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Anybody Heard Of Zonulin?

Guest AutumnE

By Guest AutumnE
in Post Diagnosis, Recovery & Treatment of Celiac Disease

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happygirl Collaborator
happygirl
Posted

I spoke with a clinical trials coordinator at one of the sites for this drug. It is a requirement to have a biopsy. They are still recruiting.

She was absolutely wonderful, and I told her thank you for all the work they are doing.

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buffettbride Enthusiast
buffettbride
Posted

Speaking as the mom of a Celiac, I wouldn't let my daughter go all gung-ho back on gluten, but as protection from CC reactions, most definitely.

I'm in that "wait 10 years bunch" as well, and by that time she'll be 18 and can make her own choice. Of course, I'd like to see her stay off gluten and only use it for the CC times.

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    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
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      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
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      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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