Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Sugar Problems?


chgomom

Recommended Posts

chgomom Enthusiast

I am pushing this issue when I see the doc on the 8th.

Last time I check ed it was really low, so...I had a piece of fruit, and a little fruit juice...and walah!(because I frequently get blurry visiosn, dizzy, and agitated) Just now the same garbage happening, I got a piece of fruit, and had a sip of pop because there was no juice available in the machine (pop was Sierra Mist)

And wow.....my head feels better, and no more nastiness with the eyes.

Why is is such a struggle....with these docs. I firmly beleive with my new diet and possibly the joy of the problems my entire family has being genetically gifted to me, I have problems with my blood sugar now.

I am really concerned about Type 1. Uggghhh

Anybody else have these issues ....or anything similar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

How did you check it? What is "realy low" ? Have you been tested for Diabeties? Do you have a home glucose monitor?

ravenwoodglass Mentor
I am pushing this issue when I see the doc on the 8th.

Last time I check ed it was really low, so...I had a piece of fruit, and a little fruit juice...and walah!(because I frequently get blurry visiosn, dizzy, and agitated) Just now the same garbage happening, I got a piece of fruit, and had a sip of pop because there was no juice available in the machine (pop was Sierra Mist)

And wow.....my head feels better, and no more nastiness with the eyes.

Why is is such a struggle....with these docs. I firmly beleive with my new diet and possibly the joy of the problems my entire family has being genetically gifted to me, I have problems with my blood sugar now.

I am really concerned about Type 1. Uggghhh

Anybody else have these issues ....or anything similar.

I had blood sugar issues for years. One thing you should do is to eat a bit of protein soon after you have that bit of sugar. I used to just eat a teaspoon of tablesugar but fruit juice is much better. The protein will help to keep your blood sugar more stabelized and keep it from going from spiking up and down. Do get things checked out by your doctor but also be sure to eat frequent small meals containing both protein and carbs to keep your levels stable.

chgomom Enthusiast

low.....was 68....I used my neighbors monitor and I am considering buying a cheap one from the pharmacy tonight.

I have had it tested.....but they said.....when it was low (for me) 75 thats normal....and when it was its highest....119...that was ok. I've done fasting not fasting, glucose tolerance...all of that....

They seem to think its not a problem....

So I will get some protein that easily aceesible. I just know...I worry about the blurry vision, the agitation and the dizziness.

I told the docs...have me do hom monitoring so I can check it when I am having the syptoms and show you....They won't do it.

Not to mention, when these symptoms comes on my pulse is wacky,,,,can go higher than 100...and then as soon as I have the sugary..and something to eat....or drink it goes back to its usualy of 75 to 80

VydorScope Proficient
low.....was 68....I used my neighbors monitor and I am considering buying a cheap one from the pharmacy tonight.

I have had it tested.....but they said.....when it was low (for me) 75 thats normal....and when it was its highest....119...that was ok. I've done fasting not fasting, glucose tolerance...all of that....

They seem to think its not a problem....

So I will get some protein that easily aceesible. I just know...I worry about the blurry vision, the agitation and the dizziness.

I told the docs...have me do hom monitoring so I can check it when I am having the syptoms and show you....They won't do it.

Heres somthing you can do yourself. Log your results and bring them to your doc.

Either borrow the meter, or buy one. I bought one from CVS for $15 or $20.

Fast for at least 8 hours, its easiest to do this while your alseep. Then test you blood. Your result should be between 70-120 (those numbers are not hard fast and vary a little form doc to doc, so dont stress about exact results.). If its signigifgnalty higher that is indictive of diabetes and you need to get the ORal Glucose Intorence Test ( I think thats the right name, they make you drink stuff at the doc and test you) They can also do an AC1 test, which you can do your self at home too, just costs more the then home glucose monitors do.

Next eat a meal thats a little sugary, but not out of line for a "normal person". Note the time you eat. Make sure its a good sized meal, you wont be eating agian for a while. :DDo not eat or drink at all after this till I mention food again in the insutructions or your results will be worthless

Check you blood about 1 hour Prbly be high, but should be under 160 or so. Do not worry about this reading as much, its the least imporant of the set.

Then check at 2 hours, should be below 140ish

Then check agian at 3 hours, should still be falling.

Then check agiain at 4 hours should be ABOVE 70. Remeber these numbers are a rough, a score of 68 is close enough.

At 4 hours, if your score is below 70, and your feeeling symptoms, eat somthing sugary (Rasins, fruit, juice, etc) and check agian in like 15 mins. If your score impoves and your symptoms imporve thats indicitive of reactive hypoglycemia.

