Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pain In My Arm Again After Getting Glutened. Does This Sound Like A Neurological Symptom?

Sarah8793

Recommended Posts

Sarah8793 Enthusiast
Sarah8793
Posted

The first time it happened I couldn't tell if it was related to gluten. But now after being glutened and having it happen again I believe it is related. My whole right arm, starting under my armpit and going down into my forearm aches. I don't have any numbness per say. If you have ever put your arm in one of those blood pressure machines in stores and had it begin to ache while waiting for the cuff to loosen, that is kind of what it feels like. It doesn't feel like it is falling asleep, it is more like an arthritic feeling along the entire arm, not in just one joint. It isn't sharp pain. And I have periods of the day when it isn't bothering me. Taking Ibuprofen doesn't seem to make a difference. It kind of freaks me out. About a month ago, I saw a neurologist about a heavy sensation I was getting in my legs and arms (comes and goes along with my period :huh: ) and mentioned the arm thing to him. He didn't blink twice and had nothing to say. After examining me, he said he couldn't find anything wrong and told me to come back in 2 months for a follow-up.

Any ideas?

Sarah

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


clover Rookie
clover
Posted

I've only been gluten-free for 3 months and in that time I have had pain similar to what you are describing. It is pretty much the first time I've ever felt that kind of pain & I have read somewhere that arthritic-like pain is a symptom of gluten in the system. Even if it is just another symptom, it's no fun & worries me too. I have spoken to a few people who recommend that I see an acupuncturist. Maybe you could give that a shot too. Acupunture is supposed to do worlds of good for those who have intestinal disorders/intolerances. Good Luck!

plantime Contributor
plantime
Posted

I had that feeling before. It was caused by immobile vertebrae in my neck. The rest of my cervical spine was trying to compensate, and it was causing pain in my right arm. Stretches worked wonders for it!

As for the heaviness in your legs, I had that when I was taking Lipitor. It seems statin drugs cause a problem with the nerves. I quit the Lipitor, and the heaviness went away. It never showed up on any tests, so the docs don't believe that it was the Lipitor. I know better than that, though.

Sarah8793 Enthusiast
Sarah8793
Posted
  • Author
I had that feeling before. It was caused by immobile vertebrae in my neck. The rest of my cervical spine was trying to compensate, and it was causing pain in my right arm. Stretches worked wonders for it!

As for the heaviness in your legs, I had that when I was taking Lipitor. It seems statin drugs cause a problem with the nerves. I quit the Lipitor, and the heaviness went away. It never showed up on any tests, so the docs don't believe that it was the Lipitor. I know better than that, though.

Dessa,

Did you do stretches for your neck or your arm? I'll try anything to get rid of this. Thanks!

Sarah

I have spoken to a few people who recommend that I see an acupuncturist. Maybe you could give that a shot too. Acupunture is supposed to do worlds of good for those who have intestinal disorders/intolerances. Good Luck!

Thanks for the idea. I haven't tried acupuncture before but have often wondered about it.

jerseyangel Proficient
jerseyangel
Posted

When I first went gluten-free, I would often wake up with that kind of ache in my wrists and hands. It gradually stopped happening.

Sarah8793 Enthusiast
Sarah8793
Posted
  • Author
When I first went gluten-free, I would often wake up with that kind of ache in my wrists and hands. It gradually stopped happening.

Interesting. I hope that it is just a matter of time like yours. I have only been gluten free since May, and I have already glutened myself about twice a month since then. :rolleyes:

Thanks,

Sarah

frustratedneicey Apprentice
frustratedneicey
Posted

I have Multiple Sclerosis, so those kind of sensations are the norm for me. But, my neurologist told me that Celiac disease and the reaction to gluten actually causes similiar symptoms, which in my case, makes them twice as bad. But I just wanted to let you know straight from my neurologist, they are normal occurences and I hope your neurologist studies up before you go back again!!! Good luck!!

