Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie...and Not Sure If I Have The Dh Part...

Brit

By Brit
in Dermatitis Herpetiformis

Recommended Posts

Brit Rookie
Brit
Posted

Hey! My name is Brittany and I am new on here! Some of you may have seen my other posts on the Pre-Diagnosing section but figured i'd ask here also because more people here have it.

OK so I have this rash on my stomach like on my pant line to my belly button. It's red, itchy, painful, and kinda blistering. I have had it for about a year now and the doctors have been saying that it is an allergy to nickel. So they told me to cover up the buttons with liquid plastic and said it should go away in a month. That didn't help!

So can anyone tell me if that is DH?? And what helps get rid of this...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Karla Newbie
Karla
Posted

Sounds very possible. Are you on the gluten-free diet yet? If so, also avoid iodine in your supplements, sale, etc. I just had a lapse of memory on that one and am paying for it right now with more blisters.

Good luck.

Brit Rookie
Brit
Posted
  • Author

No I am not on a Gluten Free Diet completely. They are doing biopsy's right now to see if I have Celiac Disease but the doctor said that the rash is actually a nickel allergy. But it been getting worse and I havent been wearing any pants with nickel. I have only been wearing shorts and bathing suits and they are like soffe shorts so there is no nickel in them at all. What ever I have learned that Doctors are dumb well most of them anyways...

rinne Apprentice
rinne
Posted

Are your soaps, lotions, laundry soap, etc. all gluten free?

My understanding is that if it is DH going completely gluten free should clear it up but I am new to this too and perhaps someone who knows more will say something.

Pegster Apprentice
Pegster
Posted

I have DH and I get the blisters around my waistband. My dermatologist told me it probably wasn't dh but I know that it is. I also have a nickel allergy, but considering I don't have nickel anywhere near my waistband, I truly doubt that that is what it is. Do use a mild laundry detergent (scent free/ dye free etc.) to start with. If you are diagnosed with Celiac, definitely go on the gluten free diet. Keep in mind, some tests for Celiac (especially blood tests) are NOT very reliable. Biopsies ARE reliable. If you actually have little blisters on your skin, see if you can get a biopsy of the skin NEAR the blister by a dermatologist who knows what he/she is doing. The skin test for DH is very reliable if done correctly. My biopsy was positive for dh, although my blood work was inconclusive. If your biopsy is positive for DH then you have Celiac Disease...no more tests needed. :D

stilljoyful Newbie
stilljoyful
Posted

I had the same thing as a teen (many moons ago) and am just now putting 2 and 2 together.............

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      4

      Doctors and Celiac.com

      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one. We have held yearly conferences with continued education classes. We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott. In those many years we may have had 2 doctors attend. We sent them information, with no response. I talked to...
    2. Scott Adams
      - Scott Adams replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:
    3. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Healthy Gluten Free Foods low sugar that you found?

      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    4. trents
      - trents replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    5. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      4

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application. And yes, giving the gluten-free diet 110%. Very careful...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,251
    • Most Online (within 30 mins)
      7,748
    sherbster
    Newest Member
    sherbster
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      Healthy Gluten Free Foods low sugar that you found?

      By Scott Adams · Posted

      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By trents · Posted

      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Hi, Yes, the rash has gone. I still get the itches but there is nothing to see now, apart from a lot of discoloured areas where the rash was worst. Occasionally I get a single lump come up, a bit like hives, but no bigger than a pea and it goes after 24hrs and a steroid cream application.  And yes, giving the gluten-free diet 110%. Very careful about any cross contamination.  This is my fifth autoimmune condition so well and truly on that bandwagon. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.