Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Lab Results


mythreesuns

Recommended Posts

mythreesuns Contributor

This is what the report says:

No ova, cysts, or parasites seen

No Giardia antigen detected

Fats, Neutral, normal (<60)

Fats, Total, normal (<100)

Glucose, Serum, 120 (high)

IgA, 1 (0-4 = negative)

IgG, 2 (0-9 = negative)

tTG, 1 (0-3 = negative)

Um....why didn't he tell me my glucose was high when I have a family history of diabetes!?!??!?!?!?!

What does the rest of it mean? I left a lot out, either the things I knew or the things that were solidly within range.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



floridanative Community Regular

Well is seems at least your labs don't indicate Celiac but this could easily be a false negative which I think happens in 20% of cases. First off, you have to really have been sick for a while for the antibodies to show up on the blood tests. Some people have positive biopsy for Celiac and never have the same for blood work. Also, I've been told in more then one reputable book about Celiac that there are less than 10 labs (10 yes that's right) in the entire US that even knows how to accurately read the panel for Celiac. That explains a lot I think. Also, my sister tested 1 on the tTg as well and you could not pay me to believe she doesn't have Celiac. My Mother who was sick for 18 years (that we know of) only tested 12 and I was a 10.

To date there is really not an excellent way to test for Celiac except the gluten-free diet. I had a postive biopsy BUT the GI took only two samples. It was a blessing that both came back showing damage or else I'd be eating gluten to this day. If that works, that's all the proof you need. The new test that uses urine, blood and saliva is still not avialable here in the US to my knowledge. Think it's still in testing stage but all reports so far indicate that it will catch a lot more Celiac early on than ever before.

My glucose, serum came in above 90 which is in the normal range. When I called to ask how to reduce it the doctor said to do nothing since it's normal (by 2 whole points)...........I know I need a new pcp but I can't stomach worrying about yet another new doc right now. I'm just watching my sugar intake for now and then retesting in Jan. All this is to say that until you're sick enough for an rx, doctors don't tell you much and in the US most of them certainly know nothing of preventative medicine practices.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,202
    • Most Online (within 30 mins)
      7,748

    Nana Susie
    Newest Member
    Nana Susie
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.