Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Parties -- Food Focus


bonnieo

Recommended Posts

bonnieo Rookie

My child has been to a few parties and family gatherings since we started carefully watching what he eats. It seems that everything at a party is "off limits" for him. How do you deal with this? Do you bring just enough "allowable" food for your child? Bring enough for others? Excuse your child during the meal? I don't think he feels deprived at home where we all support him by avoiding the foods he can't have. But I can't expect everyone to understand what he can/can't have. Any ideas to make this easier??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ryebaby0 Enthusiast

Actually, our families and friends asked for a "short list" of mainstream things my son can have so they are sure there's something for him. (A good host wants happy guests!) Our parents went so far as to order things from Miss Robens and Kinnikinick to keep on hand.

For potlucks, we bought some shockingly orange platters, and I bring a gluten-free food to serve on them(and utensils). Patrick knows that if it's on "his" plate, he can help himself (we tend to place this at the end of the row, or the beginning, to avoid contamination issues).

For dinners,we bring a main dish he can have, and keep it separate or have the hostess warm it up. We've NEVER had anyone be anything but completely happy to do it, but anyone who has us over knows Patrick has multiple allergies/issues, so they usually call and ask. I agree, it's a lot to insist that people know all about the gluten-free issues, and you would never want to insist. It's a great opportunity to teach, though. We bring gluten-free stuff for everyone and people are genuinely amazed at how good so much of it is -- which goes a long way towards reducing pity they feel about "poor Patrick", and that makes him feel more normal. You want your children to accept that they have to make allowances, but not eating or staying home never needs to be one of them. Birthday parties are a pain, though -- but he's 11, so there aren't so many to go to.

Boojca Apprentice

I LOVE the bright orange dish idea...I'll have to remember that for the future, when my son can understand that sort of thing. In the meantime I have to agree with Ryebaby, most people don't truly understand the whole gluten free thing, but they also do not want to make a child sick and probably would feel horrible if they did inadvertantly. So, here's what I do when we are invited somewhere. I talk to whomever the host is and tell him/her what's going on. Thankfully this time of year most of the events we're invited to are cookouts, so I tell them that we'll bring a package of hot dogs that my son can eat. So far everyone has asked if there are specific brands, and that's just what they'll buy for the whole party. I then basically run down a whole list of things he can have by name-brand. And I make it very clear why it's Soooo important that it be specifically the brand(s) I indicate. Then, if it's a potluck, I generally offer to bring the dessert and then I bring a couple of things including ice cream, which is my sons favorite. So far everyone has been really great about trying to be accomodating. And even more so when they realize it's not a bunch of weird, freaky food he can eat, but normal mainstream foods but just specific brands. One thing I've learned through being so forthcoming with this issue is that there are a LOT more people out there dealing with this than I had any idea about! It's unbelievable.

ryebaby0 Enthusiast

We are attending a large (100+) Boy Scout anniversary party, and they went so far as to ask for anyone with food allergies to please let them know -- turns out there are over 20 people with allergies that all fall into the "Big 8" so I am coordinating a whole "allergy free" grilling area! How cool is that!

gf4life Enthusiast

I have 3 kids ages 5-9, and we never hesitate to accept invitations to parties.

I always make sure I bring gluten-free cake or cupcakes, since there will always be cake they can't have. If it is my close friends party, they often try to cook foods we can eat (but I still bring something in case they get it wrong). I can't expect everyone to know all the places gluten can hide! There are just too many foods with gluten in them!

If they are my children's friends and we don't really know the family, then I always bring food for us to eat if there isn't anything acceptable. Sometimes I ask what they are serving, and offer to bring something. I don't always tell them before hand about our food intolerances, but if they ask why we are not eating their food I will tell them. Sometimes they just figure we aren't hungry. And we usually aren't the only ones not eating. There are an awful lot of people out there on weight-loss diets who avoid food at parties, too.

At potlucks I bring a main dish, a dessert and a side dish, and take our servings out before putting it on the table. This makes it so I know we have something to eat that will fill us up, and not be contaminated. Then I check to see if there is anything else acceptable to eat (usually this is a big NO, except for plain salad).

Sometimes my kids are disappointed that some (or all) of the candy in the goodies bags aren't safe, so I bring some and keep it in my purse to substitute for the bad stuff. The other kids at the party are more than happy to take the extra candy off your hands!!

My kids don't seem to feel bad, or feel left out very often. They know that they were sick before, and if they don't want to be sick anymore then they need to stay away from the foods that are bad for them. But I try very hard to make sure they are well provided for in any situation that might come up. And I make sure that the goodies we bring are at least as good as the stuff we are substituting it for, more often than not the gluten-free substitute is BETTER! :D

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,133
    • Most Online (within 30 mins)
      7,748

    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.