Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Headaches:(

rkmonckton11

By rkmonckton11
in Related Issues & Disorders

Recommended Posts

rkmonckton11 Apprentice
rkmonckton11
Posted

Ive been getting constant headaches or migrains. well i take migrain medicine Topamax 75mg. a day. and my headaches or migrains are still bad. All through out the day my head is throbbing. and im so agitated. and nothing is helping not even taking avele or excedrin during the day. i take my topamax in the morning and i should be fine throughout the day but im not. anyone else having problems? Should i change something? anyone have any ideas? thanks

Kristen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Ive been getting constant headaches or migrains. well i take migrain medicine Topamax 75mg. a day. and my headaches or migrains are still bad. All through out the day my head is throbbing. and im so agitated. and nothing is helping not even taking avele or excedrin during the day. i take my topamax in the morning and i should be fine throughout the day but im not. anyone else having problems? Should i change something? anyone have any ideas? thanks

Kristen

The first thing I would do is call your pharmacist to be absolutely positive that all your scripts are gluten free. Then call the number on the Aleve and on the Excedrin bottles and ask them the same question.

How long have you been gluten-free? Are there any possible issues with CC? Have you eliminated gluten from non food items like shampoos, toothpastes, craft stuff, makeup etc?

It took a while for me to be migraine free after diagnosis, don't lose hope.

Sending a hug from dark soundproof room for you.

I just noticed your picture, what a beautiful bird. Are you the one who feeds him and cleans his cage? I ask because there is nothing in the bird food line that is gluten-free. Be careful of glutening yourself caring for him, I used to get 'got' all the time when I had my little parrot.

jknnej Collaborator
jknnej
Posted

Hmmm...Topomax is an anti seizure med they give headache sufferers because it sometimes helps with migraines. Perhaps it isn't working for you...maybe it's time to try something else.

And even with topomax you should still take prescription migraine meds when you feel really bad. Try Zomeg, or Relpax, or Imitrex. Forget over the counter stuff if you have real migraines-it does nothing.

Sometimes you can take about 800 mg of Excedrin WITH a Zomeg or Relpax but other than that it won't help you on its own. If you're like me, you may get nauseated, too, and light sensitivity....the Relpax helps with that.

My migraine sufferer friends and I haven't been helped by Topomax or blood pressure meds, unfortunately. Some people are, though. But you should definitely explore other options with your dr. No need to continue taking Topomax if it isn't helping. It has too many side effects.

In any case keep us posted and good luck!!!

Ursa Major Collaborator
Ursa Major
Posted

Have you considered that maybe your migraines could be caused by other food intolerances? Mine were caused by tomatoes, and got much better when I stopped eating them.

gfp Enthusiast
gfp
Posted

What other meds are you on.....???

I personally get terrible long headaches extending into my back and shoulders from Nexium.... most people don't but I do. I can use a generic omneparazole (and yet some others can't).... and so in many ways it could be some other medication just isn't suited to YOU and another close one might not?

Worth a shot?

Corkdarrr Enthusiast
Corkdarrr
Posted
Have you considered that maybe your migraines could be caused by other food intolerances? Mine were caused by tomatoes, and got much better when I stopped eating them.

Urusula, after you stopped eating tomatoes how long was it until your headaches stopped?

LaurieAnn13 Newbie
LaurieAnn13
Posted

Kristen - I can certainly relate to what you are going through. A few months ago I started having migraines again after five years of being gluten-free with no problems. I started taking a closer look at what I had been eating and found out that there was a seasoning that I was using that has gluten in it! I don't know how that happened because usually I am soooooo careful. It just showed me that I was getting a little lax about my diet when I really need to stay adamant about checking and RE-checking ingredients all the time! Also, I had never been too worried about using gluten-free soap/shampoo, stuff like that, but from now on, that's all I'm going to use! I just ordered a bunch of stuff from the gfsoap.com and can't wait to get it.

