Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celian Diet & Breast Lumps?

Guest gato.milagro

By Guest gato.milagro
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest gato.milagro
Guest gato.milagro
Posted

Hi everyone!

I have been on the gluten-free diet for almost two months now. I am feeling better than I have in 5 years! (I have a biopsy scheduled in 2 weeks).

Anyway, just today, I noticed a dime-sized lump in one of my breasts. Could this be a result of the change in diet? I don't drink caffeine or eat chocolate and I'm under 30. Should I run to the Gyno or wait to see if it changes after my period?

I'd like to avoid unnessary DR appointments since I've seen so many specialists for celiac disease already. Geez, I'm just so tired of DR appointments!

Thanks for the advice!

'

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


rinne Apprentice
rinne
Posted
I'd like to avoid unnessary DR appointments since I've seen so many specialists for celiac disease already. Geez, I'm just so tired of DR appointments!

I hear you. :( In the midst of my celiac crisis, (melting-lost 30 pounds), I discovered a lump in my breast also, but I am older than you and menopausal. I did have it checked out and it is not cancerous. I have the impression that fibroids may be common to Celiacs but I am new to this so don't know so much. Hopefully someone more informed will arrive. :)

Have you lost weight? Is it possible it has been there for a while and you didn't notice it? I think that was the case for me because the mass is not actually in the breast tissue, more above it and so I missed it until I saw it.

penguin Community Regular
penguin
Posted
Hi everyone!

I have been on the gluten-free diet for almost two months now. I am feeling better than I have in 5 years! (I have a biopsy scheduled in 2 weeks).

Anyway, just today, I noticed a dime-sized lump in one of my breasts. Could this be a result of the change in diet? I don't drink caffeine or eat chocolate and I'm under 30. Should I run to the Gyno or wait to see if it changes after my period?

I'd like to avoid unnessary DR appointments since I've seen so many specialists for celiac disease already. Geez, I'm just so tired of DR appointments!

Thanks for the advice!

'

Just so you know, your biopsy will probably be negative because you've been gluten-free for two months. You have to be eating gluten to have the celiac reaction to have damage in your intestine. Just a heads up.

I would at least ask about the lump, never hurts to be too careful. It may be a normal bump that you haven't noticed before. Better to be paranoid than let problems progress ;)

Guest gato.milagro
Guest gato.milagro
Posted

Thanks for responding. I decided to go ahead and make an appointment and have it checked. I haven't lost a significant amount of weight or anything (would have been nice!) I am pretty sure that I would have noticed this .... I've read on several women's health sites that this sort of thing is common and not to worry too much. I just decided that if I go to the doctor, have a medical professional tell me that I'm worried about nothing and I can forget about it completely.

About the biopsy.....I've been a bit concerned about that since I have been gluten-free for two months. I told my GI and she said that i would be best if I went back on a 'normal' diet until the test. But, when I explained how bad my symptoms had been (serious irritability, depression, crying several times a day, fatigue and severe joint pain, etc) She said that we should go ahead with the biopsy anyway. I've thought about trying to eat gluten for a few weeks but I just can't bring myself to do it! Now that I know how great it feels to not have it in my system, it's just so hard to poison myself on purpose. (Sigh!)

I do hate the idea of going through all the trouble of this biopsy for nothing. I was really hoping that past damage would be enough..... Do you think it is pointless while I'm gluten-free?

Gosh I hope not!

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi everyone!

I have been on the gluten-free diet for almost two months now. I am feeling better than I have in 5 years! (I have a biopsy scheduled in 2 weeks).

Anyway, just today, I noticed a dime-sized lump in one of my breasts. Could this be a result of the change in diet? I don't drink caffeine or eat chocolate and I'm under 30. Should I run to the Gyno or wait to see if it changes after my period?

I'd like to avoid unnessary DR appointments since I've seen so many specialists for celiac disease already. Geez, I'm just so tired of DR appointments!

Thanks for the advice!

'

If your breasts normally get swollen and are painful with your periods this could be related to that. However if that is not the case you should get an appointment. Any lump in your breasts needs to be checked out, they can do a mamogram if needed or an ultrasound to check it. Women can get breast cancer , and men too, at any age. As far as the endoscopic biopsy goes if you feel more comfortable if you do it do it. Just don't rely on the results as to whether or not you stay gluten free. Your dietary results have confirmed your need to be gluten free.

rogue Rookie
rogue
Posted

if you don't have a family history of breast cancer, you shouldn't worry. but it's always wise to get it checked out. it's either fibrocystic breast disease (really common and totally benign), a cyst (also common), or a fibroadenoma- which is a benign breast tumor. i had one of the latter when i was 18 and then another when i was 21. i had them both removed via surgery. if it's a cyst, they can generally fix it right there in the office with some anasthetic and a syringe, and the fibrocystic breast disease you just have to live with.

  • 9 years later...
Awol cast iron stomach Experienced
Awol cast iron stomach
Posted

"it's either fibrocystic breast disease (really common and totally benign), a cyst (also common), or a fibroadenoma- which is a benign breast tumor."

I know this is an old post but I had to comment. With all this info on here that fits me to a T, how have I been misdiagnosed for so long? fibroadenoma-check another symptom. Really no one could ever look at all the things I sought help for and test me? I could see missing it when I was a child but from the 1990's on you can check way too many boxes. No one must have  even looked at my past medical records records ever!!! UGH  had those since the 90's. still all those years no one thought that IBS was Celiac? Thank goodness my lay husband came along to tell me to stop eating gluten because no on else did. I went off gluten without being diagnosed is it a wonder? If I asked I'm sure they wouldn't have. No today you helped make it clear, I had plenty of signs and symptoms of Celiac , I am not going back on gluten to find out. All the info they needed then and now is in my past medical records and this website's forum. Thank you all for helping me between you all and my husband I am no longer eating gluten and no longer falling through the cracks. I wish I found you sooner.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.