Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not So Hairy Situation...


L.A.

Recommended Posts

L.A. Contributor

Does anyone have some advice for me? I have been gluten-free for 4 years. I've had my hormone levels checked and they're fine. My calcium, iron (I'm on iron supplements for anemia), thyroid have been checked and are also fine...so why is my hair failing out?

I use gluten-free shampoo and do not seem to have any other food issues.

Also, having a hard time putting on wieght--is this normal? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Check your B12 levels ... that's frequently a major reason for hair loss :(

Hope it gets better soon.

L.A. Contributor
Check your B12 levels ... that's frequently a major reason for hair loss :(

Hope it gets better soon.

Ooops, forgot to mention...B12's are good too. :rolleyes:

CarlaB Enthusiast

Are you a man or woman :)

L.A. Contributor
Are you a man or woman :)

LOL, a female :)

CarlaB Enthusiast

I think that having a hard time putting on weight is normal. I certainly have trouble with it.

As for the hair, I really don't know. I'm having a hair analysis done to see what my mineral levels are. I'm doing it through my doctor who also practices alternative medicine. I've read about a lab in a book I'm reading (Tired of Being Tired -- great book), www.gsdl.com. I have not been to the website, but this is the place the author of the book, who is an MD, recommends. I don't know if a mineral analysis woult tell you more or not.

L.A. Contributor
I think that having a hard time putting on weight is normal. I certainly have trouble with it.

As for the hair, I really don't know. I'm having a hair analysis done to see what my mineral levels are. I'm doing it through my doctor who also practices alternative medicine. I've read about a lab in a book I'm reading (Tired of Being Tired -- great book), www.gsdl.com. I have not been to the website, but this is the place the author of the book, who is an MD, recommends. I don't know if a mineral analysis woult tell you more or not.

I did some research and found that Saw Palmetto oil extract is supposedly good for the scalp and hair loss so am trying that--started yesterday. About the weight thing, why is it so hard to put in on--I'm 5'2" and weight 99 lbs. Prior to my celiac diagnosis I was 110 lbs...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daffadilly Apprentice

Even if your B12 levels are okay, you need to take a B12 everyday.

CarlaB Enthusiast
Even if your B12 levels are okay, you need to take a B12 everyday.
Why?
lorka150 Collaborator

Are you [sure that you are] eating a balanced diet of proteins/carbohydrates/good fats?

L.A. Contributor
Are you [sure that you are] eating a balanced diet of proteins/carbohydrates/good fats?

I try to eat well balance meals--I am also a diabetic, so my meals are geared to that as well.

emcmaster Collaborator

Do you have the lab results for your thyroid tests? Doctors notoriously fail to treat patients that have very high, yet still in the normal range, TSH levels. If yours are high, you are probably experiencing the same symptoms that someone actually out of the normal range might be experiencing. Hair loss is a big symptom.

lorka150 Collaborator
I try to eat well balance meals--I am also a diabetic, so my meals are geared to that as well.

Okay! :)

Just making sure, as malnourishment of any sort can be a catalyst in that. As a diabetic (you, not me) I am sure you are extremely aware of your intake! I hope you figure it out.

L.A. Contributor
Do you have the lab results for your thyroid tests? Doctors notoriously fail to treat patients that have very high, yet still in the normal range, TSH levels. If yours are high, you are probably experiencing the same symptoms that someone actually out of the normal range might be experiencing. Hair loss is a big symptom.

I just called and made an appointment to go see the Doc and go over all my results--thanks! :)

All-about-March Newbie

What about any medications you may be on? Some medications list alopecia as a side effect (usu. reversible). I know that one medication I'm on is the culprit for my hair loss!

L.A. Contributor
What about any medications you may be on? Some medications list alopecia as a side effect (usu. reversible). I know that one medication I'm on is the culprit for my hair loss!

I'm not on any new meds and this is a fairly new problem. Real frustrating--but thanks for the ideas :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.