Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing The Specialist In 3 Days :-x


num1habsfan

Recommended Posts

num1habsfan Rising Star

I shouldnt be afraid of seeing this specialist---I saw him twice before (he was the one that performed my first colonoscopy)

I guess I'm just afraid of him not knowing the answer to my problems either! I have the copy of the letters from my recent test results (to give to the specialist) I'm gonna type both up and maybe you guys can decipher lol .. all my family doc said was they both turned up negative obviously, but half these words I cant even say!

"BARIUM ENEMA FOLLOW-THROUGH:

CLININCAL HISTORY:

This is a 22-year-old female with a historhy of weight loss, blood diarrhea

FINDINGS:

Normal small bowel and the ascending part of the large bowel. Normal preistaltic movement and flow. No evidence of abnormal dilatation of the small bowel. No transiet intussusception or filling defect. Normal fill pattern of the jejunum and the ileum. Normal appendix has been demonstrated.

IMPRESSION:

Unremarkable study."

and.....

"INDICATIONS: HISTORY OF BLOODY DIARRHEA.

...blah blah blah...

PROCEDURE: COLONOSCOPY.

FINDINGS: Examination was carried up to the cecum. The cecum was identified by the triadiate fold and ileocecal valve. Examination up to the cecum was normal. No mucosal lesion was found to explain her symptoms. It is likely that her diarrhea is of infective origin.

ENDOSCOPIC DIAGNOSIS: NO MUCOSAL LESION FOUND - IT IS LIKELY THAT HER DIARRHEA IS OF INFECTIVE ORIGIN"

...................

Well theres the OFFICIAL wording :lol: If anyone can understand that, great, cause I cant haha ... we know it isnt infection causing it because like I said, I've been on the meds 3 times this year already (this'll be my 4th) and he gave me one of the strongest doses, so it should have killed it the first 3 times if it was an infection!

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

It is saying that your food and waste are moving normally through the various parts of your intestines and that there are no signs of damage to the intestines that would cause bleeding. The bleeding you have had, they believe, was caused by an infection in your intestines that appears to be healed.

Steve

Carriefaith Enthusiast

This is my opinion: They are not sure where the blood came from. Your small and large intestine seem normal. They didn't seem to find any direct evidence of the blood origin (such as hemroids, infections, lesions, ect). The blood you had may be from something that they can't see or something that was there and is now gone.

I wish you luck at your appointment and I hope that they can help you find an answer.

num1habsfan Rising Star

God, I cant even concentrate on homework tonight, too busy thinking about Tuesday no matter how hard I try not toooooo

Remember: This specialist decides me next step--if I should be tested again for something else, or if not, do I go to another province?

I'm thinking of taking my list of Crohn's symptoms that I put together and that I've checked off which of them I've had (which is almot all), see what he thinks of that...

~lisa~

jerseyangel Proficient

Lisa--

Definately take in your list of Chron's symptoms, and jot down anything else you can think of that might give the doctor a clue as to what is wrong.

Your new picture is cute! Good luck on Tuesday :)

Rikki Tikki Explorer

Nothing to add Lisa:

Just wanted to wish you luck

num1habsfan Rising Star
Lisa--

Definately take in your list of Chron's symptoms, and jot down anything else you can think of that might give the doctor a clue as to what is wrong.

Your new picture is cute! Good luck on Tuesday :)

well like i said, I still swear I have it..it would explain my trouble with eating veggies too, and anything else! And I know what its like to have a disease and have no proof: thats how it was with Celiac!

Thanks for liking the pic, I figured I should show that I really AM the #1 Habs fan ;) (and thats how I look during any hockey game I watch--ALWAYS must wear a hat and jersey!)--just wish it wouldnt make me look squished :lol:

~lisa~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

Yep. Definitely bring in the list.

Love the picture too!

Nancy

num1habsfan Rising Star

They have free internet access in the hotel here, so I got internet for all of today.. yay! So i promise as soon as I get back to the room after my appointment (which is less than 3 hours from now!) I'll come here and post about it!

*NERVOUS*

~lisa~

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.