Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Haven't Slept Through The Night In Years!

azmom3

By azmom3
in Related Issues & Disorders

Recommended Posts

azmom3 Contributor
azmom3
Posted

I was actually looking at this site because my baby just tested positive for celiac (blood). I stumbled upon the sleep sectioin, not realizing this was even a celiac symptom.

Over the past several years, I can count the times I slept through the night (6+ hours) on 1 hand. I wake up dozens and dozens of times each night, although I'm not sure why...was thinking my back/joint pain. It takes me hours and hours to fall asleep. My most restful time is probably from 4-6 am, although I'm still waking up, it's easier to fall back asleep. I have had back, neck and hip pain for years which has been attributed to car accidents from 20 years ago. I alternate between diahrrea and constipation, but rarely seem "normal." The fatigue is by far my worst symptom with the back pain being a close second. I can barely function every day. I feel like a zombie. I am bothered by loud stuff...tv, talking, toy noises, etc. I get migraine headaches (I think....I've never been diagnosed with them though). They come on sudenly and get so severe. Tylenol/Ibuprofen do nothing to help. The only way to get rid of them is laying down in a quiet, dark room and sometimes they go away by the next day...although I usually have a "sore" head for several more days. Ice on the back of my neck and forehead help a little during these episodes.

Are all these other things symptoms, too by any chance? Also, I was incredibly ill when I was pregnant with this baby (all my pregnancies were rough, requiring IV hydration due to hyperemesis), but this one was especially bad. I was in bed from very early on (before I even had confirmation I was pregnant) until the day I delivered and had a PICC line through the whole thing for fluids and Zofran. I had home healthcare nurses come about twice a week. Could the fact that he is celiac or maybe that I am celiac have anything to do with this? I've always had gluten in my diet and never even heard about celiac until just a few weeks ago.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


covsooze Enthusiast
covsooze
Posted

Hi there :D The sleep problem may or may not be a symptom of celiac disease, but if your child has a positive diagnosis, you should definitely get tested yourself, as it is hereditary.

Hugs

Susie x

CarlaB Enthusiast
CarlaB
Posted

I sleep much better now that I'm gluten-free. I used to get up at least once per night, sometimes two or three times. Now I sleep straight through, 8 hours!! :)

The other symptoms could be from the gluten. I had rough pregnancies and dehydrationg problems, too. I couldn't get up from the fatigue when I was pregnant, but I was not made to stay in bed.

oceangirl Collaborator
oceangirl
Posted
I sleep much better now that I'm gluten-free. I used to get up at least once per night, sometimes two or three times. Now I sleep straight through, 8 hours!! :)

The other symptoms could be from the gluten. I had rough pregnancies and dehydrationg problems, too. I couldn't get up from the fatigue when I was pregnant, but I was not made to stay in bed.

I wake up all night from back pain and stomach rumbling or distension. It is considerably better since I've gone gluten-free, though not perfect. The back pain I would describe as extremely intense. I, too, had difficult pregnancies, many issues. And I do know about intense pain -gave birth naturally to 10 pound son! I think you should continue to read this forum and also ask your doctor for a complete celiac panel, particularly if you know you have a child with it. There are great people here with so much information; it's been wonderful for me and I've never used a computer much! Good luck!

lisa

azmom3 Contributor
azmom3
Posted
  • Author
I wake up all night from back pain and stomach rumbling or distension. It is considerably better since I've gone gluten-free, though not perfect. The back pain I would describe as extremely intense. I, too, had difficult pregnancies, many issues. And I do know about intense pain -gave birth naturally to 10 pound son! I think you should continue to read this forum and also ask your doctor for a complete celiac panel, particularly if you know you have a child with it. There are great people here with so much information; it's been wonderful for me and I've never used a computer much! Good luck!

lisa

Thanks for your story, Lisa. It's therapeutic just hearing that you're not alone...sometimes I just question if these things are just normal and I just complain too much. I'm definitely getting tested as are our other children. Yikes about your 10 pound childbirth experience! :o Luckily, my births have all been quick and not too problematic, 1 natural, the other 2 with epidurals (that only worked on 1 side), but all under 4 hours, the last one was only about 20 minutes of intense pain...I count my blessings on this as I've heard horror stories. Hope you continue to feel better!

