Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie ...awaiting Test Results And Surfing Celiac Boards


capecodda

Recommended Posts

capecodda Rookie

Hey folks. Just found this site. Had 7 vials of blood taken on an urgent care visit to the Dr after eating multigrain oatmeal...yeeeow! I was diagnosed 6 years ago with IBS and did fine with diet up till the past few months though I do tend to have inconsistand bowels and indigestion a bit. Wondering if other celiacs experienced rapid heart beat, slightly elevated temp., a feeling of food not moving and poor absorption during an episode of Celiac Sprue. I switched to potatos, soups, yogurt, juices, rice noodles with spagetti..beef stew. All these went though fine and on the mend here but ate a tostada for lunch and feeling reactive again. Is there hidden gluten in refried beans..or corn tortillas? Sorry to be all over the place here. Just in the throes of figuring it all out and thankful to be past the wicked multigrain day..putting weight back on and digestive has been very very calm. (Also wanted to ask...do you belch alot when having celiac symptoms ...only way I can explain it is the intestines are working triple time to get these no no grains through..) Also looking for a site that lists foods to stay away from specifically and not just "things with gluten" as I have read that gluten is hidden in many foods.

TIA!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

Was your tostada from Taco Bell? I wouldn't trust them ... since they touch the other items that have gluten, there's a high chance of crumbs being in the tostada.

Your symptoms sound like they could be from celiac, especially if you get them noticeably when you consume gluten.

Meat, chicken, fish, eggs, nuts, fruits, vegetables, potatoes, rice are all naturally gluten-free depending on how their prepared. That's a starting point for you.

capecodda Rookie
Hey folks. Just found this site. Had 7 vials of blood taken on an urgent care visit to the Dr after eating multigrain oatmeal...yeeeow! I was diagnosed 6 years ago with IBS and did fine with diet up till the past few months though I do tend to have inconsistand bowels and indigestion a bit. Wondering if other celiacs experienced rapid heart beat, slightly elevated temp., a feeling of food not moving and poor absorption during an episode of Celiac Sprue. I switched to potatos, soups, yogurt, juices, rice noodles with spagetti..beef stew. All these went though fine and on the mend here but ate a tostada for lunch and feeling reactive again. Is there hidden gluten in refried beans..or corn tortillas? Sorry to be all over the place here. Just in the throes of figuring it all out and thankful to be past the wicked multigrain day..putting weight back on and digestive has been very very calm. (Also wanted to ask...do you belch alot when having celiac symptoms ...only way I can explain it is the intestines are working triple time to get these no no grains through..) Also looking for a site that lists foods to stay away from specifically and not just "things with gluten" as I have read that gluten is hidden in many foods.

TIA!

Was your tostada from Taco Bell? I wouldn't trust them ... since they touch the other items that have gluten, there's a high chance of crumbs being in the tostada.

Your symptoms sound like they could be from celiac, especially if you get them noticeably when you consume gluten.

Meat, chicken, fish, eggs, nuts, fruits, vegetables, potatoes, rice are all naturally gluten-free depending on how their prepared. That's a starting point for you.

Hi Carla. The tostada was at a local restaurant..though I had eggs and cheese this morning too and just read eggs can be a problem. I was doing better and better every day from my most recent intestinal upset..eating potatos, chicken soup, rice, yams..ate multi grqain oatmeal and ended up at the drs. Extreme fatigue, feeling of vessel pounding in intsetines...dry skin...took a whole day to work it through. Since that day I have not touched any of the grains and am re hyrated, no low grade temps, quiet intestines, weight back up. I am very familiar with the diet you wrote above..thanks!

CarlaB Enthusiast

I have had problems with restaurants that don't specifically have gluten-free menus. Sometimes I'm okay, sometimes not. I've cut out eating out until I feel better ... I know that's not what you want to hear, but it's risky and there's a high chance of contamination at any restaurant.

Some people are allergic to eggs. A large percentage of celiacs have problems with dairy. If your intestine is indeed damaged, you are probably unable to digest lactose. For me, I'm casein intolerant and get the same symptoms from dairy that I get from gluten.

The hardest part about eating out when you're not healed and are still learning, as I am since I'm only 8 months into this, is that you can't trace with certainty what made you sick. I finally cut back to the basics I listed above. When I finally feel good for some time, then I'll expand my list. I was eating out a lot, and trying all kinds of things before, but just only got well to a point.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.