Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Year Old


mbg98

Recommended Posts

mbg98 Contributor

My baby had his endoscopy yesterday at the request of Dr fusano and they told me he had a lot of esophogus inflammation that I was told was totally unrelated to his Celiac. we are awaiting the biopsy results. I thought reflux/backwards burps/idegestion were all side affects of celiac that could possible do this kind of damage, Am I crazy? I know for me personally thats how I immediatly tell if there is hidden gluten in something I am eating because it burns my throat and I start getting terrible indegestion. Has anyone else seen or heard of this type of damage? The strangest part is is that they are sure he has celiac due to his off the charts bloodwork but saw no visible damage in the small intestine/stomach (we are waiting for the biopsy) but saw all this visible damage in the esophogus, something we weren't looking for!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

Is that "THE" Dr. Fusano that has written a lot on Celiac and has been a speaker at Celiac conventions?

mbg98 Contributor

Yes, "THE" Dr.fusano! He is great! Such a nice Dr., another doctor from the Celiac center a doctor Maliki (SP?) preforms the endoscope but dr. Fusano is the Doctor you see and speak with.

mbg98 Contributor

So has anyone else seen or heard of esophogus damage?

chrissy Collaborator

my baby's esophagus was getting ulcerated by the time she was 8 months old. she had really bad reflux that could not be controlled by any medication. she was refluxing almost 25% of the time. she does not have celiac.

mbg98 Contributor

Both my kids were reflux babies, I was always covered in spit-up! It got better as they got older but my youngest I have noticed always has the backwards burps and swallows really hard, I attributed it to the possibility of Celiac. I didn't consider it would be doing internal damage, or that now I have to consider there be another totally unrelated thing to treat.

chrissy Collaborator

sounds like he probably never outgrew his reflux. was he on meds as a baby? have they recommended he be on a PPI now? sylvia had a fundoplication when she was 10 months old. my twins are both on prevacid.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mbg98 Contributor

He is not on any meds at the moment, We thought the reflux was from the celiac so we were waiting to get the official diagnosis from Dr Fusano, and then he had to go for the endoscope. We were never considering it to be a seperate problem, thought it would go away when on the gluten-free diet. But of course it has taken 2 months to see Dr. fusano and then he couldn't go gluten-free until after the endoscope and now we are waiting until next week for the results.

chrissy Collaborator

i was hoping my twins' reflux would go away when they went gluten free, too, but it didn't. kassie's reflux is pretty bad. we didn't even know tianna had reflux until her scope because she didn't have any symptoms. i'm not sure how we will tell if her's has improved or not.

is he gluten free now? i guess if they feel it is not related to celiac they will be putting him on meds?

mbg98 Contributor

No he is not gluten-free yet we are waiting on the biopsy results which should be in on thursday. They also took biopsies from his esophogus so hopefully we will know exactly what it is.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,383
    • Most Online (within 30 mins)
      7,748

    runfucamg
    Newest Member
    runfucamg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mrs Wolfe
      Thank you.  I’ll be sure to look into those. 
    • Katerific
      I was diagnosed with microscopic colitis and celiac a couple of years ago.  The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off.    After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission.  Since I am also diabetic, I was started on metformin and Jardiance.  Metformin by itself helped moderately.  I added Jardiance and I was much better.  I stopped the metformin and relapsed and when I added it back, I regained remission.  I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut.  Metformin is known to favorably modulate the gut microbiome and reduce...
    • knitty kitty
      Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers.  I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6.  Together these vitamins have an analgesic effect.  I think it works better than OTC pain relievers.   I also like  "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" .   It's all three vitamins together in one pill.  Works wonderfully!
    • knitty kitty
      It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels.   The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies.   Thiamine Vitamin B1 helps the thyroid function.  I like Benfotiamine and TTFD Thiamax.  
    • Mettedkny
      @Scott Adams Xiromed is one of the generic manufacturers of Progesterone pills.
×
×
  • Create New...