Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fear

cowrdlyon

Recommended Posts

cowrdlyon Rookie
cowrdlyon
Posted

I was diagnosed 3 weeks ago with Celiac Disease thru blood tests. It's been a challange to change my eating habits and diet but my wife has been incredibly helpful and supportive. I have to have an Endoscopy and a Colonoscopy and I'm absolutely terrified!! I can't quite decide if I'm more afraid of the procedures themselves or the possible outcomes. Has anyone else been thru this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mle-ii Explorer
mle-ii
Posted

Honestly I was terrified about the procedure and a bit about the outcome. Turns out the prepwork was the most terifying part in the end. (Ha ha, pun intended ;) ) The outcome was not quite what I wanted as it turned out to be a rare disease (Lymphocytic Colitis) of which we know very little. But it did turn out for the positive. I found out that gluten can be a trigger and thus after removing gluten I got a lot better.

jerseyangel Proficient
jerseyangel
Posted

Hi--welcome to the board! :)

I had both tests done on the same day last year. I was also very nervous and afraid of the tests themselves, and of the outcome--I have a family history of colon cancer, so that was on my mind.

Turns out, there's really nothing to worry about regarding the tests--the prep for the colo is by far the worst part. I was completely out for the procedures, and I don't remember anything after the IV went in. I woke up feeling fine (but thirsty), and was able to leave shortly afterward.

Good luck with everything--don't worry too much, it'll be fine ;)

jenvan Collaborator
jenvan
Posted

Hi! I've had both and they are not bad... The worst parts are being hungry b/c you can't eat ;) and just the *annoying* prep for the colonoscopy...but no need to be scared, although I understand being so! These procedures pretty much go without a hitch for the vast majority of folks. Good luck and hope its over soon so you don't have to think about it anymore! :) Think of the peace of mind having both can give--that you will know exactly the state of things in there and can find any other issues...and also have a starting point to track your celiac with.

Guest ~jules~
Guest ~jules~
Posted

The liquid diet is the worse thing, oh and the IV depending on how you feel about needles. I don't remember anything, and nothing felt weird afterward....

sspitzer5 Apprentice
sspitzer5
Posted
I was diagnosed 3 weeks ago with Celiac Disease thru blood tests. It's been a challange to change my eating habits and diet but my wife has been incredibly helpful and supportive. I have to have an Endoscopy and a Colonoscopy and I'm absolutely terrified!! I can't quite decide if I'm more afraid of the procedures themselves or the possible outcomes. Has anyone else been thru this?

I'm having both of these done next week. I'm not as terrified about the procedure itself, but I am concerned about being able to drink all the icky stuff. I'm not good at getting myself to drink stuff that tastes bad. :( I guess I am a little concerned about the outcome. Weird as it sounds, I might actually be glad if they find something since at least I'll have a more definitive answer on a few symptoms and can start making forward progress.

S

Kat-Kat Newbie
Kat-Kat
Posted

I was 16 when they were done one me. To make it light my DR. looks at me and says, now you can tell everyone you have seen the LIGht ALL THE WAY THROUGH. I did not think it was as bad as a spinal tap. So think of it as an answer I hope you are more than 16

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lindalee Enthusiast
lindalee
Posted

I haven't had one so let us know how it is. Hope yours turns out well. :)

Guest dreams25
Guest dreams25
Posted

Hey don't be scared both of the procedures are ok the liquid before colonoscopy is the worst part i had a gastrocopy done and a biopsy taken, and at least you will know.

I think half the battle with this disease is the not knowing, and wondering why you feel so sick.

I had a pacemaker put in 2 years ago and that was much worse than either of these..

Be brave it will be ok

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      7

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    2. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    3. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
    4. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      7

      The Happy Tart review

      Absolutely my point with Kerrigan, the owner. She stood to secure many years of faithful patronage by simply inviting us in for a pastry or lunch. Or by simply producing another $50 e-card based on trust. We would have been highly satisfied. We are limited to a few restaurants in the area, and that would have been one. It was very disappointing, esp to my...
    5. trents
      - trents replied to Francis M's topic in Gluten-Free Restaurants
      7

      The Happy Tart review

      You would think any business would see the wisdom of honoring a $50 gift certificate on the basis of customer satisfaction alone, apart from any questions about software glitches.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,851
    • Most Online (within 30 mins)
      7,748
    Samanthmay
    Newest Member
    Samanthmay
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Absolutely my point with Kerrigan, the owner. She stood to secure many years of faithful patronage by simply inviting us in for a pastry or lunch. Or by simply producing another $50 e-card based on trust. We would have been highly satisfied. We are limited to a few restaurants in the area, and that would have been one. It was very disappointing, esp to my wife, to realize we can't patronize the place anymore.
    • trents
      The Happy Tart review

      By trents · Posted

      You would think any business would see the wisdom of honoring a $50 gift certificate on the basis of customer satisfaction alone, apart from any questions about software glitches.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.