Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malnutrition


Guest Norah022

Recommended Posts

Guest Norah022

Could anyone give me information on how malnutrition shows itself with Celiac's?

I have been having some symptoms and the only thing we can come up with is malnutrition.

Still trying to get a blood test but my school's health services are not be very cooperative and the symptoms are starting to affect my everyday life.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Doll
Could anyone give me information on how malnutrition shows itself with Celiac's?

I have been having some symptoms and the only thing we can come up with is malnutrition.

Still trying to get a blood test but my school's health services are not be very cooperative and the symptoms are starting to affect my everyday life.

Weight loss, paleness due to anemia, hair loss, white ridges on fingernails, fatigue, etc. are all commonly seen in malnourishment and thus Celiac.

Celiac symptoms can include the above plus gas, nausea, vomiting, diarrhea, bloating, dark circles under the eyes, panic attacks, and burning sensation in limbs, just to name a few.

Some people get severe neurological symptoms (seizures, hallucinations, etc. as well).

Since you're not a new member, you are obviously on the gluten-free diet? If you are and still have weight loss etc. please see your doctor to rule out other conditions or associated conditions. There are other diseases that can cause similar symptoms that will need treatment that is NOT the gluten-free diet, which is why I think everyone should see a Dr. before doing starting gluten-free to treat their own symptoms. Just my opinion.

Guest Norah022

I was diagnosed with Celiac's by a blood test..have been gluten free since the beginning of June but have been showing these symptoms since November. We have rulled out so many things like inner ear infections and allergies.

Malnutrition was brought up because I do have nutrient definciencies and I am showing symptoms of malnutrition but the doctors don'tbelieve me and won't do the blood test.

Guest Norah022

so is it weird that i am gaining weight instead of losing it? When i first went on the diet i dropped 30 pounds but the past 2 weeks i have put on a few pounds....

myserenityprayer Explorer

I would say you should totally get tested. And you can be malnourished while not being underweight. My doctor told me after seeing my low protein levels in my blood and iron deficiency he determined malnourishment. I am also overweight, have been forever. As has been for as long as I could remember losing 20lbs. would finally get me into the normal weight range for my height. Maybe one of these days I can say I am actually healthy (nourished, feeling great, and a "normal" weight).

Definitely get your blood tested. Supposedly the usual test for Celiac Sprue should include a test for iron levels and other things like your protein levels to deterine if you are malnourished.

Guest Norah022

I have been trying to get in contact with my doctor back home, I am at school right now, to find out what they tested when they tested me for celiac's in may but i have been playing phone tag with him.

I am hoping when I go in to Health Services tomorrow and they see that I look like crap they will do the test on their own.

Guest Norah022
Get your Vitamin A and D levels checked. Most Celiac's are deficient in fat soluble vitamins...A, D, E, K.

Can they do that with just a simple blood test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Norah022

Talked to my doctor at home this morning YEAH!

He said my blood was testing 2 weeks ago and everything was perfect.

He believes I am having these symptoms because of my protein and calcium issues (I dont' get a lot of them) and also says this could be a sign that I was glutened so looks like not only does my stomach get upset but i get weak and lightheaded

lindalee Enthusiast
I would say you should totally get tested. And you can be malnourished while not being underweight. My doctor told me after seeing my low protein levels in my blood and iron deficiency he determined malnourishment. I am also overweight, have been forever. As has been for as long as I could remember losing 20lbs. would finally get me into the normal weight range for my height. Maybe one of these days I can say I am actually healthy (nourished, feeling great, and a "normal" weight).

Definitely get your blood tested. Supposedly the usual test for Celiac Sprue should include a test for iron levels and other things like your protein levels to deterine if you are malnourished.

It is my understanding that if your calcium levels or intake is low you will not lose weight.

mle-ii Explorer

Probably more information than most want to know, but I found this particular web page to have a ton of info. Though I will admit I haven't gone through it all yet.

Open Original Shared Link

Mike

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    2. - trents commented on Scott Adams's article in Kids and Celiac Disease
      2

      New Study Reveals Age and Racial Gaps in Pediatric Celiac Testing

    3. - Russ H replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    4. - Scott Adams replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Positive biopsy

    5. - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New "Glowing Bacteria" Pill Could Transform Gut Disease Detection (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,000
    • Most Online (within 30 mins)
      7,748

    bonniebeebe143
    Newest Member
    bonniebeebe143
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
    • Russ H
      What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility to coeliac disease it should be possible to give a diagnosis. There is a bit more here: Seronegative coeliac disease
    • Scott Adams
      If you are still eating gluten you could get a celiac disease blood panel done, but I agree with @trents and the gold standard for diagnosing celiac disease would be your endoscopy results. Is it possible they did do a celiac disease panel before your biopsy? This would be the normal chain of events. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • trents
      Actually, it would be more correct to say that the genetic potential to develop celiac disease is passed down from parents to children. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% of the general population actually do. But it is also true that the offspring of those who do have active celiac disease are at a considerably higher risk of developing active celiac disease than those of parents who have the genes but don't develop the disease. Some recent, larger studies put the risk at near 50% for the first degree relatives of those who have active celiac disease.
    • Jordan Carlson
      Hello everyone! Been a while since I posted. The past few moths have been the best by for recovery for myself. I have been the least bloated I have ever been, my constant throat clearing is almost gone, I have stopped almost all medication I was prevously taking (was taking vyvanse for adhd, pristiq for anxiety,fomotadine/blexten for histamine blockers and singulair). Only thing I take now is Tecta. I also no longer get any rashes after eating. Things are going very well. Most success came actually once I upped my B12 daily dose to 5,000 mcg. I do have one thing I am un able to figure out and want to see if anyone else has this issue or has experience working around it. Ever since I was born I have always had a issue getting fruits and veggies down. No matter how hard I tried, it would always result in gagging or throwing up. Always just thought I was a picky eater. Now that my stomach and system has healed enough that I can feel when something is off almost istantly, I notice that after eating most fruits (sometimes I am ok with bananas) and veggies, my stomach instantly starts burning and my heart starts to pound and I get really anxious as if my body doesnt know what to do with what just enetered it. So I am thinking now that this is what probably was going on when I was born and my body started rejecting it before which caused this weird sensory issue with it causing the gagging. Hoping someone has some exprience with this as well because I would love to be able to enjoy a nice fruit smoothie once in a while haha. Thanks everyone!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.