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Does This Sound Like He May Have An Issue With Gluten?

kimber

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kimber Enthusiast
kimber
Posted

Hi

I could be very wrong, but I don't believe Zach, my 3yr old, has celiac

I think he may have a gluten intolerance/sensitivity....his weight is not an issue (though he is small)

He also has problems with constipation and reflux

I had him on a gluten-free diet for a while and he improved, LOTS more energy/happier etc

He has some gluten the past few days (bread/waffles) and he seems angry/aggressive/lethargic and when I asked him what was wrong he said he felt SAD

He had b/w by his GI and the RAST and all came back clear....

I am debating trying enterolab but if the he responds well to the diet...I don't know what other info I need

Also, has anyone had enterolab came back negative, but they had celiac of a gluten sensitivity

Could my Dr order the same tests and have them covered by the insurance company??

Thanks for any insight

Kim

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Nic Collaborator
Nic
Posted

I believe you are saying you do not think your son has Celiac. Right? I got confused. I will just say that my son has Celiac. Tested positive by blood and biopsy (not RAST test, that is different, need a Celiac panel). He has never been under weight, as a matter of fact has always been over the 90th percentile in both weight and height. He had severe constipation, dark circles under eyes, toddler belly, and no energy. He has been gluten free for a year and has gained 10 pounds, dark circles are gone, and he is happy. I never relized he wasn't before. But when he is accidentally glutened, watch out :ph34r: , he becomes difficult and literally just bounces off the wall. It is like hyperactivity hits with a vengence.

Nicole

AndreaB Contributor
AndreaB
Posted

Gluten intolerance and celiac are pretty much the same. Depends on the genes he has. If you haven't had gene testing done with him, enterolab also does that, if you decide to have him tested. I did my whole family minus the infant and 3 out of 4 of us came back gluten intolerant. Enterolab cannot diagnos celiac. I'm not sure of the difference between the two. I had originally thought is was varying degrees of how sick one was, with gluten intolerant being at one end and celiac being at the other. But, there are people without the main celiac genes that are very sick.

It seems to me that your son should be gluten free, whether or not you decide to go with enterolab.

kimber Enthusiast
kimber
Posted
  • Author

Thank-you both for your responses

OMG...Nicole your ds sounds exactly like mine!!

Very dark circles, skinny arms/legs and bigger belly

I am trying gluten-free now and hope it goes well

I am just nervous since he is also dairy/soy free and a light eater....his options are limited

Thanks again

Kim

Gluten intolerance and celiac are pretty much the same. Depends on the genes he has. If you haven't had gene testing done with him, enterolab also does that, if you decide to have him tested. I did my whole family minus the infant and 3 out of 4 of us came back gluten intolerant. Enterolab cannot diagnos celiac. I'm not sure of the difference between the two. I had originally thought is was varying degrees of how sick one was, with gluten intolerant being at one end and celiac being at the other. But, there are people without the main celiac genes that are very sick.

It seems to me that your son should be gluten free, whether or not you decide to go with enterolab.

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