Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Related

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

I will apologize up front for asking questions about something I have very little info on. My sister called last night to tell me some good news about her dh but then as a sidebar she mentioned our Mother is getting a cat (or pet) scan tomorrow. Mother ate gluten by mistake recently and had a very, very bad *D* reaction, worse than ever before. It lasted I think four days but during that episode, her stomach was really hurting and at one point her stomach was actually moving where she could see it. She was scared to death since it looked to her like something from a movie - like there was an alien in there moving around so her belly had a potrusion but only shortly, then everything went back to normal. So after this happnes, the pcp sees Mother and I don't know if she had a test, or if something showed up from her endoscopy, but the pcp says Mother has something that starts with a *V* and it's where the large intesting starts attacking the small intestine. Hence this scan is needed tomorrow.

This sounds like something out of a bad sci-fi movie but Mother isn't one to make things up so I'm sure it's true. BUT the pcp is not that bright and tells Mother that for sure it's not related to Celiac in any way. My guess is that is probably is actually. Has anyone ever had anything like this, or know anything about such a condition? Mother is out of town an a dead zone all day and so I can't speak to her until late tomorrow. I'm going to try my sister tonight to see if she has anymore info but she has two demanding kids so she didn't ask Mother any questions and wasn't very concerned about it. The only thing she was sure of is that there is a name for the condition and it starts with a *V*.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

As far as I know - I cant think of any large or small bowel disorders that start with *V.

Diverticulosis is a possiblity (*D instead of *V)

Whipples disease - but hat is more common in men.

The large intestine cant really "attack" the small intestine - but disorders of one can affect the other.

I have included info on Diverticulosis as that sounds like a condition they would want to diagnose/rule out in your mother's case.

Diverticulosis, a condition most common in men over 40, is present in up to 50 percent of people aged 60. Though generally silent until bleeding and inflammation occur, it can be marked by alternating constipation and diarrhea. The disease occurs when bulging pouches (diverticula) form at weak points in the wall of the colon. If they become inflamed, they can cause severe pain, fever, nausea, and vomiting; if small vessels at the base of the pouch become disrupted, there may be significant intestinal bleeding. When symptoms occur, they can be alleviated by a liquid or bland diet and stool softeners. After symptoms subside, a high-fiber diet is usually effective in preventing recurrence and progression of the disease. When infection is present, treatment includes a broad-spectrum antibiotic and bowel rest.
floridanative Community Regular
floridanative
Posted
  • Author

Thanks. It's not diverticulosis My sister was saying all kinds of things trying to get the name right and I was so shocked I didn't even write anything down that she was saying. Guess I'll find out as soon as I can reach my Mother, hopefully tomorrow.

rinne Apprentice
rinne
Posted

I don't know whether they will be using a contrast during the scan but I would be concerned about that. The contrast used for CT scans is iodine and up to 2% of the population have real problems with it.

floridanative Community Regular
floridanative
Posted
  • Author
I don't know whether they will be using a contrast during the scan but I would be concerned about that. The contrast used for CT scans is iodine and up to 2% of the population have real problems with it.

I don't know if this test requires iodine but she did have that before and it doesn't bother her.

tiffjake Enthusiast
tiffjake
Posted

I don't know anything useful here, just wanted to send you my thoughts and prayers (for your mom). Sounds weird, hope she is ok! Never heard of anything like that....

floridanative Community Regular
floridanative
Posted
  • Author

Thank you tiffjake - it must not be that bad since Mother didn't bother to call me back to discuss. Then again she kept the incident to herself until she had to tell my sister since she had to tell her about the test. I figure if it's important, someone will eventually call and let me know. It's like my two siblings and parents all live five miles from each other (can't think of anything worse) and I am 5 hours away. So I'm out of sight, out of mind you might say. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiffjake Enthusiast
tiffjake
Posted
Thank you tiffjake - it must not be that bad since Mother didn't bother to call me back to discuss. Then again she kept the incident to herself until she had to tell my sister since she had to tell her about the test. I figure if it's important, someone will eventually call and let me know. It's like my two siblings and parents all live five miles from each other (can't think of anything worse) and I am 5 hours away. So I'm out of sight, out of mind you might say. :ph34r:

I totally understand! When I got married, my husband was stationed at Ft Hood, 12 hours away from all friends and family! And as soon as I get here, he is gone! So, I take a lot of long road trips! LOL

floridanative Community Regular
floridanative
Posted
  • Author

Is your DH in Iraq? All our troops everywhere are in our prayers. Bless them for their service. Take care.

tiffjake Enthusiast
tiffjake
Posted
Is your DH in Iraq? All our troops everywhere are in our prayers. Bless them for their service. Take care.

Yeah, I will, thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
    5. trents
      - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.