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How Do I Know If Gluten-free In Working?

celiac-in-WV

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celiac-in-WV Newbie
celiac-in-WV
Posted

My husband was diagnosed a little over a week ago with celiac. He didn't have any prior symptoms before except anemia. His question is "how do I know if I am being totally gluten free if it never bothered me physically when I had it in the first place?" He could still be getting gluten unknowingly and it not be bothering him.

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Nantzie Collaborator
Nantzie
Posted

You know, that's a tough one. I've always thought that it must be hardest for people who don't have symptoms. I think with the information you get on this message board, you end up being very well informed. If you haven't already, you will learn about things like cross contamination, getting a new toaster, cutting boards and wooden spoons, and checking your personal care products. So other than that, you do the best you can and double check things that you're not sure of.

Nancy

par18 Apprentice
par18
Posted
My husband was diagnosed a little over a week ago with celiac. He didn't have any prior symptoms before except anemia. His question is "how do I know if I am being totally gluten free if it never bothered me physically when I had it in the first place?" He could still be getting gluten unknowingly and it not be bothering him.

Getting your blood tested like every 6 months or once a year is the only follow-up I was told to do if I felt fine on the gluten-free diet. I got this from Dr. Alessio Fasano from the Celiac Research Center in Baltimore. Dr. Fasano gave a talk I attended back in July 06. Basically the blood test is looking for elevated anti-body levels which would be present if one is still ingesting gluten. If your symptom is only anemia then I would think the anemia would improve after being gluten free. Was the diagnosis made only with the anemia symptom?

Tom

Guest nini
Guest nini
Posted

there are those with Anemia as their only obvious symptom that once they were gluten-free for a while start to notice other things improving that they always thought were "normal"... he may be surprised at what he discovers, and he may discover that the longer he is gluten-free that he actually does start to have reactions of symptoms from accidental glutenings... barring that, I guess just be as vigilant as possible about cross contamination and ingredient reading, and get periodic blood tests to see if the levels go down.

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  • Posts

    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      Basic metabolic panel results - more flags

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    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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