Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten-ease?

amber-rose

Recommended Posts

amber-rose Contributor
amber-rose
Posted

Hi! I have to have a bioposy done in December, and I have to eat a lot of gluten before it, because I've already been gluten-free for awhile. I thought I'd try Gluten-ease to help me from being miserably sick everyday.

So does anyone have any info on it? Like how much is it, does it really help, what is their web address, etc.! thank you so much!

-Amber :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


eKatherine Apprentice
eKatherine
Posted
Hi! I have to have a bioposy done in December, and I have to eat a lot of gluten before it, because I've already been gluten-free for awhile. I thought I'd try Gluten-ease to help me from being miserably sick everyday.

So does anyone have any info on it? Like how much is it, does it really help, what is their web address, etc.! thank you so much!

-Amber :D

Why is it you "have to have a biopsy"? Did the diet not help? Did you post on this previously?

I've never heard of this "gluten-ease", but I would think that anything that was making eating gluten less painful would be interfering with the purpose of the gluten challenge, which is to make you as sick as possible as quickly as possible.

Ursa Major Collaborator
Ursa Major
Posted

Amber, unless you eat gluten for at least six months to a year, your biopsy will likely be a false negative, even if you have celiac disease. Katherine is right, gluten-ease is an enzyme that is supposed to PREVENT the damage to the intestine (if it works), and would be counterproductive to purposely damaging your villi as much as possible for the biopsy.

If a doctor would tell you that, after you started recovering from diabetes on insulin, to stop taking it and eating lots of sugar, to see how fast you can get deadly ill again, just to see if that is really it, would you do it? Or your liver enzymes are awfully high from using too much Tylenol, and you stopped using it, and your liver recovered, your doctor would tell you to take tons of Tylenol again, to see if you would have the same reaction (which could kill you, of course), would you do it? Would a doctor like that not get sued with malpractice awfully quick and lose his licence?

How do they get away with telling people to do a 'gluten challenge', trying to cause as much damage as possible, just to (maybe) get a positive biopsy? Did they not promise to 'first do no harm'?

If the gluten-free diet helped you feel better, do you really need to have the 'official' diagnosis from a doctor who thinks making you purposely ill again is ethical? Mind you, having a biopsy while still on gluten is okay, as long as they don't make you wait too long. But telling you to go back on gluten for a biopsy, after you felt better gluten-free is just plain unethical, in my opinion.

amber-rose Contributor
amber-rose
Posted
  • Author

I dont want to do the bioposy, but my mom and doctor is making me. I feel 100% better eating gluten-free, so I know that I have celiac disease, and my aunt also has it. But my mom and the doctor are making me, so I really have no choice since i'm only 14. But the doctor told me to just eat one slice of wheat bread everyday for a week before the bioposy, so I know that the bioposy will turn out negative. Which really sucks for me. :angry:<_< I also have to be sick for Christmas, since my biopsy the day before New Years. :unsure:

-Amber

Ursa Major Collaborator
Ursa Major
Posted

I am sorry, Amber. I didn't realize you were only 14 (the same age as my youngest daughter, Susie). I really feel for you. And of course you're right, the biopsy will undoubtedly be negative. Can't you show your mother this thread, so she understands that they are making you ill for nothing, that it will be completely useless?

Your mother and your doctor both need an education on celiac disease, as they know too little about it, apparently. And to make you sick for Christmas, too! Really, are they truly able to force you, short of holding you down and forcing gluten down your throat? Could you not try to find lots of evidence to prove to your mother that you feel great gluten-free, and that it's all the evidence needed?

Can you tell her that forcing you to make yourself ill is child abuse? Because, even though she probably means well, that's what it is in my opinion. I would never force Susie to drink milk and eat cheese, knowing it will give her stomach cramps, diarrhea and will make her throw up for a couple of days. It's the same thing.

Guest laydirain
Guest laydirain
Posted

hi

i just had the biopsy done early in september and it came back negative. i had been eating gluten free to the best of my ability for the 2-3 months prior. it came back negative. a couple days later, i "tested" (dumb idea, but mentally satisfying) with 2 bites of (good) pizza crust. My stomach got all bloated and distended and I havent been feeling right since...hopefully i'll level out soon. I was going to post and ask aout how long it takes to restore health after a slip up..but i havent gotten around to it. anyway, im not gving you any advice...just letting you know what happened to me...

amber-rose Contributor
amber-rose
Posted
  • Author
I was going to post and ask aout how long it takes to restore health after a slip up..but i havent gotten around to it. anyway, im not gving you any advice...just letting you know what happened to me...

Hi laydirarin! I heard it actually take one full year to get back to normal! I think thats about accurate. Thanks for the info!

-Amber

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted
hi

i just had the biopsy done early in september and it came back negative. i had been eating gluten free to the best of my ability for the 2-3 months prior. it came back negative. a couple days later, i "tested" (dumb idea, but mentally satisfying) with 2 bites of (good) pizza crust. My stomach got all bloated and distended and I havent been feeling right since...hopefully i'll level out soon. I was going to post and ask aout how long it takes to restore health after a slip up..but i havent gotten around to it. anyway, im not gving you any advice...just letting you know what happened to me...

Unfortunately, after a slipup it can take two weeks or more to feel better. And since you were still recovering after only being gluten-free for less than three months, it may take longer. Anyway, the good thing is, that now you can be sure gluten is the problem, you had quite the reaction from just two bites!

  • 1 year later...
Paul Jackson Rookie
Paul Jackson
Posted

-Amber :D wrote: "...So does anyone have any info on it? Like how much is it, does it really help, what is their web address, etc.! thank you so much!"

Here in Fresno, (Central) California, Gluten-Ease is sold by Sunrise Health Foods (at Shaw and Marks avenues) for $19.99 per bottle. On one hand, I'd think a bottle could come in handy in case of accidental glutening. On the other hand, as an enzyme, Gluten-Ease would have to be taken simultaneous with the gluten (specifically, gliadin)--in the same way that Lactaid is taken simultaneous with dairy products. In any event, I'd think that the dosage would be critically important, since even a tiny amount of gluten is harmful to a celiac (like myself). So, I'm left feeling ambivalent about Gluten-Ease. :huh:

FootballFanatic Contributor
FootballFanatic
Posted

Okay, coming from someone who had a false negative on my biopsy and bloodtest, if they are going to make you get the test, I would recommend the enterolab test. They have lots of information on why you don't have to be on a gluten-consuming diet for it to come back positive, so show that to your mom and your doctor.

Sure, opinions differ, but the doctor that had me do enterolab testing thought that it was the most accurate way of testing. PLUS you don't have to make yourself sick for it!

I hope it all works out for you, it says so much that you feel 100% better gluten free so why not stay that way!?

If you need more information send me a PM.

Best wishes!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.