Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Relief Frpm Stomach Pain


KyKelBri2

Recommended Posts

KyKelBri2 Newbie

Hello-new to site...my daughter is almost 7 years old and was diagnosed with celiac 6 months ago. It's been difficult but we are finally at a point where Kylie has about 7 staples in her diet. She is extremely picky when it comes to eating and after throwing out a ton of food we finally found some things she will eat. Kylie's symptoms have been chronic stomach aches and head aches. I truly had to fight the doctors to get her tested for ANYTHING since they believed she had these symptoms because she is shy.

My husband and I are doing everything we possibly can to keep her gluten-free. My home is not totally gluten free but I use separate pots/utensils/etc. for Kylie's food. I cook almost everything for her and freeze it. I am finally starting to feel that I can handle this (notice I say "I") until a night like tonight where Kylie is crying over her stomach aches. She still gets them occassionally and most of the time they are dull aches but tonight she was crying. I know everything she has eaten since last Saturday and I can't see where the gluten came from. I am absolutely at my wit's end over this disease!! There is nothing worse than seeing your child in pain and you can't even offer an antacid! My question is: what can I give her to help her with her pain? Anything? I'm so angry right now that I had to hold my sobbing daughter and wait for her to pass out from crying. I want to be able to offer her some sort of medication when she has a bad day. Any suggestions from anyone?

Thank you to anyone who responds!

Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AndreaB Contributor

I don't have any advice for pain relief, I'm sorry. :(

I wanted to find out if you have had her tested for other intolerances or allergies. It could be that she is responding to something other than possible cc. Dairy and soy are two other big ones, but you'd probably want to look at the top allergens. If you don't want the expense of testing then do a food diary/journal and record everything eaten and any possible reactions, keeping in mind that a reaction to a food could be up to three days later. Eliminate all dairy and soy first for at least 2 months, preferably 6 months or more and then reintroduce a couple weeks apart and note any possible changes or reactions.

heli Newbie

Pain is very motivating. Involve that young lady in being as wary as a fox. Teach her to "interrogate" for all food that she is offered. Be sure she always has a snack (Think Organic bars are great to carry) so that she does not get hungry and eat indiscrimanately. Mom and daughter are partners in improving health.

I know the majority of the load for food prep falls to mom because I am a mom with celiac and 2 daughters with celiac.Gluten contamination may be the problem such as french fries that would be ok except if they are fried in oil that has previously had battered items fried.

Or, your daughter may have accepted/shared a food with a friend who would never intentionally make her sick. Give your daughter some friendly, cheerful "thanks, but I can't accept that food - it may have an ingredient in it that I can't eat." Where as "that food makes me sick" tends to turn people away - and you don't want your little one being ostracized over food.

I have a daughter in high school, and a daughter in college who was diagnosed in high school (finally) after 10 years and is now doing well at college.

Do you live in a city that has Whole food markets or specialty stores?

key Contributor

Dairy can be a problem for Celiac's at first until they heal. I know it was for my son. Sorry she was sick. I take Pepto-bismol when my stomach hurts. I don't know if she is old enough to take a small amount, probably they would say no. Hot herb chamomile tea may help with a small amount of honey or peppermint tea. Also, a warm heating pad helps. I try and drink more water and eat lighter when gluttened.

Is she using any products, shampoo's etc, with gluten?

Sorry she was sick. As a parent, there is nothing worse then seeing your child in pain.

The first year can be up and down and take awhile to heal.

Monica

GFBetsy Rookie

On September 3, 2005 Western Family Acetaminiphin, Asprin, and Asprin-Free pain relievers were all gluten free. I'm not sure if they still are, but they were then. As far as name brand pain relievers go, I haven't actually called any of them, but I'm sure they will answer any questions you have.

Sorry I couldn't be more help!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,669
    • Most Online (within 30 mins)
      7,748

    CDR40
    Newest Member
    CDR40
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.