Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

That Didn't Last Long....

Guest ~jules~

By Guest ~jules~
in Coping with Celiac Disease

Recommended Posts

Guest ~jules~
Guest ~jules~
Posted

Okay since I was diagnosed my husband has been really supportive. Lately I'm sensing he's getting a little burnt out on the cc issue, and I'm not very happy with him right now. Apparently he thinks he's just not going to be capable of remembering not to do certain things that will make me sick. So we just had a discussion on how he thinks I should do things so its easier for him. Nice.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Ugh... My husband didn't understand the cc thing either so I ended up just making my whole house gluten free. Otherwise I would find crumbs everywhere. It wasn't until I made everything gluten free that I started really feeling great. Perhaps you could do the same? He may feel it's an inconvenience in the beginning, but it will be healthier for the whole family and most importantly YOU WON'T BE SICK!!! I'm sure he relies on you for many, many things. If you're sick, how will you perform these duties??? Just casually stop buying glutenous things and replace them with gluten free things. Likely he won't notice until he's practically gluten free already.

Guest ~jules~
Guest ~jules~
Posted
Ugh... My husband didn't understand the cc thing either so I ended up just making my whole house gluten free. Otherwise I would find crumbs everywhere. It wasn't until I made everything gluten free that I started really feeling great. Perhaps you could do the same? He may feel it's an inconvenience in the beginning, but it will be healthier for the whole family and most importantly YOU WON'T BE SICK!!! I'm sure he relies on you for many, many things. If you're sick, how will you perform these duties??? Just casually stop buying glutenous things and replace them with gluten free things. Likely he won't notice until he's practically gluten free already.

I agree, I'm thinking about it really. He's already suggested it, so I think it would be okay. This is just not working. You know sometimes couples have enough issues at times and things to bicker about, I don't need to chomp at him everyday over this, I just need to solve the problem, go gluten free all the way...

CarlaB Enthusiast
CarlaB
Posted

It's much easier to be all gluten-free. The only gluten we have is the snacks the kids take to school with them ... the gluten-free ones are just too expensive to provide for a houseful of kids!

You need to get better at guilt ... I would have said, "Oh, yes, I'm very concerned that I'm doing everything I can to make my lifelong disease that I'm just now accepting, getting used to, and healing from less of an inconvenience to you. Please tell me how I can do that." Something like that makes the point well. Usually hubbies just aren't thinking when they say something like that and this kind of comment snaps them back to the reality that it's not always about them.

cgilsing Enthusiast
cgilsing
Posted

It took a while for my husband to get a grip on how little things would make me sick. This probably isn't the best advice, but it worked for me. I didn't dump it on him all at once. At first he seemed really frustrated by things. There was a lot of "You can't have THAT either!?! So I simplified our diets until he (and I)got used to the basics. Then little by little I dropped an "oh yeah, you can't let your hamburger bun touch my burger" or "we need a second toaster because I can't use yours" Now he is as careful as I am about food and reads lables like a champ :lol: Eventually he saw how much better I was (and how much better his life was for it) and that totally outweighed the inconvienence. :rolleyes:

Guest ~jules~
Guest ~jules~
Posted
It's much easier to be all gluten-free. The only gluten we have is the snacks the kids take to school with them ... the gluten-free ones are just too expensive to provide for a houseful of kids!

You need to get better at guilt ... I would have said, "Oh, yes, I'm very concerned that I'm doing everything I can to make my lifelong disease that I'm just now accepting, getting used to, and healing from less of an inconvenience to you. Please tell me how I can do that." Something like that makes the point well. Usually hubbies just aren't thinking when they say something like that and this kind of comment snaps them back to the reality that it's not always about them.

Oh I gave it to him believe me, I just wanted to be polite on the board lol....I'm a bit of a spitfire...Really though its just so strange to me how some people are givers and some people are takers. I told him okay were going gluten free, lets do it once and for all. The silly man helped me cook dinner, then when it came time to fix the boys plates he says "oh let me grab the flour tortillas" ugh!!!!!!! We just discussed this, so I said no dear grab the corn, and throw the flour out, everyone is having the corn. LMAO!!!! I love him dearly, but sometimes I just stare at him blinking....wondering.... smiling......how many marbles might be left up there!!!! :blink: Its just a major adjustment for everyone at first, I don't think anyone is to blame....

Adelle Enthusiast
Adelle
Posted

Hey so first I wanna say *hugs* cause I know ur struggle. We're going gluten free cause I can't seem to get ryan (my hubby) to clean the counter! Oh well, I do the grocery shopping, he's going gluten free wether he knows it or not!

Second, are u going to the support group in salem? I just found out, it's every 3rd saturday (that's tomorrow) at 5125 skyline rd (skyline at keubler) room #3. I've never been, but I'm gonna go tmw to try it out. (I have a mohawk, if ur there u'll probably recognize me) :).

Hang in there.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest ~jules~
Guest ~jules~
Posted
Hey so first I wanna say *hugs* cause I know ur struggle. We're going gluten free cause I can't seem to get ryan (my hubby) to clean the counter! Oh well, I do the grocery shopping, he's going gluten free wether he knows it or not!

Second, are u going to the support group in salem? I just found out, it's every 3rd saturday (that's tomorrow) at 5125 skyline rd (skyline at keubler) room #3. I've never been, but I'm gonna go tmw to try it out. (I have a mohawk, if ur there u'll probably recognize me) :).

Hang in there.

Theres a group, heck ya I want to go! To meet another living breathing celiac would be really nice, sometimes I feel like a freek in my own house! Is it in that Doctors Clinic on the corner? I can't go to the one tomorrow we have plans with friends I won't be able to get out of, but if you could let me know what building, or a phone number that would be wonderful! :D Thats a pretty good location also, I live out south. Thanks so much...Eh, well I never had the mohawk, but when I was 21 it was purple punky color....he he.... :P Maybe I'll see you at the next one, and thanks again...

Nooner Newbie
Nooner
Posted
:blink: Its just a major adjustment for everyone at first, I don't think anyone is to blame....

Isn't that the truth! We all make mistakes, and it takes a while to learn new habits.

Congrats on getting your house gluten free. That will really help. Your husband might need some extra assurance right now that this is hard now, but it will get easier and will all be worth it. Tell him often how much you appreciate his help and support. Positive reinforcement does wonders for all of us!

~Li

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total...
    3. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

      hi, i want to say thank you to you and @trents . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood t...
    4. JoJo0611
      - JoJo0611 replied to JoJo0611's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Just diagnosed today

      Thank you this really helped.
    5. Samanthaeileen1
      - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong. yeah I think we had better test us and the other kids as well.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748
    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Just diagnosed today

      By JoJo0611 · Posted

      Thank you this really helped. 
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.