Eeither way, your testing it done now, so eat up. :)

Make sense? Take your reuslts with you to the doc and let them see the hard numbers.

ehrin Explorer
I am pushing this issue when I see the doc on the 8th.

Last time I check ed it was really low, so...I had a piece of fruit, and a little fruit juice...and walah!(because I frequently get blurry visiosn, dizzy, and agitated) Just now the same garbage happening, I got a piece of fruit, and had a sip of pop because there was no juice available in the machine (pop was Sierra Mist)

And wow.....my head feels better, and no more nastiness with the eyes.

Why is is such a struggle....with these docs. I firmly beleive with my new diet and possibly the joy of the problems my entire family has being genetically gifted to me, I have problems with my blood sugar now.

I am really concerned about Type 1. Uggghhh

Anybody else have these issues ....or anything similar.

It does not appear that you have T1 diabetes - T1 diabetics are HYPERglycemic - where our blood sugars run high because our pancreas has stopped producing insulin. T1 diabetics are always diagnosed with high blood sugars not low. (Other common symptoms are frequent thrist and urination, a funky acetone like smell and weight loss). Your pancreas is obviously producing insulin if you are getting low blood sugars, and yes 68 is low. It sounds more like hypoglycemia - where the pancreas produces too much insulin to fight blood sugar spikes.

I'm not sure if hypoglycemics fight lows the same way.

But T1 diabetics follow the rule of 15's.

15 grams of fast acting carbs (no fat!!), wait 15 minutes, test

if still low follow again

if not - follow up with a protein source

PB crackers, cheese stick, glass of milk.

penguin Community Regular
I'm not sure if hypoglycemics fight lows the same way.

But T1 diabetics follow the rule of 15's.

15 grams of fast acting carbs (no fat!!), wait 15 minutes, test

if still low follow again

if not - follow up with a protein source

PB crackers, cheese stick, glass of milk.

Yeah, I do it pretty much the same, except that I don't test. I have quick sugar, and then wait long enough to be able to eat something (when I'm confident I'll be able to chew and not throw up)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient
Yeah, I do it pretty much the same, except that I don't test. I have quick sugar, and then wait long enough to be able to eat something (when I'm confident I'll be able to chew and not throw up)

When I thikn a crash si comming I usally grab a handfull of Rasins, or real fruit juice... somthing. Then once I think everything stable agian I hunt some protein/fat. So basicly the same idea, I just do not measure, time and test everytime.

tarnalberry Community Regular

just having fruit or fruit juice is going to keep you roller-coastering with bloodsugar and insulin levels IF you are a reactive hypoglycemic. you definitely need some fat and protein to moderate the release of sugar into the bloodstream. if you search through the site, you'll find a lot of advice on the topic - there's no single solution for everyone, of course. ;)

the self-testing over 8 hours idea is a good one. and remember that 'average' testing numbers are for an 'aveerage' population - you might feel symptoms sooner than that.

Guest Doll
It does not appear that you have T1 diabetes - T1 diabetics are HYPERglycemic - where our blood sugars run high because our pancreas has stopped producing insulin. T1 diabetics are always diagnosed with high blood sugars not low. (Other common symptoms are frequent thrist and urination, a funky acetone like smell and weight loss). Your pancreas is obviously producing insulin if you are getting low blood sugars, and yes 68 is low. It sounds more like hypoglycemia - where the pancreas produces too much insulin to fight blood sugar spikes.

I'm not sure if hypoglycemics fight lows the same way.

But T1 diabetics follow the rule of 15's.

15 grams of fast acting carbs (no fat!!), wait 15 minutes, test

if still low follow again

if not - follow up with a protein source

PB crackers, cheese stick, glass of milk.

Actually, early on in Type 1, the beta cells may begin to function irregularly as they are being destroyed by autoimmunity. Some Type 1's DO have hypoglycemia prior to being diagnosed.

Your doctor should test you for anti-GAD, ICA, and anti-insulin antibodies to see if you are developing Type 1. The oral glucose tolerance test is not usually used/helpful in diagnosing Type 1, and an HbA1c (3 month cumulative blood sugar value) is a very poor marker for Type 1, as it usually comes on suddenly. In this case, you also more than likely would not have enough sustained abnormal levels to make a difference.

More than likely it is NOT Type 1, but you should get tested. There are many trials for the newly diagnosed that can preserve insulin production (via immune regulation) if detected early.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,907
    • Most Online (within 30 mins)
      7,748

    Lori4050
    Newest Member
    Lori4050
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.