Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going To Orlando, Fl!

Guhlia

By Guhlia
in Traveling with Celiac Disease

Recommended Posts

Guhlia Rising Star
Guhlia
Posted

Okay, so my friend calls me on Sunday and tells me that she and her boyfriend are going to be in Orlando, FL this weekend. They begged me to come join them, offered up their spare bed in the hotel room and everything. I'm very scared of flying, and have certainly never flown alone. I bought my plane tickets this morning while my two-year-old was throwing a tantrum. Now I'm scared out of my mind. My husband has never been left alone with our daughter and I've only ever travelled gluten free ONCE before so I'm certainly not an expert. Someone please calm me down!!! I'm freaking. (did I mention that I'm a little bit of a flake?)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beaglemania Rookie
beaglemania
Posted

Calm down. I know there's a couple of people who have gone to Orlando before and I know somebody lives in Orlando too, I believe.

Guhlia Rising Star
Guhlia
Posted
  • Author

Don't get me wrong, I LOVE Orlando. It's my favorite place to travel. I'm just freaking out cuz it's my first time travelling alone.

samking72 Rookie
samking72
Posted

YEAHHH! I live in Orlando!! There's plenty of places to eat down here, and a great health food store in Winter Park! I drive 40 minutes to go there. As far as flying, you'll be fine. I fly Orlando-NY almost every 2 months to visit family. These guys know what they're doing ;) I don't want to freak you out by saying this but it usually works... if anything is going to go wrong during a flight it will happen within the first minute and a half. After that- smooth sailing!! Well, the nice weather is waiting for you! Have a great flight and i hope you enjoy your stay here!

Guhlia Rising Star
Guhlia
Posted
  • Author

samking -- do you know which places can do the safest gluten free meals? I'm thinking that their hotel room will probably be in the i-drive area and they'll likely want to do touristy food (as long as there's a bar on site, i'm sure they'll make do). any clue if bahama breeze can accomodate a gluten free meal? that was my favorite restaurant down there pre-diagnosis. We usually go down once a year. We won't have a rental car or anything, so we'll probably have to stay relatively close to that area. Any help would be GREATLY appreciated.

Also, do they search your person when entering theme parks or is it just your bags? Like, could I get away with stashing a Lara bar in my pocket?

samking72 Rookie
samking72
Posted
samking -- do you know which places can do the safest gluten free meals? I'm thinking that their hotel room will probably be in the i-drive area and they'll likely want to do touristy food (as long as there's a bar on site, i'm sure they'll make do). any clue if bahama breeze can accomodate a gluten free meal? that was my favorite restaurant down there pre-diagnosis. We usually go down once a year. We won't have a rental car or anything, so we'll probably have to stay relatively close to that area. Any help would be GREATLY appreciated.

Also, do they search your person when entering theme parks or is it just your bags? Like, could I get away with stashing a Lara bar in my pocket?

Disney will search your bags and I have brought food in the parks before. I think it's just Animal Kingdom that you can't bring outside food in. You may want to put it in your pocket just in case because they have heightend security a bit over the past few months.

Outback, Carrabba's Italian Grill, Bucca De Beppo, Don Pablo's is a good bet when it comes to eating out. I've never had a problem at any of them and they all have decent gluten-free menus. Not sure about Bahama Breeze. You might want to call them and check. The Bee Line Diner on I-drive doesn't have a menu but they are very accomodating there. Great staff/manager/chef. Shula's steakhouse is great too. Again, no menu but great meals there too. That's on Epcot Resorts Blvd. Have a great time!!

Guhlia Rising Star
Guhlia
Posted
  • Author

Thanks so much for all the great info! Any place very close to Orlando (we have no car) that carries gluten free beer? I'm dying to try some, no one carries it in PA.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dionnek Enthusiast
dionnek
Posted

Do a search on Disney World here and you'll find great information on food in the parks. I think the website www.allearsnet.com is a great one for celiac info. I've heard wonderful things about Disney and how they have gluten-free food in the parks (and I think they will let you bring in some of your own - but not a cooler - for medical reasons - check on this thoough).

Samking, what is the name of the health food store you go to in Winter Park? My sister lives in Lake Mary (near WP), and I visit a lot, so I think I'll have her check this place out and stock up on some food for me :)

samking72 Rookie
samking72
Posted

The food store is Whole Foods Market an Aloma Ave / Fairbanks near Rollins College.

I'm not sure about the beer, i don't drink (mostly because of age) I'll keep an eye out though for ya :)

floridanative Community Regular
floridanative
Posted

If there is any way possible for you to get your group to Seasons 52 for dinner, I highly recommend it. The gluten free fare is listed only on the servers pda's but it's worth that little hassle. You have to choose a couple of different thing that would appear gluten free and the server looks it up in the pda for you. They have the best wine selection in Orlando. I can't wait until they open here next month! Have a great trip and no matter what the airline says, take plenty of your own food for both flights so you don't starve.

Guhlia Rising Star
Guhlia
Posted
  • Author

I have no clue if they'd be receptive to going anywhere outside of the touristy area. Where is Seasons 52 located? I leave early Friday morning. Luckily the flight is only 2.5 hours, so I probably won't need much in the way of snacks. I have a bag packed full though just in case.

