Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ulceratice Colitis Or Not?

francelajoie

Recommended Posts

francelajoie Explorer
francelajoie
Posted

I've been having loose bowel movements accompanied by blood and mucus. Most of the time it's only blood and mucus...no stools. I go to the bathroom, and as soon as I get out of there, I feel like i have to go again. I don't know what is wrong with me. I haven't been glutened or anything cause i've had this over 2 months now. I don't feel sick at all. I just have gas and very rare bloating.

Anyone ever hear of Dr. Dahlman's protocol? I've actually ordered everything to do the first months treatment. (Not cheap...cost me 200$). I really hope it starts working. If not, I guess I'll have to go see a doctor again. <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LKelly8 Rookie
LKelly8
Posted

Wow, that sounds like ulcerative colitis to me. My sister has UC, after years of on-and-off prednisone treatment she's finally in remission with a drug called 6-MP.

Open Original Shared Link

I went to Dr. Dahlman's website and read a few pages. To be blunt I think he's a quack :wacko:. Sorry!

Open Original Shared Link

Celiac is the only autoimmune disease that can be cured/treated through diet. I have rheumatoid arthritis and for years I got caught up in the diet-cure scams. A waste of money and worst of all a waste of precious, precious time. If you have UC get it treated by a board certified gastroenterologist now, before the disease progresses to a point of no return. (ie: surgery - or worse)

:unsure: I apologize if I offended. I feel very strongly because of my own experiences. YMMV.

francelajoie Explorer
francelajoie
Posted
  • Author

I actually decided to call my family doctor and get referred to a gastroentorologist at the Celiac center in Boston. Hopefully they'll find something...not too serious I hope. I'm scared they'll make me do the gluten challenge cause I wasn't really diagnosed with Celiac (no colonoscopy)...just gluten intolorence by blood test.

I'll let you know when I find out.

Nancym Enthusiast
Nancym
Posted

Dr. Fine says NSAIDS are terrible for colitis, are you taking any?

justjane Rookie
justjane
Posted
Dr. Fine says NSAIDS are terrible for colitis, are you taking any?

Sorry to take over your post but I have a question! Nancy, can you tell me what NSAIDS are? I have mild active colitis and chronic active colitis and this would help me sort it out and feel better. I was diagnosed with colitis and basically left in the dark because they were testing for Celiac all that time, which came out negative both in the blood tests and the biopsy. I have done much better on a gluten-free diet, however, so wondering if I still might have it or gluten intolerance. I was 16 when I was tested....

Thanks,

justjane

francelajoie Explorer
francelajoie
Posted
  • Author
Sorry to take over your post but I have a question! Nancy, can you tell me what NSAIDS are? I have mild active colitis and chronic active colitis and this would help me sort it out and feel better. I was diagnosed with colitis and basically left in the dark because they were testing for Celiac all that time, which came out negative both in the blood tests and the biopsy. I have done much better on a gluten-free diet, however, so wondering if I still might have it or gluten intolerance. I was 16 when I was tested....

Thanks,

justjane

Same here...what are NSAIDS?

I am only taking the following supplements which are Dr.Dahlman's protocol:

Lactoviden, Bifoviden, Metagest, Intesol, Azeo-Pangen, and Ultrainflamx. I had to stop taking all this cause I have been waking up in the middle of the night with pain in what I think is the higher part of my large intestine or just to the right of my stomach. Not sure what it is. Thats why i decided to go to my doctor.

penguin Community Regular
penguin
Posted

NSAIDS are things like asprin, motrin, advil, pepto-bismol, excedrin, and other antinflammatories.

If you look on the bottle, there's usually a warning about ulcers and abdominal bleeding

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jesscarmel Enthusiast
jesscarmel
Posted
I actually decided to call my family doctor and get referred to a gastroentorologist at the Celiac center in Boston. Hopefully they'll find something...not too serious I hope. I'm scared they'll make me do the gluten challenge cause I wasn't really diagnosed with Celiac (no colonoscopy)...just gluten intolorence by blood test.

I'll let you know when I find out.

Hi

I go to the celiac center in boston. who are you seeing? i think you will like it there!

good luck and i hope you feel better!

Jess

Nancym Enthusiast
Nancym
Posted

They always warn about ulcers but it can also affect the upper GI tract, like the small intestine. Yeah thing like Advil, Aleve, aspirin, ibuprofen. I guess Tylenol isn't an NSAID, but it has its own set of problems (liver damage).

IrishKelly Contributor
IrishKelly
Posted

I was told by a regular gastro Dr. i might have UC...but then i went to a holistic Dr. and he went over a list of symptons (such as pale floating stools, bloody stools, leg cramps, headaches, etc...) and low and behold i'm glutent intolerant. Once i eliminated the gluten (even though all blood tests were negative) i'm sooo much better. He said the colitis would get even better/completely go away over the course of six months...as long as i stay gluten free.

lindalee Enthusiast
lindalee
Posted

Just got an email that a specialist from Mayo is going to be in new mexico speaking of UC and crones if any one is interested I'll look it up.

Nancym Enthusiast
Nancym
Posted

Dr. Fine got into the gluten sensitivity by way of researching UC and microscopic colitis. He said that basically microscopic colitis looks very similar like villious atrophy only in the large instestines. He thinks there is a big connection between gluten and colitis.

mle-ii Explorer
mle-ii
Posted
Dr. Fine got into the gluten sensitivity by way of researching UC and microscopic colitis. He said that basically microscopic colitis looks very similar like villious atrophy only in the large instestines. He thinks there is a big connection between gluten and colitis.

Having both Microscopic Colitis (Lymphocytic) and gluten sensitivity (and the gene for celiac) I agree 100% with Dr Fine's connection.

francelajoie Explorer
francelajoie
Posted
  • Author
Hi

I go to the celiac center in boston. who are you seeing? i think you will like it there!

good luck and i hope you feel better!

Jess

Hi Jess,

I got an appointment with Dr. Cheney. I've hear really good things about her. She must be really good, I can only see her in February. I hope it all works out good. My appointment is Valentine's day. I think we're gonna stay in Boston and have a nice dinner.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.