Need Some Help

[mike2184]

Been gluten-free for 8 weeks now, no diagnosis. First 6 weeks I was getting glutened an average of about once a week - have not been glutened in 2 weeks. As a precursor, I have had normal bloodwork except for a lower than average potassium level - and normal MRI's. I am currently taking 2000 mcg B12 per day, a vitamin C tablet a day, and a multi a day - all gluten free.

Positives and Issues that have resolved

Only get D after glutening - I have tested dairy, soy, you name it. If I don't get glutened - no D.

No more colds - Pre gluten-free, I was getting a cold about every 3 weeks, haven't had one since May.

No more sinus problems - have had this my entire life until going gluten-free.

No brain fog since June - even when I have been glutened. My brain fog was more like dizziness, so I'm wondering if it was more neurological.

Sensory neuropathy is gone. I had a mild sensory neuropathy to temperature in my fingers and toes. This is now back to normal.

Joint weakness has improved. My feet and legs used to hurt so bad at the end of a workday that I would have to lie down. Now, it is pretty much back to normal.

Negatives and Issues that have not resolved

I still get a slight numbness in my hands and feet from time to time. It has definitely improved - if it was a level 5 on a scale of 1-10 before, it is now about a 2. It is never more than one hand or one foot at a time. I also have noticed a sporadic numbness in my back and left side of my face as well, which is also very slight and only occurs when there is no tingling in feet/hands. The back/face tingling never occurred until I went gluten-free.

I sometimes have a slight stomach ache after eating. I can't pin it to a specific food/foods, and it always goes away within an hour or so.

Any suggestions or advice would be welcome. I have noticed so many improvements that I am confident that I am on the right track. I don't know if the symptoms I still have are part of a natural healing process or if there is something else I should be doing.

Thanks.

[queenofhearts]

I still get a slight numbness in my hands and feet from time to time. It has definitely improved - if it was a level 5 on a scale of 1-10 before, it is now about a 2. It is never more than one hand or one foot at a time. I also have noticed a sporadic numbness in my back and left side of my face as well, which is also very slight and only occurs when there is no tingling in feet/hands. The back/face tingling never occurred until I went gluten-free.

Actually you are ahead of me! I've been gluten-free ~2 months & just beginning to feel better. One thing that helped me, & sounds like it might help you as well, is magnesium. See this link:

Open Original Shared Link

Hope it helps!

Leah

for some reason I can't get it to go to the post I wanted, so you'll have to scroll down to SandraB's post

[mike2184]

Actually you are ahead of me! I've been gluten-free ~2 months & just beginning to feel better. One thing that helped me, & sounds like it might help you as well, is magnesium. See this link:

Open Original Shared Link

Hope it helps!

Leah

for some reason I can't get it to go to the post I wanted, so you'll have to scroll down to SandraB's post

Leah,

Thank you for the link. I am off to the drugstore to get a Magnesium supplement (gluten-free of course). I too have had a chocolate craving since being gluten-free. I will be interested to see if I notice a difference.

Glad you are feeling better.

Mike

[ravenwoodglass]

Leah,

Thank you for the link. I am off to the drugstore to get a Magnesium supplement (gluten-free of course). I too have had a chocolate craving since being gluten-free. I will be interested to see if I notice a difference.

Glad you are feeling better.

Mike

Pick up some heavy duty B vitamins also. Sublingual B12 may be of particular help with the neuro issues. Make sure your vitamins and other meds are gluten-free and also all toiletries, lotions, girlfreinds lipstick et al.

[elye]

Glad you're on the right track! Sounds like you're proactive and really know what you're doing, so I'm sure you know the answer to this: do you have blood sugar issues? I know that one symptom I get when my BS is unexplicably high is a slight tingling on one side of my face. Tingling lips are very often present with HYPOglycemia, as well, but you would definitely know if low blood sugars were happening due to all the sudden, more alarming symptoms. Just a thought....

[daffadilly]

Mike, I used to get tingling of the face (slightly) & the ends of my fingers (very aggravating) from black pepper. Check out the night shade foods

re tummy ache when after eating something. My guess is that you are either getting cross contamination or you are eating something that you have an intolerance or allergy to.

Sounds a lot to me like you have some other food intolerance going on. There are a lot of us that cannot eat potatoes, besides the common dairy, soy, & corn thing.

If you are eating any gluten free baked goods, I encourage you to try not to eat them on a daily basis, most all that stuff is cross contaminated (my opinion from my own experiences). For newbies I recommend Lundberg Rice chips (use like a cracker) & Mission Brand White Corn Tortillas.

re cross contamination: if you are cooking at home if the kitchen is not completely gluten-free the worse offending thing is the flour canister, when flour is used it poofs up in the air & gets in your lungs & your tummy via breathing thru your mouth, & the dust gets on everything. Did you clean out your kitchen? Potential cross contaminates are: cutting board, wooden spoons, teflon pans, iron skillets, old toasters, potholders, rolling pins, crumbs in the silverware drawer, crumbs in the butcher knife rack, old cookie & cake pans - toss or use parchment paper, etc

congrats on doing so well with the diet

[rinne]

If you are eating any gluten free baked goods, I encourage you to try not to eat them on a daily basis, most all that stuff is cross contaminated (my opinion from my own experiences). For newbies I recommend Lundberg Rice chips (use like a cracker) & Mission Brand White Corn Tortillas.

I also feel like I have been glutened when I eat the store bought gluten free treats and thanks for the top about the Mission Brand tortillas.