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Gi Doctor Anti-enterolab


Mamato2boys

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Mamato2boys Contributor
So where are you at in terms of the diet? Getting close to phasing out the foods in the pantry yet? Let me know when you have and I'll e-mail you a list of alternative products you might enjoy. Half the battle is finding the alternatives that you like. After that....it gets much easier. ;)

We're getting close. In the next day or so he'll finish up the last of his Rice Dream, so I'll start him on the gluten-free Wild Oats rice milk and need to re-stock snacks and lunch ideas for Ryan. I found some hot dogs at Walmart that are organic and appear to be gluten-free by Applewood Farms. I also pack him gluten-free/DF Ian's chicken nuggets, safe whole foods...but the menu is still pretty "naked" for lack of a better word. I could definitely use more ideas. Ryan's birthday is coming up on the 13th, and I'm starting to put together a gluten-free menu for the day. DH wants to do barbecue brisket, I've found a gluten-free cake recipe (it's not dairy-free though, if you have a good yellow cake recipe that's GD and dairy free, I'd love it).

I was thinking this morning too that our generation didn't have food allergies like this generation does. Our generation didn't have near the amount of immunizations, or the combinations. Makes me wonder if there's a correlation there. B)


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CarlaB Enthusiast
I was thinking this morning too that our generation didn't have food allergies like this generation does. Our generation didn't have near the amount of immunizations, or the combinations. Makes me wonder if there's a correlation there. B)

Personally, I think the immunizations have a lot to do with it, but also the stress. We're all, children included, under much more stress than we were a generation ago. Plus, our food is much less pure, much more junk food, and even the good stuff has a lower nutritional value than it used to. I think it all adds up to health problems. If we hadn't had all the stress on our systems to develop our leaky guts, I'd bet our gluten intolerance would have never been triggered!

AndreaB Contributor
I was thinking this morning too that our generation didn't have food allergies like this generation does. Our generation didn't have near the amount of immunizations, or the combinations. Makes me wonder if there's a correlation there. B)

I think it has a lot to do with immunizations. We didn't have this many when we were kids. I believe that my son's 2 month shots springboarded his reaction to gluten and soy. He probably still would have reacted down the line, since my other two and myself have celiac/gluten intolerance.

Mamato2boys Contributor
(btw.. you can read all about this in this thread... Open Original Shared Link ) After that.. we fully took him off of gluten, I know it saved his life!!!

Kristie

Oh Kristie.....what an absolutely HORRIFFIC story !!! :o I am so sorry you and your son had to go through that ! I'm really glad he's much better now - good for you for sticking to your guns !

prinsessa Contributor

My son has had soft stools his whole life. I don't know if they would be considered diarrhea, but they aren't solid. I asked his doctor about it and she said it is probably normal for him. She didn't want to do the Celiac blood test, but she did because I kept asking her about it. The blood test came back normal, but I decided to try Enterolab because I still think there is a problem (and my blood test came back normal even though I know I am sensitive to gluten). He has dropped off the charts for weight several times and that worries me.

I read in someone's post that their child cries everytime they have to have their diaper changed. My son does the same thing. He always says that it hurts. Before I went gluten free it hurt sometimes I went to the bathroom too. Like I ate too much spicey food. I am hoping to get his tests back this week. I also tested my DD because she has complained of stomach aches and has had diarrhea for no reason (that I can tell). We will see what happens.

Mamato2boys Contributor
My son has had soft stools his whole life. I don't know if they would be considered diarrhea, but they aren't solid. I asked his doctor about it and she said it is probably normal for him. She didn't want to do the Celiac blood test, but she did because I kept asking her about it. The blood test came back normal, but I decided to try Enterolab because I still think there is a problem (and my blood test came back normal even though I know I am sensitive to gluten). He has dropped off the charts for weight several times and that worries me.

I read in someone's post that their child cries everytime they have to have their diaper changed. My son does the same thing. He always says that it hurts. Before I went gluten free it hurt sometimes I went to the bathroom too. Like I ate too much spicey food. I am hoping to get his tests back this week. I also tested my DD because she has complained of stomach aches and has had diarrhea for no reason (that I can tell). We will see what happens.

You may have seen my post that went over Ryan's whole history - Ryan used to cry whenever he knew it was time to change his diaper because it always hurt him so badly (that's when he was drinking soy milk and had the diaper rash from he** because of it). I'm so sorry your son goes through that too. Let me know what your test results are !

AndreaB Contributor

Yes,

I would like to know everyone's results also.


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    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
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