Denise

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Sarah8793 Enthusiast
Sarah8793
Posted
  • Author
I have Multiple Sclerosis, so those kind of sensations are the norm for me. But, my neurologist told me that Celiac disease and the reaction to gluten actually causes similiar symptoms, which in my case, makes them twice as bad. But I just wanted to let you know straight from my neurologist, they are normal occurences and I hope your neurologist studies up before you go back again!!! Good luck!!

Denise

What were your first symptoms of MS?

frustratedneicey Apprentice
frustratedneicey
Posted
What were your first symptoms of MS?

Well, where do I begin. About 5 years ago, I had bad bouts of really debilitating fatique and weakness. There were times that I would end up in bed thinking I had the flu, and just so weak I couldn't function. A doctor told me I had "fibromyalgia" and left it at that. This happened on and off for about 3 years until it totally affected my work and my life. I came down with a really bad case of the "flu" but just dealt with it for about 2 months straight. After 2 months of feeling like this I woke up one morning and was paralyzed on one side. I thought I had a stroke so I was taken to the emergency room. The doctors there referred me to another doctor who sent me for an MRI. The MRI showed that I had 5 lesions on in the white matter of my brain. These battles with paralysis and numbness and tingling have continued on since. I suffer severe fatique daily, and have double and blurred vision. I have to take meds for leg spasms so severe that my muscles are in constant spasm and they feel like touching "wood" if you feel them. Bladder issues are also a problem. I tend to walk like I am drunk at times and have slurred speech. Summer is killer, as the heat exaccerbates all of these symptoms I have mentioned.

Anyway, (sorry to go on and on) Those are the major symptoms that have occured. It has taken 2 years since I was first seen for my MRI for them to definitively diagnose MS. They had to rule out things such as Lupus, etc, before giving the ultimate diagnosis.

ONe thing I can tell you for sure, after I am glutened, I get so weak that I cannot function.

Probably more info than you wanted, but there it is........

Hope I could shed some light.

Denise

Sarah8793 Enthusiast
Sarah8793
Posted
  • Author
Well, where do I begin. About 5 years ago, I had bad bouts of really debilitating fatique and weakness. There were times that I would end up in bed thinking I had the flu, and just so weak I couldn't function. A doctor told me I had "fibromyalgia" and left it at that. This happened on and off for about 3 years until it totally affected my work and my life. I came down with a really bad case of the "flu" but just dealt with it for about 2 months straight. After 2 months of feeling like this I woke up one morning and was paralyzed on one side. I thought I had a stroke so I was taken to the emergency room. The doctors there referred me to another doctor who sent me for an MRI. The MRI showed that I had 5 lesions on in the white matter of my brain. These battles with paralysis and numbness and tingling have continued on since. I suffer severe fatique daily, and have double and blurred vision. I have to take meds for leg spasms so severe that my muscles are in constant spasm and they feel like touching "wood" if you feel them. Bladder issues are also a problem. I tend to walk like I am drunk at times and have slurred speech. Summer is killer, as the heat exaccerbates all of these symptoms I have mentioned.

Anyway, (sorry to go on and on) Those are the major symptoms that have occured. It has taken 2 years since I was first seen for my MRI for them to definitively diagnose MS. They had to rule out things such as Lupus, etc, before giving the ultimate diagnosis.

ONe thing I can tell you for sure, after I am glutened, I get so weak that I cannot function.

Probably more info than you wanted, but there it is........

Hope I could shed some light.

Denise

Denise,

Thank you for sharing this. I know since I went gluten free I have had some strange symptoms and I sometimes have wondered if it could be MS. I'm going back to my neurologist tomorrow. I don't think he is too knowlegable about celiac disease but I will discuss it with him again. Hugs, and take care.

