Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy=worthless

brizzo

By brizzo
in Dermatitis Herpetiformis

Recommended Posts

brizzo Contributor
brizzo
Posted

So, my biopsy from my "scalp rash" came back as minor superficial dermatitis. Well, that was with the biopsy taken without immunoflouresence and took directly from the involved site....due to doctor incompetence! Well, I have been gluten-free for three weeks now with marked improvement..my next step is enterolab... Man, Doctors suck! Well....I have 2 questions for the board about DH.

1. How long after starting a gluten-free diet did it take for your skin to clear up totaly?

2. When you accidently ate gluten after being clear on a gluten-free diet, how long did it take the subsequent flare up to show and then go away again?

Much love,,,b.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CarlaB Enthusiast
CarlaB
Posted

I have a scalp rash that I do not think is DH. I talked to my doc, and my testing shows low adrenal function, low thyroid and anemia (just got it today, not a surprise). Low adrenal function can go along with constant inflammation, and doc thinks this is why I have a rash. I've been gluten-free for nine months, treating adrenals (diet, supplements and lifestyle changes) for three weeks and rash is just now starting to go away. Don't know if that helps, but it's my experience!

brizzo Contributor
brizzo
Posted
  • Author

hey carla, thanks for the reply. I had all my labs drawn, and doc says that I am healthy (as far as blood work goes ) from head to toe....still scratching head......"literaly!" =) thanks, b.

chrissy Collaborator
chrissy
Posted

do you consider the biopsy worthless because it did not show DH?

maybe what you have on your scalp really "IS" minor superficial dermatitis.

CarlaB Enthusiast
CarlaB
Posted
hey carla, thanks for the reply. I had all my labs drawn, and doc says that I am healthy (as far as blood work goes ) from head to toe....still scratching head......"literaly!" =) thanks, b.

Yea, my blood work is all normal, too ... I went to an MD that is more open to alternative medicine ... so she did some less conventional testing that showed all my "sub-clinical" problems. Technically, I'm very healthy :)

brizzo Contributor
brizzo
Posted
  • Author

yes, I do believe it is DH, because a gluten-free diet has completely eliminated my symptoms with the exception of a few "spots". I thought the biopsy was useless, because she did not even consider doing a biopsy for DH using immunoflouresence. She said that test was "very expensive" , and didn't want to utilize it at first. I am FULLY insured!... she just acted like DH doesn't exist... My mother is Celiac for God sakes..... A gluten-free diet eliminates the rash for the first time in 3 yrs w/o medicine... Doctors absolutely blow me away... don't get me wrong, I know there are good daoctors out there.. I just haven't met any lol :P

ravenwoodglass Mentor
ravenwoodglass
Posted
1. How long after starting a gluten-free diet did it take for your skin to clear up totaly?

2. When you accidently ate gluten after being clear on a gluten-free diet, how long did it take the subsequent flare up to show and then go away again?

Much love,,,b.

It took a few months for me because in the begining I was clueless to topical gluten and CC. Once I eliminated gluten completely my skin clears in a couple weeks. The deposits can remain in the skin for a couple of years waiting for a trace to make tham active again.

When I accidentally get gluten the rash and itching start within a few hours. This takes a couple weeks to subside if I don't get any more and reactivate the sores. Before I became a anti gluten maniac the sores would take weeks or months to heal, now that I have been gluten-free for a few years they heal much more quickly.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.