Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not So Hairy Situation...


L.A.

Recommended Posts

L.A. Contributor

Does anyone have some advice for me? I have been gluten-free for 4 years. I've had my hormone levels checked and they're fine. My calcium, iron (I'm on iron supplements for anemia), thyroid have been checked and are also fine...so why is my hair failing out?

I use gluten-free shampoo and do not seem to have any other food issues.

Also, having a hard time putting on wieght--is this normal? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

Check your B12 levels ... that's frequently a major reason for hair loss :(

Hope it gets better soon.

L.A. Contributor
Check your B12 levels ... that's frequently a major reason for hair loss :(

Hope it gets better soon.

Ooops, forgot to mention...B12's are good too. :rolleyes:

CarlaB Enthusiast

Are you a man or woman :)

L.A. Contributor
Are you a man or woman :)

LOL, a female :)

CarlaB Enthusiast

I think that having a hard time putting on weight is normal. I certainly have trouble with it.

As for the hair, I really don't know. I'm having a hair analysis done to see what my mineral levels are. I'm doing it through my doctor who also practices alternative medicine. I've read about a lab in a book I'm reading (Tired of Being Tired -- great book), www.gsdl.com. I have not been to the website, but this is the place the author of the book, who is an MD, recommends. I don't know if a mineral analysis woult tell you more or not.

L.A. Contributor
I think that having a hard time putting on weight is normal. I certainly have trouble with it.

As for the hair, I really don't know. I'm having a hair analysis done to see what my mineral levels are. I'm doing it through my doctor who also practices alternative medicine. I've read about a lab in a book I'm reading (Tired of Being Tired -- great book), www.gsdl.com. I have not been to the website, but this is the place the author of the book, who is an MD, recommends. I don't know if a mineral analysis woult tell you more or not.

I did some research and found that Saw Palmetto oil extract is supposedly good for the scalp and hair loss so am trying that--started yesterday. About the weight thing, why is it so hard to put in on--I'm 5'2" and weight 99 lbs. Prior to my celiac diagnosis I was 110 lbs...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



daffadilly Apprentice

Even if your B12 levels are okay, you need to take a B12 everyday.

CarlaB Enthusiast
Even if your B12 levels are okay, you need to take a B12 everyday.
Why?
lorka150 Collaborator

Are you [sure that you are] eating a balanced diet of proteins/carbohydrates/good fats?

L.A. Contributor
Are you [sure that you are] eating a balanced diet of proteins/carbohydrates/good fats?

I try to eat well balance meals--I am also a diabetic, so my meals are geared to that as well.

emcmaster Collaborator

Do you have the lab results for your thyroid tests? Doctors notoriously fail to treat patients that have very high, yet still in the normal range, TSH levels. If yours are high, you are probably experiencing the same symptoms that someone actually out of the normal range might be experiencing. Hair loss is a big symptom.

lorka150 Collaborator
I try to eat well balance meals--I am also a diabetic, so my meals are geared to that as well.

Okay! :)

Just making sure, as malnourishment of any sort can be a catalyst in that. As a diabetic (you, not me) I am sure you are extremely aware of your intake! I hope you figure it out.

L.A. Contributor
Do you have the lab results for your thyroid tests? Doctors notoriously fail to treat patients that have very high, yet still in the normal range, TSH levels. If yours are high, you are probably experiencing the same symptoms that someone actually out of the normal range might be experiencing. Hair loss is a big symptom.

I just called and made an appointment to go see the Doc and go over all my results--thanks! :)

All-about-March Newbie

What about any medications you may be on? Some medications list alopecia as a side effect (usu. reversible). I know that one medication I'm on is the culprit for my hair loss!

L.A. Contributor
What about any medications you may be on? Some medications list alopecia as a side effect (usu. reversible). I know that one medication I'm on is the culprit for my hair loss!

I'm not on any new meds and this is a fairly new problem. Real frustrating--but thanks for the ideas :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,739
    • Most Online (within 30 mins)
      7,748

    Sparkybarby
    Newest Member
    Sparkybarby
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.