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Anybody Heard Of Zonulin?


Guest AutumnE

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happygirl Collaborator

I spoke with a clinical trials coordinator at one of the sites for this drug. It is a requirement to have a biopsy. They are still recruiting.

She was absolutely wonderful, and I told her thank you for all the work they are doing.


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buffettbride Enthusiast

Speaking as the mom of a Celiac, I wouldn't let my daughter go all gung-ho back on gluten, but as protection from CC reactions, most definitely.

I'm in that "wait 10 years bunch" as well, and by that time she'll be 18 and can make her own choice. Of course, I'd like to see her stay off gluten and only use it for the CC times.

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    • trents
      @N00dnutt, been there, done that! Cheers!
    • N00dnutt
      @trents You're right, thanks for pointing that out. On @somethinglikeolivia comment regarding potential ingesting or cross contamination; there is a product marketed in Australia as "GluteGuard" which is designed for just this scenario. It is not a defence for and is not recommended for use by full-blown celiac disease but, it helps those with GI. I'll be reading slower in future so I don't skim over the subject matter. Cheers.
    • N00dnutt
      @Knitty_Kitty Noted with appreciation.
    • trents
      @N00dnutt, as OP explained earlier, she had a gastroscopy done earlier while she had been eating plenty of gluten for months. It was negative despite strong positive antibody scores.
    • N00dnutt
      The best way to determine positively is to undergo a Gastroscope. Your Endocrinologist will assess the condition of your "Villi". These tenticles are what extract the nutrient from what we ingest. The Protein in Gluten is like acid to these tenticles.
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