Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

School Gave My Child A Sack Lunch!


Jodele

Recommended Posts

Jodele Apprentice

To day was a bad day.(bad week in fact) This morning I was so tired that I did not get up in time to fix 2 lunches for my 2 older DDs , so I did it after I got back from taken them to school and took the lunches to school when I picked up my youngest from prek. The office staff said they would get it to them asap. so I went home. When I picked up Melinda and Emily from school Melinda's teacher asked if Melinda brought a lunch today and I said that I droped it off at the office I was running late today for school. I saw that melinda had her lunch bag with her so I thought she got it at lunch but she opened it and nothing had been touch and I ask her if she had lunch at all and she said they gave her a sack lunch and then the office gave her lunch bag. She ate the sack lunch not her lunch I made her. When I got home I called the school and was SO MAD!!! I said to them that I made sure everyone in the school know that my kids have this problem. This better not happen again. I am a stay at home mom and you can call me any time. Sorry for my ranting I know she will be ok but she might be sick tomorrow. Day befor yesterday she was throwing up all day and had the Ds. it was like water and she had 2 acidents with it. She had no fever. I think she got glutened the day before from playdought so no more playdough. I just got my test back from enterolab and it was positive iga 21. So I know that my younger kids have it to. We have been gluten free for 2 weeks now and I am feeling better everyday. It took my oldest dd to find out what was wrong with me. She is my angel.

Thanks for letting me rant.

Jodele


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

YIKES!!! I would be very upset! I hope that it doesn't happen again.

RiceGuy Collaborator

Glad you are doing better so quickly. That didn't happen for me at all. Anyway three weeks is hardly enough time for the gluten-free thing to sink in at the school or anyplace else. You'll need to really push them I'd guess. Plus your kids will learn never to eat what they aren't certain is safe. They will get it - especially when accidents like that lunch bring about illness, while the gluten-free diet gives them a sense of well-being that they can appreciate.

But do keep up the fight with the school, and don't trust them to deliver the lunch to your child. Demand to take it to them personally. It's not a concentration camp! That will also hit home with your child how important it is.

Tori's Dad Apprentice

Our daughters first day of kindergarten is tomorrow so we will be on pins and needles for sure. She was diagnosed in May so we have had all summer to train her to not accept any food that we didn't provide for her.

dad:"Now what do you say if someone offers you food, even if it looks yummy?"

Tori:"I can't eat that because it might make me sick"

dad:"Good girl"

Don't worry, your daughter will quickly get used to not accepting food from others. Hope she gets to feeling better soon!

2Boys4Me Enthusiast
Our daughters first day of kindergarten is tomorrow so we will be on pins and needles for sure. She was diagnosed in May so we have had all summer to train her to not accept any food that we didn't provide for her.

dad:"Now what do you say if someone offers you food, even if it looks yummy?"

Tori:"I can't eat that because it might make me sick"

dad:"Good girl"

Don't worry, your daughter will quickly get used to not accepting food from others. Hope she gets to feeling better soon!

Here's how it went with my son (entering grade two Sept. 5) all through grade one if someone offered him something.

Him: Is it gluten-free?

Them: :blink:

Him: No thanks.

Then he'd go to the teacher and get his treat bag from her desk and have one of his treats. She kept a bag in her desk with Envirokidz bars, Aero bars, Fruit to Go and Rockets.

Smunkeemom Enthusiast

From one of the ladies in my support group

Having lots of experience with schools and special needs, I would suggest typing up a letter for your school principal and director of special services requesting a 504 plan. This is a great plan for kids with special health needs, it is basically a written contract saying what issues your son has and how the school will meet those needs. If they break the contract, it's a civil rights infraction. But remember, you must request in writing, and they must respond in writing. If they say that they don't need it, ask for that in writing as well. Trust me.

she says it keeps them in line a LOT better because they know that if they screw up you have it in writing that they know what to do, it means they were negligent with your kid, and that's not something the school wants everyone and their dog to be talking about, so you might look into getting this done.

oh, and I would be very mad. I would be the mom at the school office "don't you know that your food damages my kid?! how hard is it NOT to posion my kid?"

zip2play Apprentice

If this happens again, my suggestion is you walk the lunches to your children's classes. Hand it to them yourself. Then there is no question. KWIM?

It stinks, but those kind of things can happpen!

How old are your girls? I ask b/c my 4 year old knows what foods I can and cannot have.

Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jodele Apprentice

I have 3 girls they are 4, 5, and 8 years old. Melinda is my middle girl and she is the one i worrie about food. She love food and wants to eat all the time. We just started gluten-free when school started. She was upset that she ate the sack lunch and I talked to her that she could not do that again. It so hard teaching your kid to leason to teachers and do what they say and now I have to tell melinda not to leason to them now. hope I dont confuse her any. Emily my oldest is very good at asking if it is gluten-free and the funny thing is my youngest is very good to. Katie she was over at a friends house last saturday and was hungry so my friend went though her stock of food to find her something she could eat and found popcorn. Katie ask if popcorn was gluten free and my friend said yes and so katie ran around the house yelling "YEA POPCORN IS GLUTEN FREE!!! WE CAN EAT IT!!!" I thought that was so good that she knows she can not have gluten and she is only 4.

It is very trying but I think everything will turn out great. I know I am feeling better now and will only get better from here. I think I gluten my self yesterday with medication. Not feel my best right now and staying close to the bathroom. so I better get off here. and talk at ya later.

Jodele

MaryKyburz Newbie

I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

gfp Enthusiast
I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

Sounds ideal perhaps from his perspective.

I spent most of my time at school at 5-10 trying to get made to stand by myself in the corridor....especially in classes hwere the teacher made me sit next to someone.

Perhaps he's hoping not to be forced to have to eat with other kids????

Nic Collaborator
I think school is going to be very challenging for us this year. My 6 yr old can't have gluten, casein, eggs, or dye. That's just about everything!! He is high functioning autistic, and hates the diet, so every opportunity he sees, he tries to sneak "bad" food. Second day of school the teacher said he took candy off of her desk. Third day of school he brought candy home in his backpak. I talked to the principle who said he would tell the lunch people to watch him (they have 2 adults in the cafeteria for 4 classrooms of kids.) Well, Friday I took him his lunch, and nobody was watching him. The kids were sitting so close together that all of their food was right in front of him. He was fixated on the cake and almost drooling. Last year he was pretty good about the diet. He would say "can I have that?" Now he is just angry and defiant about it all. He refuses to understand that the food will make him sick. I don't know how to make the school understand that they have to keep him away from the food. They had 3 projects in the classroom last week that involved making things with food. They also have their snacks on the playground, so that is another opportunity for him to sneak food from the other kids. They will probably decide that they just need to pull him out of the classroom during the food projects and probably make him eat lunch by himself in a seperate room. What about recess? No recess? This will be great for developing his social skills!!!!!!!!!!!! :angry:

Hi, since he is high functioning autistic has he been assigned a classroom aid? I had an ADHD child this school year in my class and her lunch time behavior was very reckless and therefore dangerous so we asked the principal to assign her an aid at lunch time as well. I know ADHD is different than autism but is it possible to fight for him to have an aid at lunch time? I am assuming he is classified, if he is go to the child study team with your concerns. He should not be isolated from the class, the school needs to accomodate his needs.

Nicole

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

    2. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748

    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lil-oly
      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.