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How Many Months After Starting Diet Did It Take You?


IrishKelly

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IrishKelly Contributor

I would like to start a research poll for the newbies on here. I'm curious as to how many months of a gluten-free diet it took until some of us started to feel better? I know the first couple weeks i used to get a little paranoid wondering if this "d" would actually ever go away. I'm 3 months in (still a newbie) and i still sometimes experience "d" and once in a while constipation. I learned from people on here that i ended up with a dairy problem too. All of this has gotten about 50% better at this point but i am still defintitely not healed.


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carriecraig Enthusiast

Hi Kelly,

It took me a good 8 months to feel better, and then a whole year to feel pretty much back to normal. I still get "d" because I am lactose intolerant and am too stubborn to not eat dairy. I have also noticed that I don't have severe reactions anymore when I do have a glutening.

Hang in there.

IrishKelly Contributor
Hi Kelly,

It took me a good 8 months to feel better, and then a whole year to feel pretty much back to normal. I still get "d" because I am lactose intolerant and am too stubborn to not eat dairy. I have also noticed that I don't have severe reactions anymore when I do have a glutening.

Hang in there.

Wow, anyone else wish to leave their comments?

ravenwoodglass Mentor

I noticed a difference in the amount of D I had right away, perhaps because I had D every day multiple times for 15 years before I did the elimination diet. I was very, very sick for a very long time so even a bit of improvement was cause for great joy. That said it took almost a year for all of the gluten related issues resolve for the most part, I attribute some of this to my being clueless about issues like CC and nonfood gluten for the first 6 months. I am now 4 years into the diet and except for some residual neurological damage that is still slowly resolving I am healthier and have more energy than I have had since I was very young. Seeing as I have been celiac since about the age of 5 when neuro symptoms first appeared and had severe GI troubles (misdiagnosed as IBS, take immodium, have a prozac and learn to live with it) starting at 30 I consider myself very fortunate that I have recovered as much as I have. Healing can be a long process and for me it required going to a diet that contained almost no processed foods but heal I have.

spunky Contributor

I knew things were "different" after two careful weeks of totally gluten free...but I wasn't actually "better," if that makes any sense. My "intestinal" activity was behaving differently, different patterns, but I was messed up pretty bad. After 3 months, I started having good days that felt like a normal person, but not every day was good, some were as bad as ever, it seemed. I had trouble seeing the difference between just setbacks and accidental glutenings for a while, and I don't know if it's always possible to know the difference in the early months. Finally, now at 8 months, I am having a pretty long normal time, and I feel so good it's amazing. I've noticed major mood improvements too, recently. I used to have sort of a despair feeling, but have felt very optimistic and hopeful with this new normal, well-feeling stage. I hope it lasts forever! Eating just feels better too. I think my entire digestive system is vastly improved now and I love to eat (it just feels better to eat now than it used to) and just need the bathroom once a day, except for the multiple coffee-induced, bladder visits, of course.

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      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
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