Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ingesting Gluten On A Non-gluten Diet


Niteyx13

Recommended Posts

Niteyx13 Explorer

I have been on the diet for a month now, but was taking communion and messed up a few times the first couple of weeks. I missed a weekend of church, so I actually went 2 weeks with no gluten at all. Then this weekend (on saturday night) I had communion again (afterwards found out they keep gluten free wafers for celiacs in a back room...yay!!!). I didn't have diareha (sp?) and sunday I seemed fine, but monday I was drug-down tired again, almost threw-up, and just felt sick. I still have not felt very good today, and I have been constipated again since friday, even though I have been taking my fiber. Does anyone think this was a reaction? I am not completely well yet, but I can tell that I have been getting better (at least until yesterday). I have been very extremely careful about what I eat the past few weeks (except at communion). Just looking for input, because I thought people usually have diareha when they have a reaction. I have felt just horrible! Thanks!

Deanna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jhmom

Hi Deanna:

If you are supposed to be adhering to a gluten-free and you are ingesting gluten then I would say that is why you are feeling sick or not feeling well. Some people can have a reaction within a couple of hours and some can have it up to 10-12 hours (maybe even days) later.

I have been very extremely careful about what I eat the past few weeks (except at communion)

If you have Celiac or gluten sensitivity, even the smallest amount of gluten can damage your small intestines and can cause you to be sick and have symptoms. I would suggest getting the gluten-free wafers during your next communion. I am going to be faced with that myself soon and my church is very small and there are no gluten-free wafers available to me, so instead of punishing myself on purpose I will not be taking of the bread only the wine (I think God will understand).

flagbabyds Collaborator

Fatigue is like the #1 sympttom of celiac disease. So that is your reacction and defenitley get the gluten-free wafers next time. Don't chance it. If your body is rejecting gluten then don't eat it, even at communion(just so you know I am not religious so I don't know much about communion?

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748

    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.