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Blood Test Positive, Biopsy Negative...what Gives!?

ekdumas19

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ekdumas19 Apprentice
ekdumas19
Posted

Hi all

So I have had a long journey with stomach problems begining once I started high school. I went from being diagnosed as lactose intolerant to being diagnosed as a celiac via a blood test once i finished my freshman year of college. The celiac diet worked great for me for a few years-then all of the sudden i started feeling poorly again. I decided to finally see a gastro guy and got a biopsy. He was shocked that I had been on a gluten free diet for 5 years and it was never confirmed with a biopsy. But the biopsy came out negative or as the nurse and not the doctor informed me "there was no sign of sprue". I guess my question is, because I wasnt eating any gluten at the time-could that be the reason the biopsy showed no sprue? Even though the doctor said i did not have celiac disease i continue to eat gluten free, though I continue to feel sort of off and on badly, and have now taken dairy out of my diet in hopes that will give me some relief. Has anyone had a biopsy? Were you still eating gluten at the time when you had it done?

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VydorScope Proficient
VydorScope
Posted

First of, even the ppl that still believe in the bisopy would tell you that after FIVE YEARS of gluten-free there is no way it could be postive.

Your blood work is postive, you have celiac disease. As for stilll feeling bad, what has changed recently in your diet? Go back over everything and make sure some gluten is not sneaking in some place.

PreOptMegs Explorer
PreOptMegs
Posted

My biopsy was negative as well, but my blood tests were positive. Basically, I showed so much improvement on the gluten free diet, that it was obvious what the problem was. Also, if you had been on a gluten free diet for so long and then had the biopsy.... some healing of the intestines definately could have occured. Basically, stick to the diet that makes you feel the best. good luck

Lymetoo Contributor
Lymetoo
Posted

Read this!

Open Original Shared Link

Interestingly, written by a celiac veterinarian. He says soy, casein [in milk], and others are all bad for us.

I'm new, but it sounds like you're indeed a celiac and I agree about the negative biopsy. A negative biopsy caused me to not be dxd for 30 yrs!!!! No telling how much damage has been done to my body because of it!!

Stay with your diet and do some reading here....maybe you'll find what it is that is making you ill.

Lymetoo Contributor
Lymetoo
Posted

up

mle-ii Explorer
mle-ii
Posted
Read this!

Open Original Shared Link

Interestingly, written by a celiac veterinarian. He says soy, casein [in milk], and others are all bad for us.

I'm new, but it sounds like you're indeed a celiac and I agree about the negative biopsy. A negative biopsy caused me to not be dxd for 30 yrs!!!! No telling how much damage has been done to my body because of it!!

Stay with your diet and do some reading here....maybe you'll find what it is that is making you ill.

Very interesting reading eh? :) I read the entire site and was pretty amazed.

In fact that site is the older one, here's the newer site:

Open Original Shared Link

Sorr, back on topic, ekdumas19, the gut most likely healed in that amount of time. I'm guessing that something recently changed to give you new problems.

ekdumas19 Apprentice
ekdumas19
Posted
  • Author
Very interesting reading eh? :) I read the entire site and was pretty amazed.

In fact that site is the older one, here's the newer site:

Open Original Shared Link

Sorr, back on topic, ekdumas19, the gut most likely healed in that amount of time. I'm guessing that something recently changed to give you new problems.

Maybe I do have another allergy on top of this one-and yes that site was certainly an eye-opener. I recently got off dairy and felt quite a bit better-but i would hate to lose corn and soy-as they seem to be all that's left in this world i can put into my mouth.

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oceangirl Collaborator
oceangirl
Posted
Maybe I do have another allergy on top of this one-and yes that site was certainly an eye-opener. I recently got off dairy and felt quite a bit better-but i would hate to lose corn and soy-as they seem to be all that's left in this world i can put into my mouth.

I had positive bloodwork with a negative biopsy as well. I had been gluten-free for almost 5 months pre biopsy. NOTHING had helped me with multitudinous symptoms, some which made me think my insides were dying, until I cut out ALL gluten. Still having ups and downs but much better overall. Also still finding hidden gluten! I also am at least temporarily off of dairy, corn and soy. Very best of luck to you. There's a lot they don't know about grains and gluten!

lisa

Kassie Apprentice
Kassie
Posted

my biopsy was negative too, but blood work was positive. like everyone said if you have been gluten free for five years its not goin to show that u have celiac. my doctor also said that i could have had damage and other stuff that would of made my biopsy positive but probably lower down where they couldn't get to or see

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