out. You might also consider that you have other food intolerances. I had horrible arthritis in my hands and most other body parts and it got better after I eliminated wheat/gluten, dairy, eggs, soy, peanuts, all meat except fish and sugar. Just going gluten-free woldn't have done it for me. A little over 10 years out, I still avoid gluten, dairy, eggs and soy and my joints feel fine.

Nancym Enthusiast

There are all kinds of autoimmune arthritises that flare up. Getting evaluated by a good rhumatoligist is a good idea. I found out I have Akylosing Spondylitis and I'm on a med to treat that. It has helped a lot.

Elizabeth-Elindel Rookie

thanks so much for all your help! :)

I shall go see a doctor soon about this stuff.

:)

Elizabeth

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,984
    • Most Online (within 30 mins)
      7,748

    MARYANN RICHARDS
    Newest Member
    MARYANN RICHARDS
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.