Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results

HeatherR

Recommended Posts

HeatherR Newbie
HeatherR
Posted

Well, I talked to my primary doctor today, who filled out the lab work for me at my son's pediatrician's request. But he doesn't know what it means!!!

He said I have one of the genes: HLADQ2?

He is sending the lab work to my son's GI, so I will get more information on Oct. 5. I've been staying on gluten until I know whether I have to have a biopsy. Will a full celiac panel show if I am celiac, or are there more tests besides the biopsy?

Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted

Heather,

I haven't been through this, but from what I've read the full celiac blood panel should tell you (if the numbers are high enough in your blood) whether you have celiac or not. The biopsy can rule it in, but can't rule it out as they could miss a spot that is damaged or you may not have much damage yet.

DQ2 is a celiac gene.

ravenwoodglass Mentor
ravenwoodglass
Posted
Well, I talked to my primary doctor today, who filled out the lab work for me at my son's pediatrician's request. But he doesn't know what it means!!!

He said I have one of the genes: HLADQ2?

He is sending the lab work to my son's GI, so I will get more information on Oct. 5. I've been staying on gluten until I know whether I have to have a biopsy. Will a full celiac panel show if I am celiac, or are there more tests besides the biopsy?

Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

There can be some false negatives with both the blood test and the biopsy. Have you thought about using Enterolab?

In my opinion you should find out about whether you need to be gluten-free before the other surgery if you can. If you do need to be gluten-free and start following the diet it will be helpful to you while you are going through the healing process from the hysterectomy. Additionally many of us find that a stress to the body like surgery or an illness can make our celiac symptoms much worse. This could make for a harder recovery. If at all possible I would try to address the gluten issue presurgery.

carynanne Rookie
carynanne
Posted
Just curious as I'm having a hysterectomy soon, and don't know which to do first!

Thanks,

HeatherR

Why are you having a hysterectomy?

Caryn

HeatherR Newbie
HeatherR
Posted
  • Author

Caryn,

I have fibroid tumors and an enlarged uterus. Also some pain that gets pretty fierce at times.

HeatherR

Ravenwoodglass,

I have many of the same symptoms as you wrote about yourself. I was curious about the nerve damage, whether it stays or not. I am on year 13 of misdiagnosis, and am concerned that much of my problems will stay.

When you say residual nerve damage, how much do you consider "residual"?

Thanks,

HeatherR

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Unexpected gluten exposure risk from cultivated mushrooms

      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese s...
    2. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Kirkland brand (at Costco) is gluten-free and is 2,000 IU.
    3. Matthias
      - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Unexpected gluten exposure risk from cultivated mushrooms

      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise...
    4. Scott Adams
      - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Unexpected gluten exposure risk from cultivated mushrooms

      I agree with @trents, but thank you for bringing this up here!
    5. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,326
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      This is a really common area of confusion. Most natural cheeses (cheddar, Swiss, mozzarella, Parmesan, brie, camembert, and most blue cheeses) are inherently gluten-free, and you’re right that the molds used today are typically grown on gluten-free media. The bigger risks tend to come from processed cheeses: shredded cheese (anti-caking agents), cheese spreads, beer-washed rinds, smoke-flavored cheeses, and anything with added seasonings or “natural flavors,” where cross-contact can happen. As for yeast, you’re also correct — yeast itself is gluten-free. The issue is the source: brewer’s yeast and yeast extracts can be derived from barley unless labeled gluten-free, while baker’s yeast is generally safe. When in doubt, sticking with whole, unprocessed cheeses and products specifically labeled gluten-free is the safest approach, especially if you’re highly sensitive.
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      Kirkland brand (at Costco) is gluten-free and is 2,000 IU.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.