Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Else In Central Upstate Ny?

TriticusToxicum

Recommended Posts

TriticusToxicum Explorer
TriticusToxicum
Posted

Just curious. I know of 2 other individuals w/ Celiac's in my area. One of them is my sister! I figure there are others out there! Come on in!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lorka150 Collaborator
lorka150
Posted

How about near Western New York across the Canadian border? It's the best I can do. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
Hello from the Lake Trout Capital of the World, or so the sign says <_<:D I live on Seneca Lake midpoint between Rochester and Syracuse. Your near Syracuse right?

Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

ravenwoodglass Mentor
ravenwoodglass
Posted
Actually, almost exactly 1/2 way betweeen Albany and Binghamton on I-88. We used to go out to Keuka Lake (Penn Yan) to a cousin's cottage as a summer getaway when I was a kid. Nice area out there. I LOVE Bully Hill Wine!

I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

jerseyangel Proficient
jerseyangel
Posted

My husband and I are both from Syracuse--our families are still there. We used to have family picnics at Keuka Lake years ago--my mom's family also has people in Owego and Auburn.

Ravenwood--you're so right about how beautiful it is up there--especially this time of year.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I think I was thinking of Oneida, some of the Indian names get confusing.

Bully Hill is great as a number of other area wines. We are near Naples and they have a wonderful Grape festival every year. I have been told the Italians found it to be much like Italy when they came here and the climate is great for the grape. If I am ever able to take day trips again I would like to do a wine tour myself, there are trains that have recently started runs in season with blues music that sound like fun. I've lived all over the country and upstate NY is one of the prettiest and cheapest places I have lived, as long as you don't mind the NY taxes. Hard to make non NYers understand sometimes that all of NY is not NYC.

Where was your picture taken? It is really pretty, is it the Catskills?

I've been to the grapefest in Naples...never knew you could/would make a grape pie!

NY/NYC - uh huh!

Pic is from the Catskills last year. I prefer the Adirondacks (call me a mountain snob! :lol: ), but the Catskills are closer (and easier on the knees!).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
This is kind of off the topic--but it happened in Syracuse :D And has to do with grapes....

My ex-sister in law <_< once made a "blueberry" pie and brought it to a family dinner. At the time, she was new to the group, so we were all on our best behavior. Anyway, we begin to eat the pie, and crunched into all these little seeds--unexpected because we were thinking blueberries! And you could tell no one wanted to say anything!!

The nut had mistakenly bought grapes instead :blink: --it actually had a good taste, but that texture left a lot to be desired :lol:

One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

jerseyangel Proficient
jerseyangel
Posted
One of my ex-girlfiends (a nut herself) pulled a similar stunt with cherries in a cherry pie. She didn't pit them...Ouch

Ouch is right :lol:

babygirl1234 Rookie
babygirl1234
Posted

buffalo ny here

ravenwoodglass Mentor
ravenwoodglass
Posted
buffalo ny here

The land of the snow. It must be nice to be so close to the falls. You are new, let me take this chance to welcome you. You have found a great place for info with a lot of very nice folks.

lorka150 Collaborator
lorka150
Posted

the falls are wonderful until you live there :P

jerseyangel Proficient
jerseyangel
Posted

We went to the Falls on our honeymoon! (I know, very original! :lol: )

lorka150 Collaborator
lorka150
Posted

i love niagara on the lake, but can do without the falls. some 'hidden' parts are nice. i live on the canadian side, though. the american side, in my opinion, is really grungy. although i am sure there are hidden parts on there i dont know, too.

Anteau25 Apprentice
Anteau25
Posted
buffalo ny here

Hey, I'm from Buffalo too!!

babygirl1234 Rookie
babygirl1234
Posted

cool :) ive been gluten-free since i was 16

utopia Newbie
utopia
Posted

Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

jerseyangel Proficient
jerseyangel
Posted
Hello all, Im new to all this, and wanted to post a note, just to say hello. Im living in upstate ny, Seneca Falls area... between Rochester and Syracuse... Im excited 'cause after years of symptoms, I finally found a doctor who would do more than tell me to get some fiber and go away... The bloodwork is not in yet, but dr. seems to believe that I have celiac disease... soooo, at least I have a diagnosis....maybe...YEAH!!! Thats half the battle... Now im off to get some gluten free recipes... and just in time for the Hollidays...This is going to be interesting...

Peace and love to all -

Hi and welcome to the board :D Always great to meet a fellow Central New Yorker B)

I'm glad you found a doctor who will listen and work with you--you're right, that's half the battle right there! Yes, read up on the recipes and the products forums--lots of great info there. Good luck on the tests, and feel free to post with any questions you might have. Last year was my first gluten-free, so I know that the holidays can be successfully done on the diet.

Let us know how your tests come out :)

Canadian Karen Community Regular
Canadian Karen
Posted

Don't know NY very well, I am originally from Toronto, but now live about 1 hr east of Toronto. The only time I have been to NY is when I played baseball. We used to play tournaments on the weekend, and after playing 3 games on a Saturday, we would go home, shower and change and then drive down to Buffalo to party for the night at a place called "The Library". We had designated drivers so the rest of us could have a blast. We would get home around 3 a.m. and be up at 6:00 a.m. to play a 7:00 a.m. game!!!! Ahhhhh, those were the days!

The only other thing I am aware of in NY is my niece goes to university there, in Ithaca, NY. Anyone near there?

Hugs.

Karen

Anteau25 Apprentice
Anteau25
Posted
cool :) ive been gluten-free since i was 16

Hey. Did you lose power from the snow storm? I lost it Thursday night and just got it back on today!!

babygirl1234 Rookie
babygirl1234
Posted

yes i did got it back on sunday lost it thursday night

AmyMarie Newbie
AmyMarie
Posted

I'm live in upstate, Saratoga NY. About 30 min north of Albany.

TriticusToxicum Explorer
TriticusToxicum
Posted
  • Author
I'm live in upstate, Saratoga NY. About 30 min north of Albany.

Welcome!

That's a great area. I used to live in Albany - absolutely LOVE hiking in the Adirondacks!

  • 1 month later...
jcgirl Apprentice
jcgirl
Posted

Hi all, I am from Conklin, NY. Did anyone else get hit by the June flood. Boy it is hard being gluten-free in a FEMA trailer. Major break out of DH going on and it is miserable. Almost back in the house though

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    2. knitty kitty
      0

      Vitamins I Take

    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run...
    5. pothosqueen
      - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,993
    • Most Online (within 30 mins)
      7,748
    Tchudi
    Newest Member
    Tchudi
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.