Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened?


Guest ~jules~

Recommended Posts

Guest ~jules~

Well I woke up today very tired, and in the bathroom if you catch my drift. I ate no gluten yesterday I'm sure of it, and I'm also pretty sure I didn't get contaminated some other way, I've been really careful. The only thing I can think of that was different was the soy sauce I bought yesterday thats gluten free. Ugh!!! But I am also new to this, should I just have "days" like this randomly until I heal? Its really important that I know the ins and outs of this thing, I have a family, and business to run, I'm tired of waking up in the morning one day fine, and the next crappy. :angry: Ok, enough whining...I was wondering if there are anymore extensive test for food allergies that I can request monday when I go in to see my gi doc? I know others here not only have celiac, but many other problems too, I wonder if I do?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

I've been finding that my mornings like that happen about 36-48 hours after any likely source of gluten (usually cross-contamination), so could this be a more delayed reaction? I also had mornings like that after a day when I'd eaten dairy.

eleep

Nantzie Collaborator

Have you gone gluten-free with your personal care products? Check your haircare products, lip balms, lotions, cosmetics, etc. Does your boyfriend/husband use lip balm, shampoo, lotion that has gluten in it? Anything you touch with gluten in/on it, if you then touch your mouth or eat without washing your hands first, can get into your system.

Also, your food prep items and surfaces. Are you using a cutting board or wooden spoons that were used with gluten items? Nonstick pans that were used with gluten?

Nancy

CarlaB Enthusiast

I had that happen with dairy or when I had eaten away from home. I still seem to have good days and bad.

Guest ~jules~

You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

CarlaB Enthusiast
You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

If I knew how to get rid of it, I wouldn't be online right now ... I'd be out doing something!! All you can do is stay hydrated and time takes care of it.

Watch out for wooden spoons, you'll need new ones. I'd get your own pan if that's the method at home, or be sure it starts getting washed.

We just made our whole house gluten-free because I still am not better. It has to be contamination, and I'm pretty obsessive about it.

eleep Enthusiast
You know I may have, I didn't even think about pans and spoons. Well I know enough not to cross use them at the time I'm cooking, but it may have been the pan. My hubby will make a grilled cheese for the boys and put it in the oven just wiped out, so its a deffinate possibility. Jeez I guess I have to get my own julie pan, nice <_< Okay so apparently I've been glutened, mostly I have a very foggy head, any suggestions on how to get rid of it? I know my attitude stinks, but I'm not feeling well, and eating is such a pain in the butt these days, I better get used to it huh? :mellow:

Welcome to the club! You will get used to it.

My basic remedies for my own "bad attitude" have been lots of water and sublingual B-complex, Immodium (I find it helps my moods as well) and whatever exercise I can get (preferably outside). It's better for me to keep eating, so I generally stick with blander stuff. However, I do try to eat fruits, veggies and fibrous stuff.

I have headed what looked to be one very bad insomnia-provoking glutening off at the pass with activated charcoal, but still felt foggy for a few days afterwards. The activated charcoal will absorb nutrients as well as toxins, so don't take it within four hours or so of taking supplements or anything like that (sublingual vitamins, of course, won't be affected).

eleep


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~jules~

I am getting the diet down, but It seems the cross contamination is going to be an issue. I love my husband to death, but I'm still nagging him for bad habits from 5 years ago! Okay, tonight we talk about becoming a gluten free household, he already offered, so I may as well do it. Thanks for the support everyone, ugh I need a nap! :blink: (at least they like the bread I make now :P )

Nantzie Collaborator

Yep, cross contamination is what kicks your booty. Not eating the bread or whatever is the easy part.

I ended up switching over to stainless steel pans. They're actually way easier to deal with than nonstick or anything else. Nonstick gets scratched up SO easily. With stainless, I've found that it's even easier to clean. You can just scrub the heck out of it if you need to (I've found that that's rare), and when you're done it looks as perfect as the day you got it. And gluten doesn't stick to it. So you can use it for gluten and gluten-free cooking. Just making sure you clean it thoroughly between the two. You might want to buy a small saute pan or something to try it out and see if you like it. I really didn't think I would, and now I wish I had gotten stainless a long time ago.

My husband is the same way. He's slowly gotten better. But a few weeks ago, he opened up his gluten-spaghetti leftover container next to my gluten-free cutting board and ended up dropping a piece of spaghetti and sauce right on my cutting board. I didn't know until an hour later, so the sauce had soaked into the grain. I bought a new cutting board the next day. Taking a chance with getting glutened isn't worth an item that I can replace for less than $10.

Nancy

Guest ~jules~

Ya, I'm headed to wally-world today to buy pans, cutting board, toaster, etc...I'm really glad I joined this group, my gi doc sent me home with a diagnosis, and "begin gluten free diet" I have no idea what I'm doing, I feel like I'm walking blindfolded through a minefield, not fun so far, nopers.... ;)

jerseyangel Proficient
Ya, I'm headed to wally-world today to buy pans, cutting board, toaster, etc...I'm really glad I joined this group, my gi doc sent me home with a diagnosis, and "begin gluten free diet" I have no idea what I'm doing, I feel like I'm walking blindfolded through a minefield, not fun so far, nopers.... ;)

Ha--my doctor did the same thing--14 months ago!

When I stumbled onto this board a couple months later, I learned more than I could have ever imagined about this disease. I'm glad you found us--you'll do fine :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    Moooey
    Newest Member
    Moooey
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.