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Chrisser

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Chrisser Explorer

Hi everyone, just joined the site but have been lurking around for a few days trying to get as much info as possible. I was just diagnosed as gluten-intolerant last Friday and immediately went gluten-free. It's been a VERY difficult first few days. I had low blood sugar problems way before I went gluten-free, and it's been more difficult the last few days regulating my blood sugar. I had never in my life eaten wheat bread until a few weeks ago because I knew it was healthier and would help with the blood sugar, but then that's when I started getting sick. I have had digestive issues since a child, had my first GI workup when I was about 7, but it was chalked up to IBS and having the "family stomach." Well now it just might be a family gluten problem.

Anyway, I've found some good information so far. It's far easier to read posts than read labels. Right now my biggest problem is just coming up with variation in my diet and looking for different flavoring. I'm already so sick of chicken. I also feel the sickest at night...after dinner I usually feel really sick to my stomach and get leg pain. I also haven't had much of an appetite, have gotten periods of hot flashes, shakes, clamminess, etc. On Friday my doctor just told me to go gluten free. He didn't inform me of this 2-week detox period that your body goes through when eliminating foods from your diet, nor did he inform me that he wants to see me again around the 2-week mark. I only found all this out when I called in this morning when I though I was gonna die from the physical symptoms.

Anyhoo, enough rambling. I look forward to learning more from all of you. I probably won't post very much since I'm still in the beginning learning stages (except from questions, of course).

Oh, what do you all eat for breakfast?? I don't like eggs, and I've always been a breakfast food breakfast person. I need a good balance of protein and fiber to help keep my blood sugar balanced out throughout the rest of the day.

Thanks! B)


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CarlaB Enthusiast

Welcome!

For breakfast you can eat things not traditionally meant for breakfast if you don't like eggs. Like chicken (or another meat that you're not sick of) and veggies, leftovers from the night before, etc. Or you can eat something like a Lara Bar or Nectar Bar with some nut butter on it.

I'm sure you've figured out by now that white bread is also made from wheat flour, it just doesn't have the whole grain in it. Or maybe you meant that you didn't eat bread at all and added it to your diet because of it's health benefits ...

You'll learn a lot here. You'll feel better as time goes on. The first couple weeks are tough.

ravenwoodglass Mentor
Hi everyone, just joined the site but have been lurking around for a few days trying to get as much info as possible. I was just diagnosed as gluten-intolerant last Friday and immediately went gluten-free. It's been a VERY difficult first few days. I had low blood sugar problems way before I went gluten-free, and it's been more difficult the last few days regulating my blood sugar. I had never in my life eaten wheat bread until a few weeks ago because I knew it was healthier and would help with the blood sugar, but then that's when I started getting sick. I have had digestive issues since a child, had my first GI workup when I was about 7, but it was chalked up to IBS and having the "family stomach." Well now it just might be a family gluten problem.

Anyway, I've found some good information so far. It's far easier to read posts than read labels. Right now my biggest problem is just coming up with variation in my diet and looking for different flavoring. I'm already so sick of chicken. I also feel the sickest at night...after dinner I usually feel really sick to my stomach and get leg pain. I also haven't had much of an appetite, have gotten periods of hot flashes, shakes, clamminess, etc. On Friday my doctor just told me to go gluten free. He didn't inform me of this 2-week detox period that your body goes through when eliminating foods from your diet, nor did he inform me that he wants to see me again around the 2-week mark. I only found all this out when I called in this morning when I though I was gonna die from the physical symptoms.

Anyhoo, enough rambling. I look forward to learning more from all of you. I probably won't post very much since I'm still in the beginning learning stages (except from questions, of course).

Oh, what do you all eat for breakfast?? I don't like eggs, and I've always been a breakfast food breakfast person. I need a good balance of protein and fiber to help keep my blood sugar balanced out throughout the rest of the day.

Thanks! B)

I eat either Yoplait yogurt on top of Ener-G Granola or when in a hurry will have Carnation Instant Breakfast (the powder not the ready made and none of the Malt flavor) and put a handful of a couple different kinds of nuts and some raisens in a bag and run. I have diabetes from not being diagosed until 15 years after the worst symptoms began and haven't had too hard of a time keeping it under control. I had hypoglycemia for years before that. The hardest part for me is remembering to eat. <_< Ask any questions you need to and welcome to the boards. Make sure everything you use is gluten free even if you don't eat it. The worst will be over soon for you I hope.

maggee Newbie

Welcome, I'm new here as well and have gotten more info here about celiac / gluten free foods than anywhere else.

For breakfast we like to focus on fresh fruit (you may have to be careful about amt with blood sugar issues). If you are ok with nuts spread some nut butter on a piece of fruit or rice cakes / gluten-free crakers. In the colder months we like millet or quinoa (mix with fresh or frozen fruit and add a little maple syrup or agave necter).

I hope this helps.

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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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