Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Tests Negative


tboss

Recommended Posts

tboss Newbie

Well, my blood tests came back and are negative. They included TTG Antibody, IGA;

IGA Serum; and Gliadin Antibody (IGA).

Did they miss any other blood tests I should have had?

I'm thinking about doing the Enterolab. I'm just wondering why, if this test is so accurate and good,

doesn't the medical community use it? Does anyone know why it is not used by most doctors? Is there any research (besides Dr. Fine's who has commercial interest in this) that substantiates his claims?

So confusing. I thought about just doing the Gluten Free diet, but that wouldn't tell me if I had celiac. It seems to me that a gluten free diet would also "cure" most IBS since IBS reacts badly to most of the things that also contain gluten.

Any thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Chelle15 Apprentice
So confusing. I thought about just doing the Gluten Free diet, but that wouldn't tell me if I had celiac. It seems to me that a gluten free diet would also "cure" most IBS since IBS reacts badly to most of the things that also contain gluten.

Any thoughts?

I have never heard that IBS reacts badly to anything containing gluten. Where did you research that?

par18 Apprentice
I have never heard that IBS reacts badly to anything containing gluten. Where did you research that?

Are you saying you don't think gluten causes IBS type symptoms?

Tom

Chelle15 Apprentice
Are you saying you don't think gluten causes IBS type symptoms?

Tom

No, I am not saying that at all. I just have never heard that it makes them worse or that not eating them makes the symptoms better. In fact I have never heard that there is any effect on it. I was just curious. I am by no means saying that is wrong.

Ursa Major Collaborator

Really, there are thousands of celiacs out there who have beein misdiagnosed with IBS, which really is a junk diagnosis. Because, if you think about it, if you have an irritable bowel, SOMETHING must be irritating it! Many doctors will give that 'diagnosis' when they are clueless, but won't admit it, or else are too lazy to keep looking for the cause.

Plus, of course, pharmaceutical companies have a vested interest in doctors prescribing their pills, which will cover up symptoms, but never cure. A diet change won't make them any money. Since drug companies are controlling medical schools to a great extent, doctors aren't taught about diet cures, they are only taught which drugs to use.

It seriously has been found by many, many studies that ALL bowel diseases, including Crohn's, IBS (assuming here that it really is a disease) and others I can't think of right now, will be helped by a gluten-free diet. In fact, I have read a lot of research that shows that most autoimmune diseases will be helped to a degree by a gluten-free diet.

par18 Apprentice
No, I am not saying that at all. I just have never heard that it makes them worse or that not eating them makes the symptoms better. In fact I have never heard that there is any effect on it. I was just curious. I am by no means saying that is wrong.

I can tell you firsthand that not eating gluten can make IBS symptoms go away. I had chronic diarrhea for years before positive Dx for Celiac Disease. As a matter of fact my condition was diagnosed as IBS shortly before testing positive for Celiac. This is why Celiac Disease is misdiagnosed for so long as it is similiar to IBS. If you were the type of person who would respond in a positive way to a gluten free diet it would be one of the easiest places to start. It took me less than 2 days on the diet to see a positive response. As a matter of fact I have not had "any" of the IBS symptoms since going gluten-free last year.

Tom

tboss Newbie

So, does anyone know why the medical establishment isn't using the same type

of fecal test as Enterolab?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



par18 Apprentice
So, does anyone know why the medical establishment isn't using the same type

of fecal test as Enterolab?

I do recall having stool tests during the IBS phase of my Dx. Not sure what tests were requested from the lab but at that time Celiac Disease was not brought up. My thinking is that the doctor was looking for some type of infection or virus as the problem with my irritated bowel. I had no problem with that. Last year was the first time I had ever sought medical treatment for my IBS type symptoms. I had no idea that my chronic diarrhea was that abnormal. Trust me it was definitely "abnormal". My physical condition dictated that something must really be wrong. Now knowing what I know I would specifically request things like a Celiac gene test to see if I were a candidate.

I had my first blood test for Celiac a couple of weeks ago. Because I have been gluten free for over a year with no symptoms I would expect to see negative anti-body levels (which I had) but the presence of at least one of the genes (DQ2) which I also had.

I have no idea what the stool test at Entrolab does. I would think if I had one of the genes and Celiac type symptoms it would be enough to at least try the diet.