Also, if you are taking a lot of advil and such, I read a study that said taking those types of meds can actually CAUSE headaches when taken over long periods of time, so perhaps this is ADDING to your symptoms??? Who knows...maybe something to look into...

Good luck, I hope you start to feel better soon!

Laurie

Have you considered that maybe your migraines could be caused by other food intolerances? Mine were caused by tomatoes, and got much better when I stopped eating them.

Ursula - how were you able to figure this out? Did you happen to do an elimation diet? I have been wanting to try doing this, but don't know where to get reliable information on how to do so. If this is what you did, could you tell me where you got the info to do it?

Thanks! :)

Laurie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Laurie and Courtney-- a naturopath tested me for food intolerances with a vega machine about five years ago (I know it's controversial, but he figured out mine, three of my daughter's, my son-in-law's, and three of my grandchildren's intolerances accurately with the vega machine, making my grandchildren's and son-in-law's horrible eczemas go away completely), and the nightshade family was one of my intolerances.

I don't think that machine picks up on anything that causes a delayed reaction, though. I didn't even test intolerant to wheat, never mind gluten!

I used to get migraines lasting up to three weeks every summer especially (I love tomatoes, and would eat them every day). Nothing would help, and I'd be in bed for days, and hardly functioning.

When I stopped eating tomatoes (and potatoes and peppers, I've never liked eggplant) I stopped having those long migraines immediately. I still get migraines from getting overtired, or having too much stress, or sensory overload (bright lights coupled with loud music and too many people might do it). But they don't last more than a couple of days. And they are a lot more infrequent.

ravenwoodglass Mentor
ravenwoodglass
Posted
Ursula - how were you able to figure this out? Did you happen to do an elimation diet? I have been wanting to try doing this, but don't know where to get reliable information on how to do so. If this is what you did, could you tell me where you got the info to do it?

Thanks! :)

Laurie

Hi Laurie I'm not Ursula but I was diagnosed through an elimination diet after years of negative blood work. The person who helped me with this was an allergist. He skin tested me first for true allergies and then he took a detailed diet history and gave me a starting diet of foods that I rarely ate but would give me the nutrients I needed. I started with turkey, rice, sweet potatoes, peas, pineapple and cranberry juice. Nothing else, no othr drinks except water and no salt, spices, butter etc. After I felt better, no D after 15 years of it, we started to add foods back in one at a time. They were added in pure form, for instance when I tested wheat it was cream of wheat and triscuits not bread. All new foods were added in until either I reacted or until a week was up. With intolerances sometimes the reaction is delayed, I didn't react to the wheat for 3 days but boy did I react when I did. My allergist then referred me to a GI who confirmed celiac and I continued on the elimination diet for a while just to be sure with some other foods.

The elimination diet is a long process but for me it found what the doctors couldn't or didn't look for.

There may be others than allergists that can guide with the diet and hopefully others will have some different resources and maybe websites. It wasn't easy but for me it was so worth it.

LaurieAnn13 Newbie
LaurieAnn13
Posted

Ursula and Ravenwoodglass -

Thanks so much for the replies! I guess I'll look into meeting with a homeopathic doctor or a nutritionist next!

Laurie

mommida Enthusiast
mommida
Posted

I used to suffer from migraines too. I would drink a large smart water ( magnesium and calcium added water sold by Glace -recently saw it a Target) Take sublingual vitamin B-12, and try to remember what it feels like not to have a headache. Myabe my home headache remedy can help you through til you figure out what is causing yours.

Are you anemic?

L.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      When Gluten-Free Food Is Unavailable: A Child's Struggle Highlights the Hidden Risks for People with Celiac Disease

    2. Churley
      - Churley replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    4. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    5. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,348
    • Most Online (within 30 mins)
      7,748
    jimiiiii
    Newest Member
    jimiiiii
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Churley
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Churley · Posted

      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.