Guhlia Rising Star
Guhlia
Posted
  • Author

Well, I made it regardless of the recent events. :-) Boy was I nervous though. We ended up going to MGM Studios (which from my recollection was pretty lame) and it was absolutely amazing. I guess they added new stuff since I was there a couple years ago because I had a really good time. I had excellent meals both at Planet Hollywood in Downtown Disney and at the 50's PrimeTime Cafe. The chef at the Prime Time Cafe actually came out and spoke to me. He went over the entire menu with me. It was wonderful, and not too expensive. All in all, we had an absolute blast. I'm so glad I went. Thanks again to everyone for the ideas and the support.

samking72 Rookie
samking72
Posted

OOO I'm so glad you had a great time!! At least the weather held out for you! We could use the rain though, those brush fires are starting up again. MGM has gotten better. Thank god for that! I used to hate that place too! Did you catch the Stunt Show? And the Rockin' Roller Coaster? I love Aerosmith and rollercoasters so you can't go wrong there! I'm going to their concert in September in NY and can't wait. I've seen them 5 times now but there is not such thing as too much Steven Tyler! Lol! Well, hope you come back soon!

  • 1 year later...
njbeachbum Explorer
njbeachbum
Posted

so i am in orlando for a conference for work from sunday thru thursday.... was excited to see that so many places on the disney properties are so accommodating for gluten free diners....

anyway, i went to shula's steak house at the WDW Dolphin hotel.........wow, great meal and they were very understanding of the gluten free deal. the server even came out after talking to the chef and said that they had some gluten free bread in the freezer that they could bring out for me before the meal! great first meal in orlando :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Is this celiac?

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 1...
    2. knitty kitty
      - knitty kitty replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      @Trish G, I like dates, they have lots if fiber as well. But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small...
    3. knitty kitty
      - knitty kitty replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      ttg iga high (646 mg/dl) other results are normal

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines. Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured...
    4. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      7

      Fiber Supplement

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement. Thanks again
    5. Wheatwacked
      - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      36

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      If you were wondering why milk protein bothers you with Celiac Disease. Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,345
    • Most Online (within 30 mins)
      7,748
    GFBB95
    Newest Member
    GFBB95
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      Hello again. Thank you for the responses to date. I have had several follow-ups and wanted to share what I’ve learned. About a month after my initial blood test and going gluten free, my TtG went from 8.1 to 1.8. I have learned that my copper is low and my B6 is high. My other vitamins and nutrients are more or less in range. After I glutened myself on 10/24, I have been strict about being gluten free - so about a month. I have been eating dairy free and low FODMAP as well because it’s what my stomach allows. Baked fish, potatoes, rice, etc. Whole foods and limited Whole foods. I have continued to lose weight but it has slowed down, but a total of about 15 pounds since I went gluten free. Along with stomach pain, my symptoms included nausea, body and joint pain, a burning sensation throughout my body and heart rate spikes. I still have them but I have them less now. These are the symptoms that led to my doctor appointments and subsequent diagnosis. I also did the DNA screening and was positive. So, at this point, the answer is yes, I have celiac. I have two questions for this group. Any ideas on why my enteropathy was so severe (marsh 3B) and my TtG was so minimal? Is that common? Or are there other things to consider with that combo? And this recovery, still having pain and other symptoms a month later (7 weeks gluten free and 4 weeks after the glutening) normal? I’m going to continue down this path of bland foods and trying to heal but would love to understand the reasons for the long journey. I read so much about people who stop eating gluten and feel amazing. I wish that was my experience but it certainly hasn’t been. Thank you again!
    • knitty kitty
      Fiber Supplement

      By knitty kitty · Posted

      @Trish G,  I like dates, they have lots if fiber as well.  But what I found helped most was taking Thiamine (in the form Benfotiamine which helps promote intestinal healing), Pyridoxine B 6, Riboflavin B 2, and magnesium, and Omega Three fats. The absorption of nutrients is affected by Celiac disease which damages the intestinal lining of the small intestines where our nutrients are absorbed.  If you have constipation, where your body is rather pushing your food away and not interacting with it, the nutrients in the food are not being released and absorbed.  You can develop deficiencies in all the vitamins and minerals necessary for the body to function properly.   The B vitamins cannot be stored for long, so they must be replenished daily.  Thiamine B 1 stores can run out in as little as three days.  Constipation (or diarrhea or alternating) is one of the first symptoms of thiamine deficiency.  Thiamine needs magnesium, Pyridoxine B 6, and Riboflavin B 2 to make the intestinal tract function.  Thiamine and Niacin make digestive enzymes.  Thiamine provides the energy for nerve impulses to carry messages to the brain and back about digestion.  Thiamine provides the energy for the muscle contractions which move your food through the digestive tract. High calorie meals containing lots of starches and sugars can deplete thiamine stores quickly because more thiamine is required to turn them into energy.   Are you taking any vitamin and mineral supplements?  Correction of malnutrition is very important in Celiac disease.  Thiamine, the other B vitamins and magnesium will help with constipation better than adding more fiber.  What did your nutritionist recommend you take, besides just the fiber? The association between dietary vitamin B1 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11100033/ Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Association between dietary vitamin B6 intake and constipation: a population-based study https://pmc.ncbi.nlm.nih.gov/articles/PMC11584952/
    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

      By knitty kitty · Posted

      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, I'm not a big fan of prunes but did add them back after stopping the Benefiber. Hoping for the best while I wait to hear back from Nutritionist for a different fiber supplement.  Thanks again
    • Wheatwacked
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Wheatwacked · Posted

      If you were wondering why milk protein bothers you with Celiac Disease.  Commercial dairies supplement the cow feed with wheat, which becomes incorporated in the milk protein. Milk omega 6 to omega 3 ratio: Commercial Dairies: 5:1 Organic Milk: 3:1 Grass fed milk: 1:1
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.