Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diabeties And Celiac Disease


delawaregirl

Recommended Posts

delawaregirl Apprentice

My Mom has had adult onset diabeties for years and was diagnosed with Celiac about 2 yrs ago. She is 85 and lives in a continuous care facility (indepentent living now) and fixes some of her meals but eats out or in the dining hall for a large portion of her meals. She is having a horrible time controlling her blood sugar levels. The are steadily going higher but she will also have periodic lows. She is seeing a dietician and an endrocronolgist who have been working on her diabetic diet but are not very helpful or knowledgeable about Celiac. We live in a smaller town with not a lot of choices for Doctors. She never had problems with her blood sugar prior to being diagnosed with Celiac. I can not help but feel that there is a connection but can not get any answers. She is getting very frustrated as I am. My questions are: Does anyone understand what the connection is between the two diseases? How do we balance the two diets? She has a lot of trouble getting in all of the carbs and sometimes does not get in all of the protein. Where do we go to get help? How do we find a Doctor that understands both diseases?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

One thing you did not address is the question of her consistency in avoiding gluten intake in the context of the living situaion she is in. Does the staff there understand what gluten is and how it is hidden in food ingredients they may be using every day as they prepare meals? If she is not yet really gluten-free, it might be difficult to ascertain the impact of the gluten on her blood sugar control as you are dealing with two variables.

Steve

delawaregirl Apprentice
One thing you did not address is the question of her consistency in avoiding gluten intake in the context of the living situaion she is in. Does the staff there understand what gluten is and how it is hidden in food ingredients they may be using every day as they prepare meals? If she is not yet really gluten-free, it might be difficult to ascertain the impact of the gluten on her blood sugar control as you are dealing with two variables.

Steve

It is up to her to choose her food from a menu and I am sure that at times she may get some gluten that is hidden. She is 85 and none of this is easy for her. She does cook for herself but enjoys going to the dining hall so that she does not always have to eat alone and so she does not always have to cook. What I am really trying to understand is that if she manages to be 100% gluten free will the flucuations in the blood sugar resolve itself.

trents Grand Master

When she gets glutened does it seem to really upset her system or is she one of those celiacs (like me) who doesn't experience much upset when glutened, symptomatically that is? The reason I'm asking is that certain medical conditions, like infections, can cause blood sugars to be elevated, even in nondiabetics when they are older. If gluten really throws here body for a loop, then it might be having some effect on her blood sugars.

Steve

elye Community Regular

I am a type one diabetic, and I know that like some of the other type ones on this forum, getting glutened results in skyrocketing blood-sugars for me. I don't exactly know why this happens, but sometimes I'll know I've accidentally ingested gluten because I have a sudden high bs reading, as I normally have very tight control. So from my experience, eating gluten has a definite negative impact on my diabetes control, and I think that this is not uncommon in the world of diabetic celiacs...and there are MANY of us out there! :)

  • 2 weeks later...
celiac sucks Newbie
My Mom has had adult onset diabeties for years and was diagnosed with Celiac about 2 yrs ago. She is 85 and lives in a continuous care facility (indepentent living now) and fixes some of her meals but eats out or in the dining hall for a large portion of her meals. She is having a horrible time controlling her blood sugar levels. The are steadily going higher but she will also have periodic lows. She is seeing a dietician and an endrocronolgist who have been working on her diabetic diet but are not very helpful or knowledgeable about Celiac. We live in a smaller town with not a lot of choices for Doctors. She never had problems with her blood sugar prior to being diagnosed with Celiac. I can not help but feel that there is a connection but can not get any answers. She is getting very frustrated as I am. My questions are: Does anyone understand what the connection is between the two diseases? How do we balance the two diets? She has a lot of trouble getting in all of the carbs and sometimes does not get in all of the protein. Where do we go to get help? How do we find a Doctor that understands both diseases?

I have type 1 diabetes and I noticed low blood sugars before being diagnosed with celiac and that was because the food I was eating was not being absorbed so I had low blood sugars. Because I was experiencing low blood sugars I went back to doctor and the doctor changed the amount of insluin I was getting, assuming that I was getting too much. So when I was diagnosed with celiac and I went on a gluten free diet, more food was absorbed and my glucose leverls starting running high. I hope this helps!

-Maggie-

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.