Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My 2 Yr Old Daughter Just Diagnosed Last Week With Celiac

Nikki2003

Recommended Posts

Nikki2003 Contributor
Nikki2003
Posted

Hi everyone, My 2 yr old daughter was just diagnosed last week with Celiac disease via biopsy. When the dr did the endoscopy she said she didn't see anything abnormal but you have to wait for the results. But it came back that she does have it. So we started her on the gluten free diet last saturday. It is tough findind stores here that have a good selection. But were dealing with it.

Anyway that's about it for now.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Hi Nikki--welcome to the board! :)

You've come to the right place! There are many moms and dads here who have lots of experience with Celiac and the gluten-free diet.

Be happy that you found out at an early age that your little girl has this. By going on the gluten-free diet now, she will avoid a lot of the complications that can happen with a delayed diagnosis.

AndreaB Contributor
AndreaB
Posted

Welcome Nikki. :D

What area of the country do you live in? There may be people in your state that can suggest stores to find gluten free food at.

happygirl Collaborator
happygirl
Posted

Hey Nikki,

Welcome to the board! This is a great resource. Most people on the board know more than most doctors about Celiac. Unfortunately, Celiac is highly un-diagnosed and often mis-diagnosed, and doctors have very little education about the disease and its effects. Luckily, this board and celiac.com provides a resource for questions and answers about foods, gluten free living, recipes, and current research!!!

Just wanted to give you some of my favorite foods/brands:

Tinkyada gluten free pasta (all kinds, including spag, penne, elbows, etc) Use this to make all our pasta dishes, including mac and cheese (with velveeta-yummy!)

Kinninnicknick (can never spell it right!) pizza crusts and bagels

Many McCormick's brand seasoning packets are gluten free---they are very good about clearly listing any wheat/gluten, barley or malt in their ingredients.

bob's red mill gluten free flour mix

Even if the ingredients are gluten free, you will need to make sure that it is free from cross contamination. For instance, all condiments that are dipped into, like butter, mayo, etc. If someone makes a sandwich and dips the knife back in, the butter/mayo is now contaminated and is not gluten free. We have separate condiments in our fridge. If you are serving a gluten free dip for veggies, and wheat crackers are dipped into it, that is now not gluten free.

Even if symptoms do not immediately (or ever!) appear, that does not mean that an auto-immune reaction is not occurring. Many Celiacs are "silent" Celiacs, meaning they do not have any outward symptoms, yet their intestines are being damaged by gluten. On the other hand, there are Celiacs that are extremely sensitive and have outward reactions to minute amounts of gluten.

Anytime you are looking for something, feel free to ask or PM me. Your daughter is lucky to be diagnosed so early and a caring family to support her with gluten free foods!

Good luck!

Laura

Jodele Apprentice
Jodele
Posted

Hi Nikki

Welcome to the board. Glad you found the site. I found out lots of great info here and such a great support to have with all the loving people here. :wub: My oldest dd has just been dx with glutton intolerent but I know she has celiac but her biopsy came back neg. We are going gh just after myself and the rest of the family gets a blood test done. Emily my oldest is going gluten-free today.

Nancym Enthusiast
Nancym
Posted

I can't help myself...

glutton intolerent
I'm usually tolerant of gluttons, glutens though is another issue! :D But my brother likes to tease me and say I'm a gluten for punishment.
Nikki2003 Contributor
Nikki2003
Posted
  • Author

Sorry I didn't introduce my self. My name is celina and my daughters is nikki. Sorry about that. We live in Massachusetts. She is seeing a pediatric GI doctor out of Children's Hospital in Boston,ma.

Thank you all for the great tips.

I was wondering how likely is it that she can get other autoimmune disorders?

A few weird things have happened in the past few weeks.

I noticed she started with a blushing like rash on her cheeks and across the bridge of her nose,I think it is a malar rash. She has never had this before maybe just on her cheeks but not her nose and only when she was playing outside alot. It first appeared when we were stuck in the house for 4 days with no sun,because of all the rain. It is not dark when we are inside but light pinkish. But when she is outside for about 5 minutes it get's darker,But even when we have been inside for a while it is still there just not as dark. Like I said this started a few weeks ago,nothing before that.

When she gets a bug bit on a joint in her body it swells uncontrollably it gets very swollen and very red,but doesn't hurt her. This has happened on a few occassions. But when she gets a bite on the middle of her arm or a non joint it is fine,It does nothing.

Sorry for all the questions but we are new at this.

Thanks

Celina

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.