Sarah

stilljoyful Newbie
stilljoyful
Posted
Well, where do I begin. About 5 years ago, I had bad bouts of really debilitating fatique and weakness. There were times that I would end up in bed thinking I had the flu, and just so weak I couldn't function. A doctor told me I had "fibromyalgia" and left it at that. This happened on and off for about 3 years until it totally affected my work and my life. I came down with a really bad case of the "flu" but just dealt with it for about 2 months straight. After 2 months of feeling like this I woke up one morning and was paralyzed on one side. I thought I had a stroke so I was taken to the emergency room. The doctors there referred me to another doctor who sent me for an MRI. The MRI showed that I had 5 lesions on in the white matter of my brain. These battles with paralysis and numbness and tingling have continued on since. I suffer severe fatique daily, and have double and blurred vision. I have to take meds for leg spasms so severe that my muscles are in constant spasm and they feel like touching "wood" if you feel them. Bladder issues are also a problem. I tend to walk like I am drunk at times and have slurred speech. Summer is killer, as the heat exaccerbates all of these symptoms I have mentioned.

Anyway, (sorry to go on and on) Those are the major symptoms that have occured. It has taken 2 years since I was first seen for my MRI for them to definitively diagnose MS. They had to rule out things such as Lupus, etc, before giving the ultimate diagnosis.

ONe thing I can tell you for sure, after I am glutened, I get so weak that I cannot function.

Probably more info than you wanted, but there it is........

Hope I could shed some light.

Denise

Denise,

I have been living with ALS for 9 years so I know somewhat your 'pain'. I have been wheelchair bound for 6 years and do nothing for myself.

Since goin gluten free (3 days) I am stronger and less stiff.

Good luck to you!

Cheryl

bluejeangirl Contributor
bluejeangirl
Posted
Well, where do I begin. About 5 years ago, I had bad bouts of really debilitating fatique and weakness. There were times that I would end up in bed thinking I had the flu, and just so weak I couldn't function. A doctor told me I had "fibromyalgia" and left it at that. This happened on and off for about 3 years until it totally affected my work and my life. I came down with a really bad case of the "flu" but just dealt with it for about 2 months straight. After 2 months of feeling like this I woke up one morning and was paralyzed on one side. I thought I had a stroke so I was taken to the emergency room. The doctors there referred me to another doctor who sent me for an MRI. The MRI showed that I had 5 lesions on in the white matter of my brain. These battles with paralysis and numbness and tingling have continued on since. I suffer severe fatique daily, and have double and blurred vision. I have to take meds for leg spasms so severe that my muscles are in constant spasm and they feel like touching "wood" if you feel them. Bladder issues are also a problem. I tend to walk like I am drunk at times and have slurred speech. Summer is killer, as the heat exaccerbates all of these symptoms I have mentioned.

Anyway, (sorry to go on and on) Those are the major symptoms that have occured. It has taken 2 years since I was first seen for my MRI for them to definitively diagnose MS. They had to rule out things such as Lupus, etc, before giving the ultimate diagnosis.

ONe thing I can tell you for sure, after I am glutened, I get so weak that I cannot function.

Probably more info than you wanted, but there it is........

Hope I could shed some light.

Denise

Thanks Denise for taking the time to share how all the symptoms begain with you. I get the blurred vision, and the feeling of being tired all the time also but what you said about your legs scared me because just about 2 weeks ago I told my husband the very same thing,....my legs hurt at night and keep me from sleeping and when I feel them they're hard like I have a wooden leg. Its weird because it happens about twice a month or so. I don't know I'll have to look into this more I think. I'm at least aware of it now.

gail

frustratedneicey Apprentice
frustratedneicey
Posted
Denise,

I have been living with ALS for 9 years so I know somewhat your 'pain'. I have been wheelchair bound for 6 years and do nothing for myself.

Since goin gluten free (3 days) I am stronger and less stiff.

Good luck to you!

Cheryl

I am sorry for your illness. I have always worked in the medical field, so I know somewhat about ALS. I hope that the gluten free diet eases some of your pain. If you are feeling a difference after 3 days, I know that a few weeks will make a great difference. Good luck and God Bless.

