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Blood Test Results

HeatherR

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HeatherR Newbie
HeatherR
Posted

Well, I talked to my primary doctor today, who filled out the lab work for me at my son's pediatrician's request. But he doesn't know what it means!!!

He said I have one of the genes: HLADQ2?

He is sending the lab work to my son's GI, so I will get more information on Oct. 5. I've been staying on gluten until I know whether I have to have a biopsy. Will a full celiac panel show if I am celiac, or are there more tests besides the biopsy?

Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

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AndreaB Contributor
AndreaB
Posted

Heather,

I haven't been through this, but from what I've read the full celiac blood panel should tell you (if the numbers are high enough in your blood) whether you have celiac or not. The biopsy can rule it in, but can't rule it out as they could miss a spot that is damaged or you may not have much damage yet.

DQ2 is a celiac gene.

ravenwoodglass Mentor
ravenwoodglass
Posted
Well, I talked to my primary doctor today, who filled out the lab work for me at my son's pediatrician's request. But he doesn't know what it means!!!

He said I have one of the genes: HLADQ2?

He is sending the lab work to my son's GI, so I will get more information on Oct. 5. I've been staying on gluten until I know whether I have to have a biopsy. Will a full celiac panel show if I am celiac, or are there more tests besides the biopsy?

Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

There can be some false negatives with both the blood test and the biopsy. Have you thought about using Enterolab?

In my opinion you should find out about whether you need to be gluten-free before the other surgery if you can. If you do need to be gluten-free and start following the diet it will be helpful to you while you are going through the healing process from the hysterectomy. Additionally many of us find that a stress to the body like surgery or an illness can make our celiac symptoms much worse. This could make for a harder recovery. If at all possible I would try to address the gluten issue presurgery.

carynanne Rookie
carynanne
Posted
Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

Why are you having a hysterectomy?

Caryn

HeatherR Newbie
HeatherR
Posted
  • Author

Caryn,

I have fibroid tumors and an enlarged uterus. Also some pain that gets pretty fierce at times.

HeatherR

Ravenwoodglass,

I have many of the same symptoms as you wrote about yourself. I was curious about the nerve damage, whether it stays or not. I am on year 13 of misdiagnosis, and am concerned that much of my problems will stay.

When you say residual nerve damage, how much do you consider "residual"?

Thanks,

HeatherR

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      nothing has changed

      By RMJ · Posted

      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
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      nothing has changed

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