The funny thing about Celiac Disease is that if a person ate very little gluten simply because they did not like the food in which it is contained, they might never develop symptoms or they may experience the coming and going of symptoms with no apparent explanation. This would make the diagnosis almost impossible. The way the presence of the trigger of this disease was discovered was during the grain shortages of WWII. According to Dr. Fasano in a meeting I attended the mortality rate was 40% before WWII, 0% during WWII, and 40% after WWII. As you can see there was not a lot of science involved in the discovery. Also according to Dr. Fasano the fact that the trigger for Celiac Disease is known make it possible that one day a cure may be found.

Tom

Chelle15 Apprentice

Oh, I do get the idea, that if Celiac disease is causing your "IBS" that not eating gluten would help. I have come to start believing IBS is not a diagnosis, but a symptom of something else. So if my biopsy comes back negative I may still try a gluten free diet, but couldn't something else be causing the symptoms if I do not have a gluten sensitivity?

chrissy Collaborator

our ped gi said the gluten free diet is a healthy diet and that they use it for other conditions, such as irritable bowel.

par18 Apprentice
Oh, I do get the idea, that if Celiac disease is causing your "IBS" that not eating gluten would help. I have come to start believing IBS is not a diagnosis, but a symptom of something else. So if my biopsy comes back negative I may still try a gluten free diet, but couldn't something else be causing the symptoms if I do not have a gluten sensitivity?

Sure it could. I just think going gluten-free is easier and it doesn't require medicine or anyone's permission to do so. If it works fine. I won't hurt you if it does not work. That's the beauty of the diet. It either helps or it doesn't. The main thing is to give it an honest effort and see what happens. If you do decide to do the diet and then get the test the results may not show up. As a matter of fact if you do respond to the diet I would expect the anit-body tests to be low or negative.

I think for most people the hardest part is not going on the diet. I think the hardest part is staying on the diet if it works and convincing yourself that this will become part of the rest of your life.

IBS may be a catch-all phrase for a lot of unexplained issues. That doesn't mean the doctor is not trying just that there is not a definitive explanation. I'm sure a lot of trial and error goes on just like diagnosing anything else. How many times has a doctor given someone a prescription and said take this and see what happens.

Tom

penguin Community Regular

IBS = I Be Stumped

Syndrome usually means that you have symptoms that go into the same barrel as other people's symptoms that are similar, but they don't know why either of you have them.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Francis M's topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    2. - Francis M posted a topic in Gluten-Free Restaurants
      1

      The Happy Tart review

    3. - trents replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen

    4. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,848
    • Most Online (within 30 mins)
      7,748

    Francis M
    Newest Member
    Francis M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Was the card itself lost or just the record or both?
    • Francis M
      We were flabergasted that the owner would not acknowledge a $50 e-gift card I purchased for my celiac wife. My wife tried to open it in the store and was informed there had been a system change and they could not find the record. No worries, she was told, just talk to management. Six months later, and numerous absurd back and forths, and the owner literally informs me there have been "bad actors", so she can't make good on this lost gift card. In other words, she accused me of lying and committing fraud... over $50! Please be careful with your orders and purchases here.
    • trents
      Yes, some people do get withdrawal from gluten but gluten withdrawal doesn't usually cause gut pain. Maybe more like general body aches and discomfort. We have articles on gluten withdrawal on this forum. You might do a search for them. Applesauce is very acidic and some brands have added vitamin C (ascorbic acid) which makes them more acidic. This can damage the stomach lining if you eat it too often. Especially if your stomach lining is already compromised. Ibuprofen inhibits the body's ability to rebuild the stomach's protective mucosal lining. That's why it can cause peptic ulcers. As strange as it may sound, low level irritation/inflammation stimulates the body to rebuild the stomach lining. There are two steps in this rebuilding process known as COX 1 and COX 2. Ibuprofen represses both COX 1 and COX 2. Celecoxcib, a prescription anti inflammatory, inhibits only COX 2, making it less likely to cause damage to the gut lining.
    • Colleen H
      Do you or anyone know alot about ibuprofen  I wasn't sure if I was eating too much apple sauce.   Something is making my pain so much worse  I'm referring to the intense pins and needles in my feet and lower legs.  Jaw actually has tardive dystonia and muscle spasms throughout my back Almost like an opposite effect that a pain reliever would do. I'm fairly new to this. Whatever is going on seems to be worsening  Do people get a withdrawal effect from gluten?  It's extremely painful 😖  I'll post that question or research on the site  Thank you everyone for responding 
    • Colleen H
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.