Denise

Gail, making an appointment with a Neurologist will help to ease your mind or they will examine you more thoroughly. I was lucky that my neurologist seemed to know more about Celiac than my gastroenterologist. Weird, huh? I think he sees alot of it because it is my understanding that alot of autoimmune diseases go hand in hand with Celiac. Good luck to you. I hope everything turns out well.

Denise

plantime Contributor
plantime
Posted
Dessa,

Did you do stretches for your neck or your arm? I'll try anything to get rid of this. Thanks!

Sarah

Thanks for the idea. I haven't tried acupuncture before but have often wondered about it.

I do the stretches for my neck and back shoulder. I tip my head to the left with my left hand on the top of my head, and reach my right hand down to the floor. I hold it for 20 seconds, then switch to the other side. Another stretch I do is to lie on my back on my bed, tuck my chin to my chest, and press the back of my head into the bed for 20 seconds. I feel my neck pop as it shifts back into place, and the pain in my arm and shoulder just disappears.

lorka150 Collaborator
lorka150
Posted

do you have liver issues? it could be that.

about MS, if you really think you have it, and the docs say no, get second, third and so on opinions. trust me... it is often missed and under diagnosed. three people in my immediate family have MS (the longest being my mother at about 34 years, now), and frankly, we're 'pros'!

Sarah8793 Enthusiast
Sarah8793
Posted
  • Author

Hi,

No, my liver is fine. Just saw my neurologist again, and he doesn't believe that it is MS or anything neurological. After reading frustratedneicey's symptoms I don't think it is ms, but of course I still worry. My neurologist wants me to treat it with heating pads and maybe physical therapy first, and if this doesn't help he will do an MRI. However right now he really doesn't think an MRI is going to show anything. Soooo, I'm just trying to be patient and stay positive.

  • 2 weeks later...
nanafur Newbie
nanafur
Posted

Hi,

I am new but wanted to respond to this older message because I have the same pain when not gluten-free. I found a wonderful book called The Triggerpoint Therapy Workbook. The massage that works best for me on this is to sit in a chair leaning forward with my arm loosly haning down... if you can press up allong the inside of the thick muscle at the back of the armpit and massage with long strokes it will help a lot. (The muscle that causes it is under the outside edge of the shoulderblade) It hurts like hell to rub there but eases the pain in the long run. The book is great but there are also massage therapist who specialize in triggerpoints. I have to work on myself because I am too ticklish.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Borky
      - Borky posted a topic in Dermatitis Herpetiformis
      0

      Gluten food test strips

      I just recently saw something on this. Has anyone tried test strips? Which brand is better? Not sure how they really work and if they really do work. Thank you, Nancy (aka Borky)
    2. Wheatwacked
      - Wheatwacked replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      Gluten Issues and Vitamin D

      And more:
    3. Wheatwacked
      - Wheatwacked replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive. The endoscopy and biopsy is looking for damage to your small intestine. I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy...
    4. Scott Adams
      0

      Gluten-Free Diet Burnout: Why It Happens and How to Get Your Motivation Back (+Video)

    5. Midwesteaglesfan
      - Midwesteaglesfan posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Going for upper endoscopy today

      At 41 years old I have been fighting fatigue and joint pain for a couple months. My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right. Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist. He was extremely thorough and sat with me and m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,269
    • Most Online (within 30 mins)
      7,748
    powergs03
    Newest Member
    powergs03
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Borky
      Gluten food test strips

      By Borky · Posted

      I just recently saw something on this.  Has anyone tried test strips?  Which brand is better?  Not sure how they really work and if they really do work.  Thank you, Nancy (aka Borky)
    • Wheatwacked
      Gluten Issues and Vitamin D

