Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else In Central Upstate Ny?


TriticusToxicum

Recommended Posts

TriticusToxicum Explorer

Just curious. I know of 2 other individuals w/ Celiac's in my area. One of them is my sister! I figure there are others out there! Come on in!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

How about near Western New York across the Canadian border? It's the best I can do. :)

ravenwoodglass Mentor

Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

TriticusToxicum Explorer
Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

ravenwoodglass Mentor
Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

jerseyangel Proficient

My husband and I are both from Syracuse--our families are still there. We used to have family picnics at Keuka Lake years ago--my mom's family also has people in Owego and Auburn.

Ravenwood--you're so right about how beautiful it is up there--especially this time of year.

TriticusToxicum Explorer
I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

TriticusToxicum Explorer
This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

jerseyangel Proficient
One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

Ouch is right :lol:

babygirl1234 Rookie

buffalo ny here

ravenwoodglass Mentor
buffalo ny here

The land of the snow. It must be nice to be so close to the falls. You are new, let me take this chance to welcome you. You have found a great place for info with a lot of very nice folks.

lorka150 Collaborator

the falls are wonderful until you live there :P

jerseyangel Proficient

We went to the Falls on our honeymoon! (I know, very original! :lol: )

lorka150 Collaborator

i love niagara on the lake, but can do without the falls. some 'hidden' parts are nice. i live on the canadian side, though. the american side, in my opinion, is really grungy. although i am sure there are hidden parts on there i dont know, too.

Anteau25 Apprentice
buffalo ny here

Hey, I'm from Buffalo too!!

babygirl1234 Rookie

cool :) ive been gluten-free since i was 16

utopia Newbie

Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

jerseyangel Proficient
Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

Hi and welcome to the board :D Always great to meet a fellow Central New Yorker B)

I'm glad you found a doctor who will listen and work with you--you're right, that's half the battle right there! Yes, read up on the recipes and the products forums--lots of great info there. Good luck on the tests, and feel free to post with any questions you might have. Last year was my first gluten-free, so I know that the holidays can be successfully done on the diet.

Let us know how your tests come out :)

Canadian Karen Community Regular

Don't know NY very well, I am originally from Toronto, but now live about 1 hr east of Toronto. The only time I have been to NY is when I played baseball. We used to play tournaments on the weekend, and after playing 3 games on a Saturday, we would go home, shower and change and then drive down to Buffalo to party for the night at a place called "The Library". We had designated drivers so the rest of us could have a blast. We would get home around 3 a.m. and be up at 6:00 a.m. to play a 7:00 a.m. game!!!! Ahhhhh, those were the days!

The only other thing I am aware of in NY is my niece goes to university there, in Ithaca, NY. Anyone near there?

Hugs.

Karen

Anteau25 Apprentice
cool :) ive been gluten-free since i was 16

Hey. Did you lose power from the snow storm? I lost it Thursday night and just got it back on today!!

babygirl1234 Rookie

yes i did got it back on sunday lost it thursday night

AmyMarie Newbie

I'm live in upstate, Saratoga NY. About 30 min north of Albany.

TriticusToxicum Explorer
I'm live in upstate, Saratoga NY. About 30 min north of Albany.

Welcome!

That's a great area. I used to live in Albany - absolutely LOVE hiking in the Adirondacks!

  • 1 month later...
jcgirl Apprentice

Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today

    2. - Russ H replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Guinness, can you drink it?

    3. - Scott Adams replied to Borky's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Gluten food test strips

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Going for upper endoscopy today


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,270
    • Most Online (within 30 mins)
      7,748

    Hope2024
    Newest Member
    Hope2024
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Midwesteaglesfan
      Back home after the scope.  Dr said as soon as he got in there it was clear signs of celiacs.  Must be a decent amount of damage.  I don’t remember the post procedure conversation as the anesthesia was still wearing off but that’s what my wife says anyway.  Still the biopsy results to come back but pretty definitive and now I get to learn to live gluten free
    • Russ H
      There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain more gluten than the generally accepted as safe daily limit of 10 mg. I have seen gluten-free beers testing at between "undetectable" and 5-10 ppm. I have also seen a report of a positive home test on Daura Damm, which is sold as gluten-free beer - the manufacturer did not respond to the tester's query.
    • Scott Adams
      Welcome to the forum! Do you mean this article, and if so, I don't think these are available yet.  
    • Scott Adams
      First of all, I want to wish you the very best of luck with your procedure today. It's completely understandable to feel a mix of apprehension and hope. Your proactiveness in researching and advocating for that endoscopy was incredibly smart; securing that formal diagnosis is crucial for both insurance and long-term health management. While it's natural to worry that those five gluten-free days could affect the results, your logic is spot-on—it's highly unlikely your intestines healed completely in that short time, and the fact that your joint pain and stomach issues have flared back up aggressively after reintroducing gluten is a very strong, and unfortunate, sign that the inflammation is indeed present and active. It's also very common for people to look back and connect dots, like your lifelong migraines, once a potential celiac diagnosis is on the table, as it's a systemic condition with many non-gastrointestinal symptoms. I truly hope this scope provides the clear answers you need to finally start on the right path to managing your health and finding lasting relief from the fatigue and pain. Safe travels for your drive, and here's hoping for a definitive answer and a brighter, healthier chapter ahead.
    • Scott Adams
      This article might be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.