Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Related

floridanative

Recommended Posts

floridanative Community Regular
floridanative
Posted

I will apologize up front for asking questions about something I have very little info on. My sister called last night to tell me some good news about her dh but then as a sidebar she mentioned our Mother is getting a cat (or pet) scan tomorrow. Mother ate gluten by mistake recently and had a very, very bad *D* reaction, worse than ever before. It lasted I think four days but during that episode, her stomach was really hurting and at one point her stomach was actually moving where she could see it. She was scared to death since it looked to her like something from a movie - like there was an alien in there moving around so her belly had a potrusion but only shortly, then everything went back to normal. So after this happnes, the pcp sees Mother and I don't know if she had a test, or if something showed up from her endoscopy, but the pcp says Mother has something that starts with a *V* and it's where the large intesting starts attacking the small intestine. Hence this scan is needed tomorrow.

This sounds like something out of a bad sci-fi movie but Mother isn't one to make things up so I'm sure it's true. BUT the pcp is not that bright and tells Mother that for sure it's not related to Celiac in any way. My guess is that is probably is actually. Has anyone ever had anything like this, or know anything about such a condition? Mother is out of town an a dead zone all day and so I can't speak to her until late tomorrow. I'm going to try my sister tonight to see if she has anymore info but she has two demanding kids so she didn't ask Mother any questions and wasn't very concerned about it. The only thing she was sure of is that there is a name for the condition and it starts with a *V*.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

As far as I know - I cant think of any large or small bowel disorders that start with *V.

Diverticulosis is a possiblity (*D instead of *V)

Whipples disease - but hat is more common in men.

The large intestine cant really "attack" the small intestine - but disorders of one can affect the other.

I have included info on Diverticulosis as that sounds like a condition they would want to diagnose/rule out in your mother's case.

Diverticulosis, a condition most common in men over 40, is present in up to 50 percent of people aged 60. Though generally silent until bleeding and inflammation occur, it can be marked by alternating constipation and diarrhea. The disease occurs when bulging pouches (diverticula) form at weak points in the wall of the colon. If they become inflamed, they can cause severe pain, fever, nausea, and vomiting; if small vessels at the base of the pouch become disrupted, there may be significant intestinal bleeding. When symptoms occur, they can be alleviated by a liquid or bland diet and stool softeners. After symptoms subside, a high-fiber diet is usually effective in preventing recurrence and progression of the disease. When infection is present, treatment includes a broad-spectrum antibiotic and bowel rest.
floridanative Community Regular
floridanative
Posted
  • Author

Thanks. It's not diverticulosis My sister was saying all kinds of things trying to get the name right and I was so shocked I didn't even write anything down that she was saying. Guess I'll find out as soon as I can reach my Mother, hopefully tomorrow.

rinne Apprentice
rinne
Posted

I don't know whether they will be using a contrast during the scan but I would be concerned about that. The contrast used for CT scans is iodine and up to 2% of the population have real problems with it.

floridanative Community Regular
floridanative
Posted
  • Author
I don't know whether they will be using a contrast during the scan but I would be concerned about that. The contrast used for CT scans is iodine and up to 2% of the population have real problems with it.

I don't know if this test requires iodine but she did have that before and it doesn't bother her.

tiffjake Enthusiast
tiffjake
Posted

I don't know anything useful here, just wanted to send you my thoughts and prayers (for your mom). Sounds weird, hope she is ok! Never heard of anything like that....

floridanative Community Regular
floridanative
Posted
  • Author

Thank you tiffjake - it must not be that bad since Mother didn't bother to call me back to discuss. Then again she kept the incident to herself until she had to tell my sister since she had to tell her about the test. I figure if it's important, someone will eventually call and let me know. It's like my two siblings and parents all live five miles from each other (can't think of anything worse) and I am 5 hours away. So I'm out of sight, out of mind you might say. :ph34r:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tiffjake Enthusiast
tiffjake
Posted
Thank you tiffjake - it must not be that bad since Mother didn't bother to call me back to discuss. Then again she kept the incident to herself until she had to tell my sister since she had to tell her about the test. I figure if it's important, someone will eventually call and let me know. It's like my two siblings and parents all live five miles from each other (can't think of anything worse) and I am 5 hours away. So I'm out of sight, out of mind you might say. :ph34r:

I totally understand! When I got married, my husband was stationed at Ft Hood, 12 hours away from all friends and family! And as soon as I get here, he is gone! So, I take a lot of long road trips! LOL

floridanative Community Regular
floridanative
Posted
  • Author

Is your DH in Iraq? All our troops everywhere are in our prayers. Bless them for their service. Take care.

tiffjake Enthusiast
tiffjake
Posted
Is your DH in Iraq? All our troops everywhere are in our prayers. Bless them for their service. Take care.

Yeah, I will, thanks!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.