      By Wheatwacked · Posted

      And more:
    • Wheatwacked
      Going for upper endoscopy today

      By Wheatwacked · Posted

      Hello @Midwesteaglesfan and welcome. A result greater than 10 U/mL is considered positive. Some labs use 15 as the cutoff, but 34 is in the positive.  The endoscopy and biopsy is looking for damage to your small intestine.  I don't don't think 5 days is enough to repair the damage. This comment is effectly your answer, regardless of your biopsy results.  The endoscopy has been the Gold Standard diagnostic, and most healthcare providers won't diagnose celiac disease until your intestinal lining Marsh Score reaches stage 3. You don't really want to wait for the damage to get worse, especially since only five days mostly gluten free gave you relief.  Yes, migranes is one of the 200 symptoms that may be caused by Celiac Disease. Malabsorption Syndrome is often comorbid with celiac disease.  The western diet is deficient in many vitamins and minerals.  That's why gluten processed foods are fortified.  Gluten free processed foods are not; Vitamin D deficiency is a virtual given.  40 to 60% of the industrial population is deficient in vitamin D, Damage to the intestinal lining from celiac disease can decrease the number of vitamin D receptors.  So now you get no vitamin D from the sun (skin cancer scare) the major source of vitamin D, plus absorbtion from food is poor because of intestinal damage.   Low iodine intake is getting more of a concern because the major source of iodine used to be bread (dough conditioner with iodine was stopped in the US in the 1970s), dairy (lactose intolerance from eating quick pickles with vinegar instead of fermented pickles which supply lactase excreting lactobacillus to improve Lactose intolerance. Commercial Dairies have wheat, barley and rye added to the cow feed. Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein causing the problem.  And people use less iodized salt.  In the US intake of iodine dropped 50% from 1970 to 1984. Switch to Grass fed only milk and consider supplementing Liquid Iodine drops to your diet.  The omega 6 to omega 3 ratio of commercial milk is 5:1; Organic milk is 3:1 and grass fed milk is 1:1. The typical western diet is around 14:1, optimum for humans is 1:1.  Wheat flour is 22:1 omega 6:3.  Choose vegetables lower in omega 6, it is inflammatory. Eat fermented foods and switch to Grass fed only milk.  Some say they are sensitive to milk protein, but it is the gluten added to supplement the cow feed to increase milk production that becomes part of the milk protein.   
    • Midwesteaglesfan
      Going for upper endoscopy today

      By Midwesteaglesfan · Posted

      At 41 years old I have been fighting fatigue and joint pain for a couple months.  My family doctor kept saying nothing was wrong but I was insistent that I just didn’t feel right.  Finally after running several blood labs, one came back showing inflammation in my body and I was referred to a rheumatologist.  He was extremely thorough and sat with me and my family for a good hour asking questions and listening. He ordered X-rays of all my joints and more bloodwork.  He suspected some sort of reactive inflammatory arthritis.  My TTG (Tissue Transglutaminase) came back at 34. he told me to try going gluten free and out me on Salfasalzin to help the join inflammation.  Over the next couple days going gluten free and doing a lot of research and talking to people with celiacs,  we found that I should have an upper endoscopy for insurance purposes in the future.  I reached back out to my rheumatologist and expressed this concern and he got back to me stating I was correct and resume regular gluten diet and stop the medication until after that scope.     They were able to schedule me in for 2 days later.  I had been gluten free, or as close to it as I could be for about 5 days.  I know I ate some brats with it but wanted to use them up.  My symptoms had gotten slightly better in those 5 days.  I felt less fatigue and joint pain was slightly better(it had gotten really bad) so for these last 2 days I’ve gone crazy with wheat bread, pasta and such.  I’m hoping those 5 days didn’t screw this endoscopy up.  I can’t imagine after a life of gluten, my intestines healed in 5 days and after eating gluten again for these couple days,  my stomach hurts, joint pain is coming back up so I know the inflammation is there.   Hinesight after this diagnosis, I have had chronic migraines since my late teens.  Has that been a lingering symptom of celiacs all these years?  I’ve never really had the stomach issues, for me it came in heavy these last couple months as the fatigue, just always feeling tired and exhausted.  And the joint pain.     So getting in the car for the 2 hour drive to the hospital for this scope now.     Wish me luck!
    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.