Lucy

oceangirl Collaborator
oceangirl
Posted
Thanks for your story, Lisa. It's therapeutic just hearing that you're not alone...sometimes I just question if these things are just normal and I just complain too much. I'm definitely getting tested as are our other children. Yikes about your 10 pound childbirth experience! :o Luckily, my births have all been quick and not too problematic, 1 natural, the other 2 with epidurals (that only worked on 1 side), but all under 4 hours, the last one was only about 20 minutes of intense pain...I count my blessings on this as I've heard horror stories. Hope you continue to feel better!

Lucy

Thank you, Lucy- the same thoughts to you! I just reread your posts and I have to say, between 4 and 6 AM is my best sleeping time as well!

lisa

rinne Apprentice
rinne
Posted

I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that diet is a valid diagnositic tool, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


azmom3 Contributor
azmom3
Posted
  • Author
I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that a valid diagnositic tool is diet, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

I am new to all of this myself and have only been gluten free for three months. I would guess, from someone very inexperienced, that given your symptoms there is a very good chance that it is Celiac or Gluten Intolerance. I have read that a valid diagnositic tool is diet, have you ever gone gluten free?

I confused a lot of my pain with the results of car accidents too, I have also had migraine headaches, arthritis, consitipation and difficulty sleeping.

This is a great forum with lots more knowledgeable people than me, welcome. :)

I have been glutening (I love the made-up words i've been learning here! ) myself for my entire life...never heard of celiac or gluten-free or any of that until just a couple weeks ago, so to answer your question...No, but I am planning to. I'm still trying to get a little more information...this site is incredible..I've learned so much more here so much more quickly than through any of our doctors. I am so ready to get my life back to normal though. This probably sounds strange, but after years and years of problems and not getting any help from doctors and my family thinking I'm a complainer and looking for attention with all my problems, it would be a huge weight lifted off knowing that I had celiac this whole time. Not only can I fix my problems, but I know I'm not crazy. Do you still have any of the symptoms after going gluten-free? Was it really hard to make that transition? Thanks for info!

Rice Cakes Newbie
Rice Cakes
Posted

Insomnia has been a reliable symptom for me. I conclude it is due to the discomfort of this condition, since the rare times when I've gotten rid of the discomfort have been followed quickly by sleep.

Rice Cakes Newbie
Rice Cakes
Posted
Do you still have any of the symptoms after going gluten-free?

Yes, my condition has not improved at all since diagnosis. But I haven't had much time on the diet, and I went undiagnosed for a long time.

Was it really hard to make that transition?

I've only had an easy time because I'm so used to having to change my diet, most people say it's terribly unpleasant. "No pizza?! OMG Ima gonna dieeeeeeeeeeeeeeeee", but see I just want to stop suffering so that's ok. ;)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Xravith's topic in Introduce Yourself / Share Stuff
      1

      Do Gluten Enzymes actually work?

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.
    2. FannyRD
      - FannyRD replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

      Thanks for the resource! I will check it out!
    3. Scott Adams
      - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance"...
    4. Scott Adams
      - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten ...
    5. trents
      - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748
    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • RMJ
      Do Gluten Enzymes actually work?

      By RMJ · Posted

      If you successfully digest gluten with enzyme supplements so it won’t give you side effects, your challenge won’t be worthwhile because the digested fragments of gluten also won’t stimulate antibody production or cause intestinal damage.  
    • FannyRD
      Gluten free phosphate binders for dialysis patients

      By FannyRD · Posted

      Thanks for the resource! I will check it out!
    • Scott Adams
      Gluten free phosphate binders for dialysis patients

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Symptoms

      By Scott Adams · Posted

      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Symptoms

      By trents · Posted

      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.